Remicaide ????

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irish63
Regular Member


Date Joined Jan 2006
Total Posts : 242
   Posted 7/21/2008 10:49 AM (GMT -7)   
Hey all,
I have been out of contact for a while but I'm here again as always.  I have been on Remicaide for about a year and a half now.  On Friday I had my infusion as scheduled (every 6 weeks), I was premedicated with Solumedrol and Benedryl.  But, this time was different.  I felt really weird, like there were bugs crawling all over my feet and legs.  I didn't say anything basically because I though they would think I was nuts.  However, this weekend my whole body hurts, I ache like crazy and am so tierd.  I have never had this with remicaide.  Does anyone have any thought?  Has this happend to you before?? 
 
Thanks
Dx: 10/04 Crohn's, GERD, IBS,Osteporosis, Depression, Hypokelemia, "Crohn's" Arthritis, Migranes,
Meds: Asacol, Protonix, Lexapro, Celebrex,Potassium, Remecaide,Entocort, B12 injections wkly, Magnesium, Calcium, Phosphorus 
 


styxgurl
Regular Member


Date Joined Jan 2008
Total Posts : 67
   Posted 7/21/2008 11:00 AM (GMT -7)   
Yes this has happened to me, the pre-meds make my legs feel like ants crawling up and down my bones......it's called RLS.....restless legs. I don't get the pre-meds anymore. I make out fine without them. Hope this helps

 


Bane
Veteran Member


Date Joined May 2007
Total Posts : 589
   Posted 7/21/2008 4:24 PM (GMT -7)   
Never happened to me- but your doctors need to know about sensations like that asap. They won't think you're crazy- after all, you're saying it "feels like" ants are crawling on you, not that there actually are ants :D anyway, small stuff like this can often snowball into bigger, more dangerous stuff, so its important to make sure your doctors know everything thats going on.
20, Male, diagnosed over Christmas Break of my Junior year in High School. BEST CHRISTMAS EVAR LOL

(not really)


irish63
Regular Member


Date Joined Jan 2006
Total Posts : 242
   Posted 7/22/2008 1:11 PM (GMT -7)   
Thanks so much for the reply. I will let the doc knon, however since my doc retired and I got assigned a new one I detest him. He doesn't return phone calls, he wanted me to have blood work done last time I saw him and said he would call me to let me know the specifics (if I needed to fast etc.). Well, that was June 4 and I have called no less than 4 times and left messages and NOTHING, no phone call nothing. I called again today and his nurse said he was in clinics and would call me back. Yeah when H*** freezes over!
I am so FRUSTRATED!!!!!!!!!!
Dx: 10/04 Crohn's, GERD, IBS,Osteporosis, Depression, Hypokelemia, "Crohn's" Arthritis, Migranes,
Meds: Asacol, Protonix, Lexapro, Celebrex,Potassium, Remecaide,Entocort, B12 injections wkly, Magnesium, Calcium, Phosphorus 
 

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