Diagnosed w/ Crohn’s Disease March 2007 Started Humira June 2008 (have been on other cd meds)
Diagnosed w/ Fibromyalgia May 2007 also on Soma
Diagnosed w/ General Anxiety Disorder in 2005- Effexor and now new med Clonazepam starting 7/18/08
Welcome. I am so glad you found this site. It is a great place to get information. I wish it had been around when I was diagnosed. I'm sorry that you have Crohn's.
I know it is so hard to deal with especially with a family. Your GI is correct in sending you to a specialist. That doctor will hopefully be able to get things better under control for you. The weird thing with Crohn's is that we are all different with regard to symptoms and we all respond differently to the various medications. There is no one thing that works for all of us. You will likely try many things before you find what works for you.
I know how hard it is with your children, but they will be alright. My children were 1 and 4 when I was diagnosed. It was hard at times, very hard. We often had to change or alter plans because of my Crohn's. I hated not being able to do all the things that I wanted to do. My children would always say, "Are you going to the bathroom again?" when I was in there for the 20th time. I had to take naps during the day when they wanted to play. I felt guilty for quite a while about my illness. But at some point I came to realize that I had to stop feeling so guilty because I could not help being sick. My children are now 17 and 21 and they are understanding, compassionate and caring people. They get it.
Right now this is so new to you and your family. Give it some time, don't feel guilty, rest when you need to and take care of yourself.
Thanks - I needed to hear that. When I feel bad, I feel like there is no time to rest. I have to keep telling myself this is not a cold that I can just blow off. I know I need to rest but I feel so guilty. My kids are 11, 7, 4 and 2. They require so much of me when I am feeling good. When I am feeling bad I just can't keep up. It makes me feel like such a bad mom. I just want to feel better and be able to do fun things with them and not want to crawl in bed and go to sleep all the time.