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Jen77
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Date Joined Mar 2006
Total Posts : 2691
   Posted 7/21/2008 8:49 PM (GMT -7)   
He seemed a little annoyed with the lack of a plan that I got from my GI to taper off the pred, and was surprised I was still on it (guess he thought I was just gonna do a short dose). But then again I was annoyed with that GI as well.
 
So he wrote out a big old plan for me, as he agrees I'm having withdrawl symptoms. I hope it's slow enough. He said we could go to 1 mg a week if we have to, but he thinks this will work.
 
I'm at 10 today, so tomorrow he wants me to go down to 8 mg for the next 5 days. Then 7 mg for 2 days, then 6 mg for 5 days. Then 5 mg for 2 day. Then 4 mg for 3 days, 3 mg for 3 days, 2 mg for 3 days, 1 mg for 3 days, then off. Kinda crazy huh? Never heard of this taper schedule. But better then what my GI told me, which was pretty much nothing. LOL I just hope I can taper like this with no problems! Wish me luck!
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapered to 2.5 mg *eek*, Asacol, Questran, Toprol XL (for high blood pressure).


lilturbo
Regular Member


Date Joined Feb 2008
Total Posts : 298
   Posted 7/21/2008 9:43 PM (GMT -7)   
That is a pretty weird taper schedule! I've always tapered 5mg a week. Let us know how it works for you!! GOOD LUCK!!
turboemma.blogspot.com/


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 7/21/2008 10:01 PM (GMT -7)   
It is I know! LOL I had been doing 5 mg a week. I started to get withdrawl symptoms at 10 mg, and got worse at 5 mg, and even sicker at 2.5 mg last week. Felt really bad, with terrible headaches. So I guess he figures this will help me get off these last 10 mg without getting sick. I hope he's right, my fingers are crossed anyway! LOL
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapering down from 10 mg again, Asacol, Questran, Toprol XL (for high blood pressure).


HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 7/22/2008 5:55 AM (GMT -7)   
Hey Jen! Actually I only have had a couple of rounds of pred in my 18 years, but your taper sounds similar to what my fav doc did oh so many years ago. Maybe it's not so unique :-)
I hope it works for you!
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 7/22/2008 11:50 AM (GMT -7)   
Oh good! I'm glad someone else did a taper like that! Makes me feel better! LOL I sure hope it works too, I can't wait to be off this stuff now.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapering down from 10 mg again, Asacol, Questran, Toprol XL (for high blood pressure).


LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 7/22/2008 12:26 PM (GMT -7)   
I think when I was on this stuff 8 years ago my GI back then did something similar too. I will probably be right there with ya in a few more weeks!! LOL
I'm at 20mg so far this week still doing ok. Next week I drop to 15mg and the following to 10mg. I'm scared!!! hehehehe
Hope this works for you!!!
Living with Crohn's Disease since Jan./2000 but had a few years prior
I'm a true Crohnie with IBS and Arthrities too
 
Meds I have tried:  Too many to list- LOL
Meds currently on:  Prednisone 20mg tapering
                           Methotrexate injections once a week 25mg
                           Folic Acid 5mg once a week
                           Wellbutrin
No Surgeries
 


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 7/22/2008 12:52 PM (GMT -7)   
We should start a Tapering support group! LOL It is scary though isn't it?

At this point I just don't know what is normal to be feeling, and what is considered withdrawl symptoms, that I need to call my doctor for. I'm sure it's okay to feel kinda crappy going off of it, but at what point is it a danger sign? I just hope this is slow enough. I guess I was kinda hoping for 1 mg a week, even though I know that would take forever to go completely off of it. He gave me just enough pills to do it his way, so I guess I don't have a choice there. LOL
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapering down from 10 mg again, Asacol, Questran, Toprol XL (for high blood pressure).


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 7/22/2008 1:59 PM (GMT -7)   
Sounds a little crazy but slow enough that it may work. My doc had me do 5 mgs a week until I got to 10 then really slow after that but nothing quite so irregular.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 7/22/2008 6:18 PM (GMT -7)   
Hi Jen Glad you worked out a plan sounds like a good one. I looked up prednisone withdrawal symnptoms when I tapered and that helped me. Wishing you good tapering!! lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail

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