Anyone get Ocular Migraines before?

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Jen77
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Date Joined Mar 2006
Total Posts : 2689
   Posted 7/15/2008 6:40 PM (GMT -7)   
I get these every once in a while, where I get the aura, zigg zagg lines, and a blind spot. Last about 15-30 minutes long. Sometimes I'll get a headache afterwards, sometimes I don't. I brought it up to my eye doctor a few years ago, and he agreed that's all it was. Nothing to worry about, nothing they really can do about it.
 
So I get one this morning. This one scared me a little more then usual. I think partly because I haven't had one in so long. But I had some zig zag lines, but more of a blind spot off to the right in my right eye. It went away, and I actually do have a headache even. I think lack of sleep triggered it. But the blind spot this time upset me something terrible. I'm having watery D and pain. I keep trying to tell if I still have a blind spot. Driving myself batty. I don't see my eye doctor again until 8/29. That's the soonest I could get in, and I made that appointment a few weeks ago. He's going on a 3 week vacation I guess.
 
Just seeing if anyone else gets these. I don't think it's Crohn's related necessarily. I've been dealing with some eye redness and itchiness as well, but I attributed it to allergies.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapered to 2.5 mg *eek*, Asacol, Questran, Toprol XL (for high blood pressure).


sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 7/15/2008 7:15 PM (GMT -7)   
Hi--I get the same symptoms before i get a migraine or during a cluster of migraines. Ultimately not a big deal but I don't like to drive with it going on. Sometimes migraines can manifest themselves this way. Glad you are communicating with doc/eye doc about this.
23 years with moderate Crohn's/colitis; fistulizing crohn's; pentasa, just started humira


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 7/15/2008 8:41 PM (GMT -7)   
Jen,

I used to get them, just as you described, many years ago, on occasion. It really is scary to have a blind spot even temporarily . . . because you really aren't sure the sight will return.

If the blind spot stayed . . . I would be calling the eye doc too!! Make sure to tell them each med that you are taking though. Some of our meds can cause eye issues. Plaquenil comes to mind. I see an opthalmologist once every 6-12 months. Mainly to check field of vision. It is a rare problem, but its good to be careful.

Blessings!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

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Jen77
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Date Joined Mar 2006
Total Posts : 2689
   Posted 7/16/2008 11:46 AM (GMT -7)   
Thanks! Glad to hear I'm not the only that has gotten these. My eye is fine, I think I was just freaked out by it yesterday. Scary to lose any part of your vision, even if for a few minutes. I'm going to bring it up to the eye doctor again next month, but I'm pretty sure that's all it was. Scary though!
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapered to 2.5 mg *eek*, Asacol, Questran, Toprol XL (for high blood pressure).


potatoqwn
Regular Member


Date Joined Jan 2006
Total Posts : 355
   Posted 7/16/2008 1:39 PM (GMT -7)   
I get migraines and I get the ocular migraines also. For some reason, in me, I get them seperate of one another. I get the painful migraine headache without fail at least twice a month and they last several days. The ocular migraine just comes on once in a while and lasts about 30 - 45 minutes. It is scary and strange with all those visual disturbances. Mine start out small and get bigger and bigger until my whole field of vision is affected. Then it goes back down to that starting point and finally goes away.

That said, if you still have some vision loss a while after one of these, you should see an eye doctor right away. Sustained loss of vision is an emergency. Occular migraines are not. I also don't think they have anything to do with Crohn's. I hope you are better soon.

Jen77
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Date Joined Mar 2006
Total Posts : 2689
   Posted 7/16/2008 3:14 PM (GMT -7)   
potatoqwn, that's how I get them too. I get really bad migraines without the visual stuff, usually a few times a year. The kind that put me to bed for 2-3 days. Then I'll get these ocular migraines once in a blue moon. It may come with a headache, and it may not wierd. The blind spot went away after 20-30 minutes, I was just so freaked out by it I kept looking for it the rest of the day. I think since it was years since I had it, it just freaked me out again! But it did only last the 20 minutes or so, like all the zigg zaggs did.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapered to 2.5 mg *eek*, Asacol, Questran, Toprol XL (for high blood pressure).


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 7/16/2008 4:42 PM (GMT -7)   
I get them all the time. I love razatripan (sp?).
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...-?
All suggestions/options/opinions are caveated with please consult with your local health care provider...


Karen
New Member


Date Joined Jun 2015
Total Posts : 2
   Posted 6/14/2015 4:52 AM (GMT -7)   
PLEASE READ
I started getting eye migraines about 8 years ago. The first one is the scariest because you think you are having a stroke. However, I got lucky and talked to a doctor who told me to take Magnesium. I did (1000 mg) a day and have not had one since. Every now and then a doctor will be totally honest with you. I think they know more than they lead on sometimes, because there is more money in it. But please, try this and see if it works for you. Good luck to all who try this simple remedy.
Karen

Duffle
Regular Member


Date Joined Jun 2014
Total Posts : 302
   Posted 6/14/2015 9:37 AM (GMT -7)   
Vision loss always - it's my warning one is on the way - when I lose the bottom left quarter of vision. Had for over 40years ... Only in recent years did I discover Rizatriptin (mentioned above) ... Means within an hour I can carry on (albeit with a banging head). No longer lose the whole day.
Diagnosed: January 2000
Drugs: currently Azathioprine 150mg (Imuran) [14yrs], prednisone, Humira, B12, Clexane, vitamin D.
Previous drugs: been through the sweet shop
Bonus probs thanks to Crohns: osteoporosis and blood clots
Age: 49 (but feel over 80 when ill)

ragbag
Regular Member


Date Joined Sep 2003
Total Posts : 109
   Posted 6/15/2015 5:41 PM (GMT -7)   
this happened to me a few years go for the first time. I was seeing rainbow swirls in my peripheral vision and it was very scary. Then I had a splitting headache that lasted The rest of the day. After having three of these I told my eye dr. about them and he said if I have any more to see my regular dr. I was actually on my way to another appt. last December and I had two of these things right on top of eachothet. i left my one appt. and was able to get an immediate appt. with my family dr. He eased my fears and prescribed something to take when these come on. I have not had a blind spot though. Maybe phone your eye dr. And ask to be notified if there is a cancellation and express your concern that this could be something else going on. My eye doctors first exam was to be sure I did not have a detached retina.
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