Tired of being sick...Remicade.........does it work?

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BELLA40
Regular Member


Date Joined Jan 2007
Total Posts : 22
   Posted 7/14/2008 7:01 PM (GMT -7)   
I have to go on Remicade when I get off the Prednisone in a couple of weeks.  If it dosen't work, I may be looking at bowel resection.  Can anyone tell me if Remicade has worked for them, and what, if any, complications you had from the medication?  I'm on Prednisone, Asacol, Imuran, and just got off Flagyl.  Any info would be appreciated. eyes

 


dodger84
Regular Member


Date Joined Jan 2008
Total Posts : 37
   Posted 7/14/2008 7:19 PM (GMT -7)   
Fortunately, Remicade has been able to mostly control my symptoms for about 4-6 weeks post-infusion (I get double dosage every 8 weeks).  The last weeks before treatment are always dangerous for me, since symptoms often come back in full force but my insurance is unwilling to allow for more frequent treatment.
 
I was taken off of Remicade for a few months and my symptoms returned but quickly dissipated after starting treatment once again.  I have not experienced any side effects of treatment yet and I started in August 2005.
 
I know this treatment is not as effective for everybody but it has treated me pretty well so far.  Hope things work out for you!

sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 7/14/2008 7:21 PM (GMT -7)   
Why do you go off prednisone first? (Is that because of some interaction or something?) Usually I would start the new med before going off pred-I may just be really ignorant here as I know next to nothing about Remicade.
Sj

mmckenna
Veteran Member


Date Joined Jan 2006
Total Posts : 725
   Posted 7/14/2008 9:43 PM (GMT -7)   
I've been on Remicade since 2002, and it has been my wonder drug. I was in full flare, major GI bleeding and looking at certain surgery. As a last resort, my GI had them give me my first infusion while in the hospital. I started to improve pretty quick. Other than an obstruction type flare, I've been doing fine ever since. I was hospitalized for the obstruction flare, and they decided to double my dose. I get 1000mg every 8 weeks. It is pretty common for symptoms to start returning towards the end of the cycle, but that just reminds me of how well it works.

Remicade doesn't work for everyone. Some have even had some bad reactions to it. Keep in mind that while it may seem like a lot of people have had problems, it's just that those of us who are doing fine are out living life. All medications have risks, and Remicade is no different. If Remicade doesn't work, there are other variations, and more coming out all the time. Humira and Cimzia are the other two, and there are more coming. So, if Remicade doesn't work, don't give up!
Matthew McKenna,

Remicade, 6MP and a few of their friends.

"I'm just along for the ride."


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 7/14/2008 11:14 PM (GMT -7)   
I had wonderful luck with Remicade! I've had to move on due to loss of response, but I am not the norm in that case. While I was on it I had no side effects and felt great. It's a wonderful drug. Try it, and if it works, enjoy it... If not (unlikely) keep trying. Like MMcKenna said, there are other variations out there to try.

Good luck!

PS I also started Remicade before tapering off steroids.
--40 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine
--rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--methylpred - finally off 6/15/08, tried Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08, started Xifanan 5/24/08 
--single mom to 10-yr-old girl

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