I need to update my signature thingy... didn't even think about
it until your response.
Remicade WAS my miracle drug, but I'm pretty sure that our honeymoon together is over. I was back up to Remi every 4 weeks for the months of January, February, March, and April. None of the 4 infusions worked the way they used to. In fact, I couldn't even tell that I had gotten the infusion. I still wouldn't consider those 4 months a "flare", but my bowel movements definitely were not as manageable as they are when the Remi is working its miracle. I blamed a lot of my random symptoms on stress - I got married in APril, and pregnant in May. Yikes, right?
So, around week 8 of the pregnancy, I was actually constipated. I think I've only been constipated like 4 times in my ENTIRE LIFE. It was fabulous. Same amount of cramping, NO running to the bathroom. I knew that was too good to last! about
week 9 the D kicked in and has not eased up since. It's actually gotten worse.
I'm not opposed to meds during pregnancy, as long as there is sufficient proof that it's safe. I actually found a website from a fertility clinic that promotes LDN as a means of increasing the chances of conception... so I guess I got prematurely excited, because I can't find much else relating to the topic. One fertility clinic is not enough to sell me on it's safety during pregnancy, for sure.
I have managed to gain 2 pounds so far, so that's something! I am eating and drinking as normally as possible - I'm just home bound because of the D. Worst case scenario, I can handle this for another 7 months if I have to - as long as I can continue to gain weight and my blood work keeps coming back ok. I just don't know how SANE i will be when the baby DOES get here! I'm pretty sure the constant D has given me internal hemmies, but that's really the only tangible side effect that I can articulate. The rest is just the urgency, uncontrollability, and intense spasming that comes with the D. And, of course, the feeling that I'm going CRAZY because I can't leave the house for fear of not being able to find a bathroom in time!
I definitely agree with the "what's good for mom is good for baby" attitude. I just haven't had luck with most typical crohnie meds (pentasa, imuran, steroids, purinethol, etc). My body just doesn't react to them... the Remi is all that has ever helped. Maybe it's time to start researching Humira? So many different directions to research, my head is spinning!
Thanks for your reply, Stef. You're always a good source of info.
26f, dx'd CD July '05 after 6 fistula/abscess surgeries
Remicade only, every 16 weeks.
Digestive enzymes, and probiotics.
Doing pretty darn good, all things considered.
"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."