is this possible or anyone in pain after 3 weeks of remicade

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mal
Regular Member


Date Joined Jul 2006
Total Posts : 63
   Posted 7/14/2008 6:23 AM (GMT -7)   
Hi,
My husband is on remicade for 1.5 yrs (9 weeks apart) and he was symptom free and not takr any medicines but after the 3 weeks of last infusion he is having a pain and little loose BM.Is this possible that only after 3 weeks why pain came.I heard lots of people says that near time os infusion he feels sick but why after 3 weeks?
HIs GI gave him entocort but  pain is not getting better yet (6th day).

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/14/2008 6:27 AM (GMT -7)   
I think you still need to allow more time for the Entocort to work. It generally takes up to two weeks to kick in. As for the Remicade, maybe he needs to increase the time between his infusions. Good luck.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 7/14/2008 6:45 AM (GMT -7)   
I agree with nanners, and it can take weeks (even more then two) for ento to kick in. I think the suggestion of doing remicade in closer intervals is something to think about. Instead of 8 week intervals maybe six weeks might work better.
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...-?
All suggestions/options/opinions are caveated with please consult with your local health care provider...


mmckenna
Veteran Member


Date Joined Jan 2006
Total Posts : 725
   Posted 7/14/2008 7:41 AM (GMT -7)   
Mal,

I had similar issues after being on Remicade for a few years. It is possible that his flare is more than the current level of Remicade can handle. I went into a pretty good flare while on Remicade, and my GI chose to double the dose I was getting. I went from 400mg every 6-7 weeks to 1000mg every 8 weeks, and the problems mostly cleared up. Remicade, however, isn't a cure, so it is always possible to have active disease while on it.

Like the others have said, give the entocort some time to work.

Also, you might want to get a second opinion on your husbands treatment. It OK to do, in fact, my GI insisted on it after my last flare while on Remicade. Your health insurance should cover it, and it is a real good idea to just get someone with a fresh perspective to take a look at the overall picture.

I hope your husbands health improves soon.
Matthew McKenna,

Remicade, 6MP and a few of their friends.

"I'm just along for the ride."


RedAdmin
Veteran Member


Date Joined Aug 2003
Total Posts : 1017
   Posted 7/14/2008 7:56 AM (GMT -7)   
I know that when I was having issues making it until my next treatment, my doctor started me on Imuran. I have had to up my dose of Imuran once, but it has helped me stay at 8 weeks between treatments. I think the cousin drug is 6MP.

Any of the three supplements - Endocort, 6MP and Imuran can take up to 2 months to work fully. Do not give up hope. Keep up the good fight.
Red (Lee Ann)
 Happy Bunny 
      When life gives you lemons, squirt juice in your enemy's eyes.


mal
Regular Member


Date Joined Jul 2006
Total Posts : 63
   Posted 7/14/2008 7:57 AM (GMT -7)   
Thank you for all of you guys .Yeah we definately see and give entocort some time to work.
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