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IALupus
Regular Member


Date Joined May 2006
Total Posts : 78
   Posted 7/18/2008 9:12 PM (GMT -7)   
Hello,
I am usually in Lupus but I have a problem with my child.  
She is 10 years old and for over 2 weeks now she has been throwing up and constipated with some diareha.  Blood tests are negative for inflamation, and white blood count is normal.  No fever.
She is 4'10"  give or take a inch.  she was 67lbs and is now 60.5. 
I have a cousin with Crohn's.  I also have a neice with diabetes and celiac.  So the autoimmune diseases run in the family. 
What are the signs of Chron's should I be making them test her???  HELP  I am soo scared for my child.
 
Thanks
Nicki
 
SLE 9/99-Autoimmune Hepititis 2006- Asthma- Fibromyalgia   The list is tooo long for me to type!!  Just ask I will tell.
Methotrexate, Immuran, Singular, Protonix, Allegra-D, Combevent, Duo Neb, Lasix, Imeripex, Flexiril, Zoloft, Predisone, Zebata, and pain meds. There is more but not that important.


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 7/18/2008 10:35 PM (GMT -7)   
It sounds a little bit like a bowel obstruction...has she been checked for that?
I can't see how it would hurt to have her tested for any disease like Crohn's or UC though...I'm really sorry you two are going through this, and I wish her better I really do.
Let us know how it turns out, but for god's sake don't wait.
I tried that recently and nearly died(had I waited a few more hours I would have). I wouldn't even question testing honestly...I'd be working as quickly as possible to figure out what is wrong.
As for the signs of Crohn's...mine were bloody and constant diarrhea, no appetite, major weight loss, fatigue, anemia, and so on. Hers sound a little bit different though so...

IALupus
Regular Member


Date Joined May 2006
Total Posts : 78
   Posted 7/19/2008 8:28 AM (GMT -7)   
I will keep you posted. I am taking her in today again. I will keep taking her till they do what I want and I know what the heck is wrong.
Thanks and please keep the opinions coming so I can tell them what to check for. They did blood work and xray. said she has excess stool and that she should eat yougert. So she is but nothing was coming out, so I gave her xlax and a little came out with 3 treatments.
Cross your fingers that we figure it out!!
Thanks again
SLE 9/99-Autoimmune Hepititis 2006- Asthma- Fibromyalgia   The list is tooo long for me to type!!  Just ask I will tell.
Methotrexate, Immuran, Singular, Protonix, Allegra-D, Combevent, Duo Neb, Lasix, Imeripex, Flexiril, Zoloft, Predisone, Zebata, and pain meds. There is more but not that important.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/19/2008 9:24 AM (GMT -7)   

Does sound a little like an obstruction, but you didn't say if she was in pain.  Obstructions are extremely painful.  You will have labor type pain that comes in waves much like labor does.  You will feel the pain around the belly button area. 

I would ask for a referral to a Pediatric GI.  Explain that you have a strong family history of autoimmune diseases and would like a colonoscopy ran.  That would be the starting point.  At least with the prep she would get cleaned out really good.  I don't know if they have Miralax for children, you might want to try that to help clear her out some too.  But I think the first place to start is with a colonoscopy.  And normal bloodtests are not a sign that everything is okay.  I have been sicker than a dog and my blood tests come back normal.  Good luck and keep us posted.


Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 7/19/2008 10:55 AM (GMT -7)   
I agree with Nanners, get her to a Pediatric GI!! My blood tests always come back normal too and I've been in a CD flare since May.
Had a scope last month and I have inflammation but my blood tests were not showing anything wrong.
I'm sorry she's not feeling well and hope you get some answers soon!!!
Living with Crohn's Disease since Jan./2000 but had a few years prior
I'm a true Crohnie with IBS too
 
Meds I have tried:  Too many to list- LOL
Meds currently on:  Prednisone 20mg tapering  Back up to 30mg  :-(
                           Methotrexate injections once a week 25mg
                           Folic Acid 5mg once a week
                           Wellbutrin
No Surgeries
 


IALupus
Regular Member


Date Joined May 2006
Total Posts : 78
   Posted 7/19/2008 12:53 PM (GMT -7)   
Dr today put her on adult dose of miralax. See dr again Wed and will do CAT scan if not better by then. She only has pain when the food gets in the bowel or near there and then she throws up.
Told him about everything in family. Gave me the "blood tests are normal speech"
SLE 9/99-Autoimmune Hepititis 2006- Asthma- Fibromyalgia   The list is tooo long for me to type!!  Just ask I will tell.
Methotrexate, Immuran, Singular, Protonix, Allegra-D, Combevent, Duo Neb, Lasix, Imeripex, Flexiril, Zoloft, Predisone, Zebata, and pain meds. There is more but not that important.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 7/19/2008 4:15 PM (GMT -7)   
Hi Hope the Miralax works for her does she usually tend to be constipation. Great you got her checked a stoll softener might help if her Dr. agrees but something should come out soon. If she has severe pains get her to emerg. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


IALupus
Regular Member


Date Joined May 2006
Total Posts : 78
   Posted 7/24/2008 12:08 AM (GMT -7)   
Wanted to Update you all. My daughter is doing good. Went to the dr today and he thinks she got a VERY bad gastrointestinal virus. Dr told me to keep an eye on her and if she starts to get that way again to call him. And he will do more testing.
Thanks for all your support through this.
SLE 9/99-Autoimmune Hepititis 2006- Asthma- Fibromyalgia   The list is tooo long for me to type!!  Just ask I will tell.
Methotrexate, Immuran, Singular, Protonix, Allegra-D, Combevent, Duo Neb, Lasix, Imeripex, Flexiril, Zoloft, Predisone, Zebata, and pain meds. There is more but not that important.

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