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angel88
Regular Member


Date Joined Mar 2008
Total Posts : 30
   Posted 7/13/2008 12:54 PM (GMT -7)   
Hi :-)
 
i was just wondering wether anybody here has come across a diet for crohnies that can help with losing weight?
 
ive searched everywhere on the net and cant find a single thing. ive found diets for people with diabetes and even diets for poeple with underactive thyroid problems but nothing for people with crohns disease. i am an over weight crohnie and would like to lose some pounds but i cant eat most things that are healthy as some of you may understand. brown bread and veg are a no go for me.
 
would like to hear some suggestions on how to lose weight being a crohnie if you have any. i think its about time that the diet industry took note of the fact that we cant all live on special k and tons of fruit and veg. if you have any advice it would be greatly appreciated. thanks.

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 7/13/2008 4:04 PM (GMT -7)   
"No go" that cracks me up!

I too am a fat crohnie (lucky me I got a disease that was suppose to make me skinny and I double my body weight) and I think it is a daily trial and error process. Mainly I try to control the amount of calories, fat grams, get an appropriate balance, and most importantly exercise. I love my polar heart rate monitor it has a calorie counter on it.
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...-?
All suggestions/options/opinions are caveated with please consult with your local health care provider...


LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 7/13/2008 4:30 PM (GMT -7)   
I've been blessed as a fat crohnie too. (Ugh) I don't know if it will work for everyone, but last year I went on Weight Watchers and I actually felt the best that I ever have (other than when I was pregnant with my son). I lost 25lbs and have been able to keep it off for the most part. But I went on prednisone here lately and I'm slowly going up some. :-( As soon as I get to feeling better again I plan on going back on it. I have a long way to go.
Living with Crohn's Disease since Jan./2000 but had a few years prior
I'm a true Crohnie with IBS too
 
Meds I have tried:  Too many to list- LOL
Meds currently on:  Prednisone 20mg tapering  Back up to 30mg  :-(
                           Methotrexate injections once a week 25mg
                           Folic Acid 5mg once a week
                           Wellbutrin
No Surgeries
 


petittarte
Veteran Member


Date Joined Apr 2006
Total Posts : 686
   Posted 7/13/2008 6:28 PM (GMT -7)   
I agree with MMMNavy. You need to get the right balance of carbs, proteins and fats and move your body to burn more calories than you consume in a day.
Jodi

Remicade and 6MP


LynnRN
Regular Member


Date Joined Oct 2007
Total Posts : 289
   Posted 7/13/2008 6:32 PM (GMT -7)   

Hi,weight watchers online works for me. I normally don't have a weight problem,but boy the last deal with Prednisone did me in,normally I lose that weight fast,but last year did me in!! Plus I had a hard time losing weight on Humira,but I've lost 9 pounds in 4 weeks,and it's great because it's a point system,you can eat what you want/need as long as you stay within your daily and weekly allowed points.Oh,you need to exercise too,that can be the drag tongue

Good luck :-)


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 7/13/2008 7:09 PM (GMT -7)   
Don't take this the wrong way but I am so jealous of you guys. I'm a 5'9" male and I weigh 133 pounds. I would do anything to gain 30 pounds right now. I feel like I look so sickly, just a bunch of bones.
Dx'ed in 1999. No surgeries.

Current meds: 75 mg 6MP. 20mg prednisone.  Udo's Choice Probiotics (30 billion).


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 7/13/2008 7:22 PM (GMT -7)   
Rider in two words: peanut butter (creamy, all the freaking time)
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...-?
All suggestions/options/opinions are caveated with please consult with your local health care provider...


angel88
Regular Member


Date Joined Mar 2008
Total Posts : 30
   Posted 7/14/2008 6:49 AM (GMT -7)   

 

thank you all for your replies on this subject. it is greatly appreciated. it really shouldnt have to be this hard to lose weight for anybody not just crohnies but we cant have it all can we! if only we could order new bodies from the catalouge and have done with it! tongue


bektold
Regular Member


Date Joined Jul 2007
Total Posts : 456
   Posted 7/14/2008 7:08 AM (GMT -7)   
Just to show that nothing works for all of us, I tried Weight Watchers about a month ago and had problems.  Everything that I was eating was stuff that I'd had before with no problems.  I think over all I was getting too much fiber.  I was pretty miserable for about a week, until I was able to get my system settled down again.  I'll probably try it again, because all this weight is playing havock with my joints.  But not yet.

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 7/14/2008 7:18 AM (GMT -7)   
I think part of the problem is that maybe our bodies have gone into hoarding mode. At least this is what my GI thinks is going on.
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...-?
All suggestions/options/opinions are caveated with please consult with your local health care provider...


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 7/14/2008 8:44 PM (GMT -7)   
i did phase 1 of the maker's diet for 3 months with a self imposed carb ceiling of 80 grams per day (this is NOT the book version mind you). i didnt do any exercise. nothing. in those 3 months i lost like 12 lbs and i dont know where it came from cos i was already skin and bones at 140 lbs (normal weight for me is like 165 lbs).

but i've talked to others who have done the diet, non crohnies of course, and they all lost weight doing the diet. the trick is getting one to eat properly - that is eliminating all the process/refined foods and sugars and eating nutrient dense food instead of caloric dense food. it also gets you away from a lot of grain based carbs which is the staple of the american diet and is a big contributing factor to the obesity problem that nation is facing. it takes a bit for your body to adjust on this diet as you are radically changing your eating habits, hence your blood sugar has to normalize, but the "detox" is worth it. if you dont detox on a diet, then what good is it?

food for thought....
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 7/15/2008 2:06 PM (GMT -7)   

My Doc also thinks my body went into "hoarding mode" I have finally stopped gaining at least!!! I just kept gaining and i would be starving cause everything I ate ended up in the toilet not long after.

I am extremely overweight and I am uncomfortable. for the last year i could not lose no matter what. I am almost off Entocort so I am hoping that will help.

It is hard when veggies make you sick and some other healthy items. I am trying though.

As for gaining weight, I think you can find a way. Extra fat foods, peanut butter, eating rich foods will add the pounds quicker.

I wish I had the problem of needing to gain weight. People are less critical of an underweight person than an overweight person (at least it seems that way). I have been teased called names and so much more. My hubby thinks I am over sensitive but I disagree.

I am at the point where I hide from cameras and won't even swim in the neighborhood pool. I don't even wear shorts anymore. I really want to change.

Karen


 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort Switching to Humira June 2008 will wean off Pentasa and Entocort

Diagnosed w/  Fibromyalgia May 2007 also on Soma - Also on Prilosec for reflux.

 

 

Post Edited (karendee) : 7/15/2008 3:26:46 PM (GMT-6)


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 7/15/2008 4:37 PM (GMT -7)   
ha - not truly so karendee. super skinny people get a lot of crap too. they think you're super sick, sick looking, some anorexic comment or comment about you dont look healthy, blah blah blah. they also look at you funny and talk behind your back as well. you get the other end of the spectrum. you just dont hear about it as much, but it does exist. i got flack from my dad a few months after surgery for being super skinny. i had lost like 30 lbs after not eating for like 2 weeks (had my stomach pumped for 3 of them) due to complications. that wasnt cool, not from your dad.

i'm all about gaining weight, but i want to put on muscle, not just pounds. i could take a ton of nutritional supplements and just put on weight, but that is not the weight i'm interested in. gaining/losing weight is a slow process when done correctly.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 7/16/2008 7:40 AM (GMT -7)   

I understand that Crazy harry. People are cruel for any difference you might have. at least you don't have to worry about being too fat to fit in a chair or something like that. that sucks.

A lot of people also discriminate against fat people. I had a job interviewer do it so obviously I almost wanted to scream at him. there are good people that don't but I think the bad people out number them.

I guess people are hard on skinny and fat people both.

someone once made a pig sound when I walked by. That one hurt so bad and I don't eat a lot either. My 10 year old son eats more than I do. Also, my 8 year old son has heard a kid making fun of me for being fat. that one was the wost of all cause it hurt his feelings cause he loves me.

Karen


 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort Switching to Humira June 2008 will wean off Pentasa and Entocort

Diagnosed w/  Fibromyalgia May 2007 also on Soma - Also on Prilosec for reflux.

 

 


angel88
Regular Member


Date Joined Mar 2008
Total Posts : 30
   Posted 7/16/2008 12:07 PM (GMT -7)   

if people aren't talking about us because we are too fat, then they talk about us because we are too thin! can we ever really win with the "normal people".

why do they have to talk about somebody in the first place just because of the way someone looks? its like when i had to go on pred to get my crohns under control. i could see people staring at me because i had put weight on with the pred. i could just hear them saying " oh look how much weight she has put on, shes really let herself go" little do these people know that we are actually trying to do something right for ourselves but instead get slated for looking different.

we are seen as different wether we like it or not. in anything we do. jobs, social life everything and it shouldnt be like that. we get judged by our disease and nobody seems to care. of course friends and family understand,they all know and love us but its the people that dont. they are the ones to judge. and how dare they! what right do they have to treat us differently to anybody else! id like to see them live with crohns and see how they get treated. i know not all of us are the same, some of you have really good jobs with people that understand and accept you, but alot of us dont and all because we are different.

but were not different really are we. we are the ones who actually try to take care of our selves we dont abuse our bodies anymore because we cant. simple as that. but there are people out there that dont even give their health a thought and they are the people that make us feel bad.but why? thats the question. why do that to another person? i guess we will never know.

 

sorry for the vent but it gets me really angry that we have to put up with these people. its about time they woke up and realised that how they treat ill,over weight or underweight people is wrong. they have no idea.

Post Edited (angel88) : 7/16/2008 1:10:48 PM (GMT-6)

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