April, I think all of us have this problem. I have given the spoon theory to my hubby and some friends which has helped (written by someone with lupus). She describes what a day is like with her disease very well.
link to the article:
Unfortunately, some never truly understand what it feels like to be totally wiped out and almost never feel rested and energetic.
Diagnosed w/ Crohn’s Disease March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort Switching to Humira June 2008 will wean off Pentasa and Entocort
Diagnosed w/ Fibromyalgia May 2007 also on Soma - Also on Prilosec for reflux.
Thank you all for your responses and GREAT advice. I guess you will always have someone not "get it". I just wish it wasn't family and friends.
I had the spoon theory hung up at work. When someone gave me the... Why are you being lazy look... I made them read it. I love that story, it even helped me put this DD in perspective.
I think my family understands the actual Crohn's part of being sick but it's feeling ok Crohn's wise and getting a cold or other infection and feeling exhausted... not tired... but EXHAUSTED!
I love this site! It's always lets me know I'm not alone! You guys are GREAT!