Thanks for the info and links. I am recovering from a flare, but the bloating and being underweight I have even in 'remission'. Seems even when my gut has felt great and I have no symptoms I never gain weight. I had a SBFT last month which, according to my GI was completely normal except for some possible nodluation at the ileum. I also had a gastroscopy last month which was also completely normal.
My ferratin was 3 and my hemoglobin was 94, but I had a blood transfusion and an iron infusion and my ferratin is now 116 with a hemoglobin of 114.
Apparently when most people take 6grams of betaine they should feel some warmth or discomfort in their stomach, yet when I take it I feel nothing.
Dx'ed in 1999. No surgeries.
Current meds: 75 mg 6MP. 10mg prednisone (trying to taper). Udo's Choice Probiotics (30 billion).