Anyone with Entocort experiences?

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Regular Member

Date Joined Jun 2006
Total Posts : 115
   Posted 7/17/2008 10:50 AM (GMT -6)   
My friend's doctor is recommending steriod treatment for CD and Celiac and I have been doing some research on the subject.  It appears that Entocort has the fewest side effects and works locally in the gut.  I would appreciate any feedback you may have on this drug - good or bad.
klsygal :-)
Concerned friend of a Crohnie.  Trying to support him in his life and treatment.
"Our doubts are traitors, and make us lose the good we oft might win by fearing to attempt."
Shakespeare - Measure for Measure
Love is not love which alters when it alteration finds, nor bends with the remover to remove; oh no, it is an ever fixed mark, that looks on tempests and is never shaken...
Shakepeare - Sonnet CXVI

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 7/17/2008 11:31 AM (GMT -6)   
I have used it before. It takes longer to work, but does indeed have fewer side effects. Some folks still can get some of the steroid type side effects though.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Regular Member

Date Joined Dec 2007
Total Posts : 298
   Posted 7/17/2008 7:17 PM (GMT -6)   
I have been on Entocort for about three weeks. The main side-effect I have experienced is dizziness, more so in the first few days. But overall it is much easier on the system than prednisone.
July 2007 Drug-Induced Liver Injury
January 2008 Crohn's Ileitis
Currently trying...
Entocort, Enteral Nutrition, Omega-3 (Flax Oil and Fish Oil), VSL#3, Vitamin E

Regular Member

Date Joined Mar 2008
Total Posts : 54
   Posted 7/17/2008 9:50 PM (GMT -6)   
I took Entocourt a few years back. It is really good. I didn't have any side effects. It took I think
three weeks to work but unfortunately after several months it quit working.

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 7/17/2008 10:02 PM (GMT -6)   
Check the new meds thread.
Co-Moderator Crohn's Forum.

New Member

Date Joined Jul 2008
Total Posts : 1
   Posted 7/17/2008 11:18 PM (GMT -6)   
I have used entocort on and off. First few times had no side effects it worked really well. This last time I was on it for 4 weeks with not much success and I started having some steroid effects such as being really negative and depressed. A couple days after I stopped taking it the world seemed much brighter. To be fair my problems this time are different from what I would call a normal flare. I have pain in the right side by rib cage and by my belly button. CT shows that small bowel walls are very thick. Not sure what this is yet but entocort did not seem to help, on prednisone now... :(
I hope it works for you.
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