bowel fused to bladder

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Miss UK
Regular Member


Date Joined Oct 2007
Total Posts : 128
   Posted 7/21/2008 3:55 PM (GMT -6)   
I asked for help ages ago refering to an awful discharge I was getting and the advice was to get tests (thank you so much for helping me) so I had an MRI scan.  Unfortunately this shows that because of the active crohns my bowel has fused on to my bladder.  I am going to have complicated surgery apparently.  I'm scared whitless about this especially as I live alone with a 2 year old son although lucky for me my ex will be coming to take over while I am in hospital for around 10 days.
 
A bit of a long shot as I've never heard of this but has anyone ever had this? or had similar surgery, they will need to cut my tummy by about 10 to 20cms!  What I'm really after is for someone to say it doesn't hurt a bit and I will be on my feet in no time and that my Crohns will die down etc.
 
Any advice I would be grateful for
xx

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14994
   Posted 7/21/2008 4:10 PM (GMT -6)   
Well first off I am not going to lie to you. I have had two resections and in fact cannot have c-scopes anymore since my large intestine is now adherred to my body cavity because of adhesions. I have a approx 6-7 in. scar down my stomach. It is a tough surgery but you will be given great pain meds. Remember to try to walk as soon as they allow you to. It will help you to heal a little quicker. I was in the hosital each time for about 10 days. You will have some explosive D for awhile, but for most it eventually settles down once your bowel adjust to the changes. I pray this surgery bring you years of remission. Please keep us posted on your surgery and recovery. I will keep you in my prayers.

Gail *Nanners*
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


Miss UK
Regular Member


Date Joined Oct 2007
Total Posts : 128
   Posted 7/21/2008 4:17 PM (GMT -6)   
Ooh thanks Nanners I have to admit I wasn't expecting a reply to this one :-) Thanks for the advice I will definately make the effort to walk as soon as they say to I need to be out as soon as I can as I can't bare the thought of leaving my son.  So just wondering as this isn't strictly a cure for Crohns could it help me get into remission?  It would give me something to cling to if it could.  Will it hurt to go the toilet after?

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/21/2008 5:07 PM (GMT -6)   
Ow, Miss UK and Nanners. That sounds horrible, and so painful.

*hugs*
Co-Moderator Crohn's Forum.


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 7/21/2008 6:03 PM (GMT -6)   
i had a fistula from my colon to my bladder. they told me i had to have the surgery otherwise i'd die of a bladder infection. the surgery went well - doc was even able to avoid giving me a temp ileostomy seeing how he removed about 8 inches of the sigmoid colon. i had a rough go with the recovery though. out of work for 2 months. 2 weeks in the hospital (came down with pneumonia and had to have my stomach pumped to jump start the digestive tract). couldnt do any physical activity for like 4 months. lost like 30 lbs too. but on the bright side i felt tons better afterwards. you're just gonna hafta suck it up and do it. you owe it not just to yourself, but to your family. sorry for the tough love. but remember, no matter how bad things are, they could be worse, and they can always get better. a good, optimistic attitude will help you tons through this.

oh, get the surgery laproscopic if you can.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 7/21/2008 6:12 PM (GMT -6)   
Hi Hope your surgery goes good I felt a lot better after my resection and now have no pain. Usually they have a person up and going soon after surgery so don't worry about being up and at em .Glad your getting some help with your son it sure helps not to have to worry about children at tese times. How soon before you will be going in? Keep in touch and we"ll all be here for you. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 7/21/2008 8:17 PM (GMT -6)   
Dang it...that situation had not occurred to me! Wow, Crohns never ceases to amaze me at how it ravages the body! I've not had this type of adhesion (only a shoulder adhesion). It took me about 4 months for my digestive tract to re-regulate itself entirely (or at least as close as it gets for me). I don't regret my resection one bit. It has helped a whole lot. Yes, your first few days will be painful and you MUST walk out the gas ASAP! Once you get through that part you'll be on your way to recovery! The heavy antibiotics will probably give you some D as well. It's not a cakewalk but you will feel soooo much better! Good luck to you! Keep us posted afterwards as soon as you're up to it!
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Glucosamine, Multi-Vitamin, Ultracet Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, peri-menopausal.


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3926
   Posted 7/21/2008 8:26 PM (GMT -6)   
That one hadn't occurred to me either! Is there no end to the malevolance of our DD??!

Matthew

yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1651
   Posted 7/21/2008 8:34 PM (GMT -6)   
I have had 3 sugeries for adhesions; one 25 years ago and 2 in '06. they have gotten much easier as drugs and such have improved. I had some of my colon removed from the inner wall and it was not too bad. out patient, two weeks of laying low and then up and around just fine. however, that was just cutting through adhesions and my colon was fine afterwards--I hope yours is relatively simple. take care, yp
49 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


Miss UK
Regular Member


Date Joined Oct 2007
Total Posts : 128
   Posted 7/22/2008 4:48 PM (GMT -6)   
Ohw you lot are just fantastic :-)   Thanks for all your replies!
 
I don't know when my surgery will be I'm guessing September I have to be referred to another hospital with a top surgeon so I guess that alone is promising.  I've never had to have surgery yet for my Crohns even though I've suffered for about 16 years though 8 of them were in complete remission.
 
The worst thing is it's quite bearable at the minute so I'm afraid of being put in pain but on the other hand maybe I will be stronger because of it.
 
broomhilda I don't know wether to laugh or what about walking out the gas! I'm imagining walking by people's beds making awful noises and having everyone glaring at me, I won't even be able to blame it on my toddler haha.
 
CrazyHarry wow did you have a rough trot! glad you feel better though.  Yes I've read it's all in the attitude so when the time comes I'm going to do my best to be brave and try and laugh through it.
 
I will let you know how it all went.

CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 7/22/2008 8:37 PM (GMT -6)   
if you are going to laugh through it, make sure you have a pillow handy. you need to squeeze it as hard as you can into your abdomen/chest if you want to laugh after surgery (and sneeze or cough too). trust me on this. remember to ask the nurse for an extra pillow for this reason as some forget to tell you. it sucks finding out the hard way on this one. dont laugh for like a month after surgery to avoid the pain, but do have a smile on your face.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07

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