Flares... (new question at end of post)

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indigosunrise
Regular Member


Date Joined Nov 2007
Total Posts : 497
   Posted 7/20/2008 8:19 PM (GMT -7)   
Please forgive me if I have asked something similar before...I am just trying to understand this disease.   sad   
I have heard that a flare can last anywhere from a few days to a few weeks to a few months.  Anyone ever experience short flares and/or longer flares?
 
Thanks for your input!  :-)

Post Edited (indigosunrise) : 7/21/2008 3:43:28 PM (GMT-6)


Aussiegirl2008
Regular Member


Date Joined Feb 2008
Total Posts : 80
   Posted 7/20/2008 8:25 PM (GMT -7)   
What is the definition of a 'flare'?
Anyone?? :)

gumby44
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Date Joined Nov 2007
Total Posts : 4095
   Posted 7/20/2008 9:13 PM (GMT -7)   
That's the problem. Everyone's definition of a flare seems to be different. For me it is a worsening of symptoms from what I consider "normal," but that is a pretty subjective definition at best!
49 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007. Also have IBS, and had Salmonella Dec. '07
currently taking Pentasa- 4 500mg pills per day, Metamucil and colace for constipation


lilturbo
Regular Member


Date Joined Feb 2008
Total Posts : 298
   Posted 7/20/2008 9:47 PM (GMT -7)   
For me, a flare is when I poo blood. Usually I'll have between 10-20 bloody bowel movements a day. Uncontrollable bowel movements at that! I've had countless accidents, etc etc. The shortest flare I've ever had was a little over a month, the longest flare lasted about six months, which landed me in the hospital on TPN. I also lose a lot of weight when flaring and can't eat a lot of foods that I normally can when not flaring. Basically I go on either al liquid (Peptamen( diet or low residual. Sometimes, that doesn't help, it just depends on the flare. But, like gumby said, everyone's def of a flare is different. Some folks don't have bloody poo when flaring, but for me, I always have bloody poo.

If you get a chance, check out my blog, I write about my struggle/life with Crohn's. I break my everyday life with Crohn's "Barney Style" as I started it to educate my family and friends about the disease. Good luck and please let us know if you have any other questions!!
turboemma.blogspot.com/


Jen77
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Date Joined Mar 2006
Total Posts : 2688
   Posted 7/20/2008 11:17 PM (GMT -7)   
I've had minor flares, that lasted a few weeks. Anything shorter then that for me I consider a bad day, or week. If it continues then I start paying attention to it as a flare. REAL flare up's for me, is having the big D more then 10 times a day. Possibly with blood. My blood tests coming back with high inflammation rates (which isn't true for everyone I know, but seems to be for me). My last flare also came with a huge lip swelling, and joint swelling.

But it's like everyone else said, a flare is going to be different for everyone. I'd in general describe it as a worsening of symptoms.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapered to 2.5 mg *eek*, Asacol, Questran, Toprol XL (for high blood pressure).


Nanners
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Date Joined Apr 2005
Total Posts : 14995
   Posted 7/21/2008 9:48 AM (GMT -7)   
There are bad days and then there are flares. I believe they are different. A bad day/days is usually when I have eaten something that didn't agree with me or I had too much stress. A flare is totally different. I get ALOT more D, have cramps and spasms alot more, and more joint pain and inflammation, and it lasts for a much longer time, i.e. a month or longer.

I guess after having the disease so long now I can easily tell the difference. I think many think those bad days are a flare, but I do not consider them flares. And I do not believe you need steroids or things like that for the bad days. Just a liquid diet and rest usually get me feeling better in a couple of days. But a flare will need some medical input. JMHO
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


mj8dokken
Regular Member


Date Joined Dec 2006
Total Posts : 149
   Posted 7/21/2008 11:51 AM (GMT -7)   
I am fairly new to Crohn's (dx 2 years ago). My first flare was about 8-10 weeks and I was in remission for about 1 1/2 years and had about a 6 month flare end of last year-beginning of this year.

Bad flare May '06 resulted in CD diagnosis-symptoms for 10 yrs prior.
Asacol: 2400 mg/day
6mp: 100mg/day
Prednisone: 10 mg/day
Entocort: 9mg/day


jenngrl81
Regular Member


Date Joined Oct 2007
Total Posts : 208
   Posted 7/21/2008 1:44 PM (GMT -7)   
I have been in a flare since I was diagnosed last September...I've had enough of this!

Pentasa- 1000mg/2x 1/08; Percocet
Ultram ER 200mg; Prilosec 40mg; Xanax-ANXIETY; Cymbalta 60mg
Entocort 9mg
Probiotic
Ferrous Sulfate 325mg/daily for anemia
Azathioprine 150mg
Currently on a Low-residue diet as of 11/26

I'm so tired, when will this get better?


indigosunrise
Regular Member


Date Joined Nov 2007
Total Posts : 497
   Posted 7/21/2008 2:43 PM (GMT -7)   
Thanks everyone!

I think I might be in a flare then. The past week or two I have been very fatigued, my arthritis has kicked in, mouth sores have come back, my eye inflammation has increased and my bowel symptoms have returned. I was feeling pretty good for maybe a month or so then this all started.

Do you think it probably is a flare?

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/21/2008 2:49 PM (GMT -7)   
I think you indeed may be flaring. When mine goes beyond a week I know that it is a flare. Plus all your symptoms kinda fit the bill. I would get ahold of your doc and start getting treatment asap. The sooner you catch it the easier it will be to get it back under control. Good luck!
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


indigosunrise
Regular Member


Date Joined Nov 2007
Total Posts : 497
   Posted 7/22/2008 1:19 PM (GMT -7)   
Thanks Nanners!

I feel much the same today. Ugh! I do have an appointment with my Internist tomorrow. Unfortunately I don't get to see my GI until next month on the 19th. My Internist told me that my pill cam test confirmed Crohn's and I wish they wouldn't make me wait that long! Oh well.

I am hoping my Internist can maybe put me on something in the meantime, just to help me out till I get in to see the GI.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/22/2008 1:26 PM (GMT -7)   
I would talk to your internist and ask him to get you started on a steroid such as Prednisone or Entocort in the meantime until you can see your GI. Or if all possible I would call your GI's office and tell him whats going on, maybe he can get you in sooner or prescribe something to help you until you can get in to see him. Hope you get feeling better soon.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 7/22/2008 1:35 PM (GMT -7)   
Yes that sounds like a flare to me too. I hope you feel better soon!!! My first flare 8 years ago went about a year.
I went into another one that started back the first of May so almost 3 months now.
Living with Crohn's Disease since Jan./2000 but had a few years prior
I'm a true Crohnie with IBS and Arthrities too
 
Meds I have tried:  Too many to list- LOL
Meds currently on:  Prednisone 20mg tapering
                           Methotrexate injections once a week 25mg
                           Folic Acid 5mg once a week
                           Wellbutrin
No Surgeries
 


indigosunrise
Regular Member


Date Joined Nov 2007
Total Posts : 497
   Posted 7/22/2008 1:49 PM (GMT -7)   

Thanks everyone!

I am still on prednisone, but down to 10 mg.  Can you flare while on it? 


lilturbo
Regular Member


Date Joined Feb 2008
Total Posts : 298
   Posted 7/22/2008 4:03 PM (GMT -7)   
Yes, you can flare while on prednisone. Prednisone has kicked me into remission every flare except one. Not even 60mg did the trick right away. It took about 3 weeks for 60mg to kick in and then when I was down to about 20mg (after tapering 5mg a week) I started flaring again. So yes, you can flare while on prednisone!

Hope you feel better soon!
turboemma.blogspot.com/


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 7/22/2008 4:04 PM (GMT -7)   
They're making you wait until next month? That's a little ridiculous really. You should call and get someone to see you sooner...going through a flare and without any medicine...I'm having a difficult enough time WITH prednisone. I really hope you can get something done soon. I'm so sorry they're telling you to wait. I can't ever really understand when people try to schedule Crohn's patients so much later given the nature of the disease..except that they don't know what it's like themselves. A complete thief as far as quality of life goes.

CrohnieYogi
Regular Member


Date Joined Oct 2006
Total Posts : 367
   Posted 7/22/2008 7:42 PM (GMT -7)   
Hey Indigo. If it feels like a flare, looks like a flare, smells (hee hee hee) like a flare, then it probably is one. and it sounds like you have my flare cyce--it starts off with mouth sores, goes to joint pain, then comes the fatigue, nausea, pain, loss of apetite, etc

Sorry.

Marie-Claire
Veteran Member


Date Joined Mar 2007
Total Posts : 900
   Posted 7/22/2008 11:14 PM (GMT -7)   
Mine usually start with extreme fatigue, and mouth sores as well... then the joint pain, then the abdominal pain...then the cramping and D.
Indigo, I hope you are feeling better soon.I really think you should try to see someone sooner that a month... Lord , you'll be in the hospital by then! Praying for you to see someone PDQ and that you are better really soon.
Mary
51 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.,RLS, arthritis
 
 


indigosunrise
Regular Member


Date Joined Nov 2007
Total Posts : 497
   Posted 7/23/2008 12:03 PM (GMT -7)   
Thanks everyone!

I saw my Internist today and she prescribed Entocort for me and she is increasing my Methotrexate dosage. I am hoping I start to feel better soon!

She also thinks that when I see the GI, they may switch me over to Pentasa and Azithropine. Whatever they do, I hope it helps!

Thank you so much for all your support, kind words and prayers. It means a lot to me!
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