Ides How's it going?

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gachrons
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Date Joined Mar 2007
Total Posts : 4527
   Posted 7/16/2008 4:03 AM (GMT -7)   
Hi Ides just seen your post where you said your not doing so good.Is your CD acting up ? I know you been threw the grinder and sure hoping your getting some good help. What have you been doing lately? lol gail

ivy6
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Date Joined Sep 2005
Total Posts : 10404
   Posted 7/16/2008 5:49 PM (GMT -7)   
bump
Co-Moderator Crohn's Forum.


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 7/16/2008 6:10 PM (GMT -7)   
Hi gachrons and everyone else! I have been having quite the time of it lately. The only thing functioning well is my intestinal tract. My gut seems to be in remission - most likely from the prednisone and Imuran. The Remicade and Humira really got and kept my intestinal troubles in remission. And the Imuran seems to be doing the trick since stopping the biologics last December.

My current problems stem from two things - the lupus and the anhylosing spondylitis. The lupus flare really wiped me out. I had a fever for 2.5 months and the exhaustion was overwhelming. So when they put me on a prednisone taper I soon got to feeling better. When I tapered down to 5 mg some of the symptoms returned and then my SI joint decided to get into the picture. I awoke Monday morning completely unable to bear weight on my left leg. I have not ever had problems with my left SI joint. It was always the right side before. This flare was so severe, I thought perhaps my left femur was collapsing from the AVN. Now after 2 days, I know it's the left SI. Also they started me on Plaquenil last Friday so there is always the possibility of some rare side effect from the med...

In the midst of all this, the vascular surgeon said I needed an arterigrom on my left leg and a stent placed into the artery that is narrowed. With all this going I had a sense of disaster were I to go along with the surgery. So I emailed him and said I wanted to cancel. Well, he just emailed me back and said I have to come in tomorrow afternoon so he can check me out...

The one thing that kept me sane after my husband died suddenly two years ago was gardening. Digging in the dirt is a passion and the best anti-depressant I know of. I have been so overcome with physical problems I do not have the energy or ability to work in my rather extensive garden. When I came to this realization the other day it made me cry.

Thanks for asking about me..and double thank you for letting me vent.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/16/2008 6:17 PM (GMT -7)   
((((Ides))))

I'd like to be able to compare your body to your garden and say that it's only with time that you see growth and progress. I hope that this is just a difficult patch, Ides, and that treatment and medication will restore your energy and stability. That's what I wish for you, and am sending you all my good thoughts and prayers.

Will you tell us what happens at your appointment tomorrow?

Hugs,

Ivy.
Co-Moderator Crohn's Forum.


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 7/17/2008 5:48 AM (GMT -7)   
(((((( Ides )))))))))

I can SO identify with your sadness about losing the ability to garden!

These dd's just pluck away our ability . . . one stinking thing at a time. I was an avid gardener too. And i was participating in some great backpacking trips too. All that is gone and if I walk just a bit too far (some days that's just around our culdesac) I pay dearly.

I've found . . . that given time . . . I've adjusted to each new limitation. But recently, I've been feeling like I'm getting painted into a smaller and smaller box.

I know you are not a complainer and that you've made the best of some really hard times. I hope that your limitations are temporary sis. I also want to thank you and others like you who show us how to "Do Disease" with dignity.

SOoooo sorry you are in such a rough patch. Thanks for sharing.

Sending you some hot tea!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/17/2008 6:32 AM (GMT -7)   
(((IDES)))) so sorry to hear that you are not doing well. I think I have been suffering with something similar in my left SI joint too. I feel your pain when you say how hard it is to walk. Please take care of yourself and know that I am keeping you in my prayers.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


gachrons
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Date Joined Mar 2007
Total Posts : 4527
   Posted 7/17/2008 9:31 AM (GMT -7)   
Hi Ides there is some good there amongest the things not going so good.I too am a gardenerand I let mine kind of go wild this year. I think it is still beautiful although there are some weeds. I have the huge white dasies that are looking good now. I know it can be hard not to be able to do stuff i let some go and do when I can. Containers is also a great way to garden.
I found getting away for a few days helped when is the last time you went somewhere?
Maybe your leg does need the surgery you"ll let us know how it goes?
Hope the meds don't give you any more stress and do you some good. Hang in there Ides things will get better ! lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 7/17/2008 11:52 AM (GMT -7)   
I am sorry, too. know that we are all thinking about you. yp
49 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 7/17/2008 12:48 PM (GMT -7)   
Oh Ides...I can relate to the gardening feel. it is frustrating to not get out there becuase it is so relaxing. My friend did the best thing for me the year I could do no gardening - she bought me several window boxes with indoor plants for me to put in them. I did help the itch to garden some. i wish I could do the same for you!
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/17/2008 4:13 PM (GMT -7)   
"painted into a smaller box" - so true, Rosie.
Co-Moderator Crohn's Forum.


SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 7/17/2008 4:33 PM (GMT -7)   
Ides,
Im so sorry to hear of all your troubles. Thoughts and prayers are with you.
Joanne

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 7/17/2008 9:29 PM (GMT -7)   
Wow - I am so moved by all the support you have given me. And I love the fact that I am in the midst of a lot of other "dirt diggers"!

My vascular appt was moved to tomorrow. My back pain is really bad and I am getting pretty concerned. Called the rheumy's office and he is at a conference out-of-town. Am going to try and pray on the sympathies of the vascular guy to fast track me to see someone tomorrow afternoon to deal with the back/hip. I cannot spend the weekend like this. If that doesn't work I will be forced to go to the large, slow moving ER of my military medical center. The only portal of entry for me when I need urgent but not emergent care is to go to the ER. The system stinks! My daughters are convinced that sometime I will wait too long to seek help because of my dislike for going to this particular ER. It's a great place if you have been traumatized [shot, hit by car] but they mostly seem clueless about my chronic maladies. I'll let you know...again thanks for letting me vent.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 7/17/2008 9:45 PM (GMT -7)   
Big Hug to you ((((((Ides)))))). Your always in my thoughts and prayers. I just wanted to plant a seed so to speak. As you know my wife is fighting cancer and she does have lots of flower beds and pots. The chemo made her too ill to work in the yard. I'm not so great with flower beds but when things need doing I let her watch me and tell me what to do and I do my best. Guess what I am saying is, maybe there is someone, perhaps a youngster you could supervise in the yard. It would help get things done and you still get to smell the roses . Plus you get to share your knowledge..You may even be nurturing a future gardener.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 7/18/2008 4:18 PM (GMT -7)   
Hi Ides hope your daughters are never right on that one but get yourself off when you have to . Thinking of you .lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


Marie-Claire
Veteran Member


Date Joined Mar 2007
Total Posts : 900
   Posted 7/18/2008 6:10 PM (GMT -7)   
Oh Ides! I hope you can get back to your gardening soon. I lost my garden 12 years ago. I used to wake up at the crack of dawn with the birds.... my girls and I would have breakfast, get dressed, and then head down to the compost bin...wayyyyy back of the garden. We wouldn't make it back into the house until noon, then back out we'd go again. I won all kinds of awards for my garden. I had a rose garden, where we'd planted a rose for every neighbor on the street....when their rose was in bloom... i'd send the girls down to deliver them to their namesake...they'd always be so proud as punch. Sent my youngest out for a cucumber once and she came back with a pumpkin.... My garden was everything to me.... and when we had to scoot with just the clothes on our backs, my beautiful garden stayed behind. I won for best petunias one year...and my daughters went around telling everyone I was the "Petunia Queen!" So many wonderful memories. I still grieve the loss of my garden.
I can't garden anymore, but what I have started doing is painting and sketching.... and guess what I paint!
It helps a great deal . That garden is my safe place! Its the place I go to in my mind and heart when things are rough!
Maybe someone can bring you seed catalogues and flower catalogues. I used to sit in the middle of winter and plan my garden for ours.... I'd make chart after chart and list after list... it helped me get through our long , cold winters.
God bless dear one. I will keep you in my prayers and picture you gardening , knee deep in weeds and dirt. Positive thinking... and lots of prayers go out to you.
Mary
51 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.,RLS, arthritis
 
 


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 7/18/2008 9:33 PM (GMT -7)   
Marie-Clarie, I would like to know what happened that you had to move so suddenly. My e mail adrs. is on my profile if you prefer or just tell me mind my own business. I know its not the same but I have made gardens in plastic buckets before and grown some nice tomatoes and some vegies on the porch. Maybe you could do that,, I mean , you can only paint just so many pumpkins before you want a pie.
Ides you hang in there....
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

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