chronic abdominal and joint pain, plus fatigue

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MMMNAVY
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Date Joined Jul 2006
Total Posts : 6927
   Posted 7/14/2008 7:24 AM (GMT -7)   
I have pretty much constant abdominal and joint pain, plus fatigue. I would say that I have never been completely out of a flare since dx, but I kind of take this as a state of life with this disease.

Given some recent posts I have to wonder is constant pain and fatigue abnormal?
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...-?
All suggestions/options/opinions are caveated with please consult with your local health care provider...

Post Edited (MMMNAVY) : 7/14/2008 3:20:04 PM (GMT-6)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/14/2008 9:31 AM (GMT -7)   
Navy so sorry to hear you are hurting so much. I flared recently and did a 10 day course of Pred to kind of stop it in its tracks, which luckily worked. But as far as the joint pain, everyday is an adventure and I never know how bad its gonna be each morning. So yes I have the chronic pain everyday too. Some days, like the past 3, can be pretty dang bad. Hope you get feeling better soon.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


closure
Regular Member


Date Joined Jul 2008
Total Posts : 471
   Posted 7/14/2008 9:36 AM (GMT -7)   
Sorry to make you feel like you're the only one dealing with the pain. Honestly...I've been dealing with the joint pain for so long I don't even think to mention it anymore. You're definitely not alone...I hope you feel better soon. *hugs*
27 female
 
Bipolar, panic disorder, PTSD, PCOS, hashimoto's disease/hypothyroidism, acid reflux, and in the process of being diagnosed with either crohns, colitis, or even lupus...who knows really! the docs sure don't lol. Too many meds to list!


LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 7/14/2008 10:26 AM (GMT -7)   
I'm sorry your hurting all the time!!    I have been hurting the past two months.  But my joints only hurt when my CD flares up.  I'm also real fatigue usually only when in a flare.  I have CD very mild though too compared to most on here.   I do get cramping sometimes with bowel movements even when I'm remission.  But for the most part when I'm in remission I feel really good and can eat anything.
Living with Crohn's Disease since Jan./2000 but had a few years prior
I'm a true Crohnie with IBS too
 
Meds I have tried:  Too many to list- LOL
Meds currently on:  Prednisone 20mg tapering  Back up to 30mg  :-(
                           Methotrexate injections once a week 25mg
                           Folic Acid 5mg once a week
                           Wellbutrin
No Surgeries
 


MikeB
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Date Joined Mar 2006
Total Posts : 1169
   Posted 7/14/2008 10:43 AM (GMT -7)   
Navy I think you have to go back to one of the first principles of this diease, which is that it is very individual. I have a relatively mild case and have minimal pain, except in a flare, when cramping and spasms can double me over at times. Others seem to have a higher level of chronic inflammation which produces more frank pain, while others still have joint pain involvement which doubles the whammy. Since you habve been in fairly continuous flare for so long it is not surprising thhat you would have a pretty high level of inflammation and the pain that can bring. I have searched this forum and other sources for some time and I still have yet to encounter a "typical" Crohns patient, since there is none. However I have seen quite a few posts from patients who tell of pretty severe levels of pain on a fairly steady basis. So don't feel alone.

dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 7/14/2008 12:26 PM (GMT -7)   
Hi Navy, I've been feeling much the same as you for the last 8 years. I think the strangest part of all this is... I know I hurt,
but I can't be specific. My tummy tends to hurt all over. My legs and butt, I could freely cut off some days, and they hurt much
worse if I'm sitting and trying to relax... But most of all, it's the feeling of being very unwell that gets to me. Like when someone says
'what's up" I really can't answer, It's all of the above...It's one of those days', that just seem to happen everyday...

Believe me when I say I understand... I truly do ((((hugs))))
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts


bektold
Regular Member


Date Joined Jul 2007
Total Posts : 456
   Posted 7/14/2008 12:52 PM (GMT -7)   

I'm still coming to terms with the pain and fatigue.  I have occasional abdominal discomfort, but most of my GI pain is at the rectum and anus.  I still have problems from the incisions from my hemmie/skin tag surgery, and I'm beginning to think I always will.  One day of d or even increased frequency can leave me with a lot of soreness, itchiness, and light bleeding.  Now that I'm off the pred, my joints are giving me a lot more problems, too.

I think my problem has been that none of these problems are all that bad.  Each one, individually, is something that I can tollerate and wouldn't have bothered checking out with a doctor in the past.  It's the overwhelming mass of them that's wearing me out.  Every move I make causes a small ache somewhere.  Every trip to the bathroom leaves me itchy and uncomfortable.  I wake up every morning not quite rested enough.  I feel like I'm being ground down by all these little things.  And yet, I feel like a whiner for allowing them to affect me.  It may not be pleasant, but I'm still physically capable of doing things, so what's my problem, you know?


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 7/14/2008 1:40 PM (GMT -7)   
Thank you everyone. I am sorry I did not express that well.

I was just wondering if this was abnormal to have constant pain and fatigue with this disease? Because it is normal for me and so I was feeling a bit freakish there. (I control it with prescription pain killers.)
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...-?
All suggestions/options/opinions are caveated with please consult with your local health care provider...


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 7/14/2008 1:44 PM (GMT -7)   
Yep!! me too sweetie, and you expressed yourself perfectly. It's this DD that's abnormal...
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 7/14/2008 3:31 PM (GMT -7)   
My primariy diagnosis is RA and I have had awful daytime fatigue the entire time no matter what the level of disease activity. I have found plaquinil is the only thing that touches that it gives me almost a normal activity level but as far as I know it is not commonly prescribed for chron's nor do I know if it would be effective.
Sj

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 7/14/2008 3:56 PM (GMT -7)   
Navy,
Somewhere in my head I recall you or someone else here had Remicade induced lupus. Was that you? If it was you, how do you know that lupus is no longer in the picture? I am going somewhere wuth this but will wait until I find out if it was you that had the DILE.
Ides
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 7/14/2008 4:36 PM (GMT -7)   
Lupus still is in the picture, but it is not as bad as it was and yeah I thought about that too. But I think I just happen to be one of the murphy's law of medicine right there with you ides...LOL (joking on myself not you Ides)
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...-?
All suggestions/options/opinions are caveated with please consult with your local health care provider...


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 7/14/2008 5:20 PM (GMT -7)   
Hi Navy No I have not had any bowel pain since surgery body pain yes. Where is your CD at and have you had any resections. What meds are you on now? lol gail

Shellz0711
Regular Member


Date Joined Jun 2008
Total Posts : 54
   Posted 7/15/2008 12:19 AM (GMT -7)   
MMMNAVY I am so glad I am not alone! honestly I am the exact same way constant daily abdominal and joint pain. I am constantly on pain meds it sucks.

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 7/15/2008 9:19 PM (GMT -7)   
I never had experienced fatigue like what I had prior to being diagnosed with Lupus. It felt like I was trying to move through neck deep snow all the time. Perhaps getting them to run blood tests to assess the lupus factor would be worthwhile. Make sure they do a C3 Complement test when they do the testing. My rheumy says that is one test that can indicate the level of inflammation one is having. My C3 is in the dumpster. No wonder I feel like a train wreck......
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/16/2008 7:30 AM (GMT -7)   
Navy you are definetly not alone in needing the pain meds daily. I too have to use them in order to even have a life. I think Ides might have a good suggestion and following up on the Lupus. Sure hope you can get some relief. (((BIG HUGS)))
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


CheerDad
Veteran Member


Date Joined Apr 2004
Total Posts : 2284
   Posted 7/16/2008 1:05 PM (GMT -7)   
Fatigue yes, constant pain no. Keep working with your GI to get the pain resolved.
We can respond to irritation with a smile instead of scowl, or by giving warm praise instead of icy indifference. By our being understanding instead of abrupt, others, in turn, may decide to hold on a little longer rather than to give way. Love, patience, and meekness can be just as contagious as rudeness and crudeness.

 
Randy

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

Dx'd with Crohn's at age 12. Symptoms since age 5.

Learning to live with this Disease rather than be its victim after 36 years.

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