Well, I Am Now A Basket Case!!!

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CrohnieToo
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Date Joined May 2003
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   Posted 7/25/2008 11:15 AM (GMT -7)   
Symptoms haven't started until late afternoon or early evening but - its been 4 straight days in a row. So ... I wrote a letter to the surgeon at Mayo telling him I was ready to schedule the surgeries and asking that he coordinate a date that would allow me to take part in the 8 day in-house smoking cessation program at Mayo, preferably AFTER the surgeries but if necessary JUST prior to the surgeries. The next openings of the smoking cessation program are 24 to 31 Oct or 05-12 Dec.
 
I know - I suppose a long way off. I haven't mailed the letter yet, just written it and addressed the envelope, haven't even printed out the letter and put it in the envelope - but already I'm a basket case. Elevated heart rate and respiration, that uneasy feeling of impending "danger" ..... what a wusp!!
 
D*mn! If ONLY these surgeries could be done w/an epidural and NO SEDATION OR ANESTHESIA! It would be a piece of cake if they could. *sigh*


Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/25/2008 1:00 PM (GMT -7)   
I think you are experiencing some anticipatory anxiety. One I am infamous for always doing too. Girl I would have more anxiety having a surgery WITHOUT the anesthesia, I give you kudos for even doing the C-scopes without any.

Just remember the wonderful remission you experienced last time. Maybe your ready to enjoy another 20 year remission. Now mail the letter and get yourself on the road to feeling better. (((BIG HUGS)))
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


gachrons
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Date Joined Mar 2007
Total Posts : 4527
   Posted 7/25/2008 1:30 PM (GMT -7)   
Hi If you need the surgery don't put yourself threw more pain and the chance of getting sicker. I was very ill by the time I had mine and although I did good you know it would have been better to have the surgery ealier. I had a epidermal put in for pain control, but I was out and glad for it, are you worrying about the smoking?
We all have that feeling and a person gets past it once we make up our mind to get things done. Really hope it helps you and like Nanners said could be another long remission for you .We will be here for you. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


Julie1014
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Date Joined Oct 2005
Total Posts : 1245
   Posted 7/25/2008 2:11 PM (GMT -7)   
Sending big hugs and prayers your way. Is it your fear of being put to sleep? If so, I experience the same phobia......
Diagnosed with Ulcerative Colitis (Pancolitis) 10/25/05
New Diagnosis of Crohn's March 2006
Asacol 3 pills three times a day
Remicade 10mg/kg every 4 weeks
Prednisone 12mg a day
Imuran 75mg
Miralax as needed, Cortisone enemas as needed
Prevacid 30mg
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


CrohnieToo
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Date Joined May 2003
Total Posts : 9448
   Posted 7/25/2008 3:27 PM (GMT -7)   
Thanks everyone. Heck, I'm not worried about not waking up from anesthesia. There are a LOT WORSE ways to leave this world than never coming out of the anesthetic!!!

My problem is NOT having ANY say in what they DO whilst I am under anesthesia!!! I'm glad you understand, Julie. There aren't too many like "us". I guess I have some real trust and control issues.

Ahh, Gachrons. I didn't learn a darn thing from my first resection. I put it off until I ended up admitted from ER w/what they "said" was a perforation as well as obstruction. Ha! Got stabilized on IVs and an NG tube for 6 weeks to clean me out, refusing to let them operate here, then hopped a plane and flew to Mayo, had the resection two days later and it was an easier recovery than the tubal ligation done locally despite open abdomen vs the "smiley" incision!!

I've already talked this over w/my family doctor and gastro. I promised I wouldn't wait as long as I did last time - but - if the "time bomb" hits - they are to just admit me thru ER, put me on IVs and the NG tube to get me stabilized and clean me out and then I'll take off like a ruptured duck for Mayo for the surgery. My family doctor even volunteered that they could med flight me to Mayo. Yeah, sure. Like my insurance should have to pay for my bullheadedness. Horsepuckies. Its only a 12 hour drive and there are commercial flights and the commercial flights sure oughtta be cheaper than a med flight! No way "I" am paying for a med flight!
 
Oh, yeah, Nanners! I'm anticipating already. And I sure as heck and feeling the anxiety!! Hearing how well Dee (Cleo) is doing tho helped settle me down a lot. Once I get that letter in the mail, WHEN I get that letter in the mail I'll start to really settle down and then I'll just conveniently forget about the whole thing - until I get the appointments/schedules in the mail from Mayo. Then I will REALLY be a basket case!!! And I'll get snarky and nasty and hate the whole world and everyone in it and .... I'm not nice when I'm scared and backed into a corner! Especially when I'm the one who backed myself into that corner.


Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

Post Edited (CrohnieToo) : 7/25/2008 4:33:07 PM (GMT-6)


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 7/25/2008 3:54 PM (GMT -7)   
Hi I had open incision for a bcess it's no fun but the resection was a nice neat stapled operation. Think of yourself getting out of a corner and into the middle of things . lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 7/25/2008 9:13 PM (GMT -7)   
Could you get something to take for your anxiety in the mean time? Have you talked to your doctors about your fears and let them attempt to make you feel better? While your fear is totally rational, have you ever talked with a therapist about it to get some coping mechanisms? Just think about all the surgeries each day that go flawlessly! (I do apologies though because I hate when people dismiss my fear of flying by saying just think about all the flights that go normally each day. But I still fly and just laugh at my panic nutty self later.)
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 7/26/2008 2:30 AM (GMT -7)   
I just wanted to let you know that we are here for you. Post all of your fears/vents/frustrations. I find that talking with people who understand helps me immensely. Just so you know, I have the "control" issue as well. I don't want to hijack your thread, but I am so afraid of any type of anethesia, I get my colonoscopies wide awake. How barbaric....

Fitzky123 gave some excellent advice. I know that I am inevidably facing surgery down the road. (Probably elective for a stricture.) My plan is to start some type of psychotherapy proir to address these fears. Also, like Fitzky recommended, you might talk to your doctor about a mild anti-anxiety med to use as needed.

Blessings, Julie
Diagnosed with Ulcerative Colitis (Pancolitis) 10/25/05
New Diagnosis of Crohn's March 2006
Asacol 3 pills three times a day
Remicade 10mg/kg every 4 weeks
Prednisone 12mg a day
Imuran 75mg
Miralax as needed, Cortisone enemas as needed
Prevacid 30mg
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 7/26/2008 9:39 AM (GMT -7)   
Thanks, you two. Giggle. Julie, I do my scopes w/o sedation too. Ah, such trusting souls. NOT. Besides, I wanna SEE for myself! Its rather interesting, isn't it? Especially when "we" find something like a polyp or a diverticulum, etc.

The letters are sitting on my 'puter yet. I feel a whole lot better today and will just let them sit there awhile longer. Until I wanna get in a twit again. "weak smile". I've been reading about others problems which makes me feel better too 'cause they are so much worse off than I. Not that I enjoy seeing anyone suffer - just that it puts my situation in perspective.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 7/26/2008 12:56 PM (GMT -7)   

ChronieToo, I receive a magazine called Positive Thinking. Just this month, there was an article about fear of surgery. I posted a link for you, but don't know how to activate it, lol!

There is nothing "earth-shattering" about the article, but it is interesting.

Blessings, Julie:)

[*There, I activated the link for us - Thanks, C2]

Post Edited By Moderator (CrohnieToo) : 7/26/2008 7:21:07 PM (GMT-6)


auntkay
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Date Joined Apr 2004
Total Posts : 1199
   Posted 7/26/2008 2:02 PM (GMT -7)   
Just thought i'd send up a few prayers for you and some (((((hugs)))). Thanks for the hugs!!! I"m a mess and soooo tired been working 6 days for a couple of week here.


Kay

Bane
Veteran Member


Date Joined May 2007
Total Posts : 589
   Posted 7/26/2008 5:56 PM (GMT -7)   
Assuming you're referring to the Rochester Mayo complex, I recommend stopping at Panekoeken (sp?) after the surgery. They serve some awesome breakfast type stuff, so it's become a sort of family tradition that after I get a colonoscopy done, we go to Panekoeken. All that darn fasting... anyway, the fresh fruit strawberry panekoeken is my favorite. Never bothers my guts either.

Anyway, as far as the anesthesia goes, I've woken up from it several times during a scope, and only once do I remember feeling pain, but afterwards it seems like it was all a dream. Besides, Mayo is top notch, and that is comforting if you ask me. Should something go wrong, you've got the world's best and brightest there to save your ass.

Also, you should look into Amtrak. Theres a station in Winona, which is only about an hour from Rochester. You could ride there, and then rent a car. Might be cheaper, and probably more comfortable. The trains have bathrooms, too. If you do that, though, be careful if you take Highway 14 to Roch. It's a busy highway, and has a lot of turns and stuff that can be awkward if you've never driven on them before. 14 will take you right into the heart of Roch, just a few blocks from Mayo. I-90 is right there too I think, not sure if it connects to Winona directly, but it will drop you off at the south end of Rochester, which is quite a ways from the Mayo complex. It's an Interstate, so pretty safe. I don't like it though, because in MN it does this bouncy thing thats really annoying, especially if you're trying to hold something in until the next rest stop. That being said, there are no rest stops along 14, just houses and businesses and small towns like mine.

Anyway, I'll stop trying to show off. If you need more directions/tips for the area, lemme know~
20, Male, diagnosed over Christmas Break of my Junior year in High School. BEST CHRISTMAS EVAR LOL

(not really)


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 7/26/2008 6:35 PM (GMT -7)   
Ah, Bane. Earlier this year I went to Mayo w/my neigbhor and we stayed at Day's Inn, same building that Pankoeken (sp?) is in. We ate there quite a bit since it was so handy.

"I" miss the ole Colonial Inn Cafe kitty corner from the main Mayo building!!!! GOOD food, REASONABLE prices, and the waitresses all knew what you could substitute for what diet or special needs you had. I really hate what the chains and "outsiders" have done to Rochester. *sigh* I much preferred the family owned businesses but they are being pushed further and further from the Clinic and the hospitals.

I've talked to several who have taken Amtrak to Winona. Most didn't think that drive from Winona to Rochester made Amtrak worthwhile. I thought I might rather like trying Amtrak since I haven't ridden a train since I was a kid. Nice thing about Rochester, tho, once you get there you don't need a car, a car becomes a liability, best to park it until you are ready to leave town!! Except the shuttles and busses don't go as far as the fairgrounds and three times I've been there when there was a dog show, a horse show and the Arabian Horse Nationals at the fairgrounds. Had to drive our car there and fight for parking. *sigh*

Shucks, you're not showing off. You can be a big help to those of us fortunate enough to go to Mayo!!! When I went in earlier years, most of the time it was with a family member and I had time to explore the town and Clinic. Lately tho, its been for me or my hubby and the town's been changing so much I can get turned around sometimes.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


Bane
Veteran Member


Date Joined May 2007
Total Posts : 589
   Posted 7/26/2008 7:34 PM (GMT -7)   
I don't actually know the area as well as I'd like (I don't get out as much as I used to XD), but my friends do, so if I can't find something they probably can. I'd offer to show you around and stuff while you're here, but like I said, I don't know as much as I'd like, and I can't guarantee I'd feel up to it when the time came. That being said, I'm almost always on AIM/MSN/Xfire/mIRC, so if you'd like, I can give you my SNs and you can pick my brain for stuff whenever you'd like. Like I said, if I don't know where it is, my friends probably do.

Though, I agree, the smaller mom-and-pop type places have been getting pushed out and its sad :/ unfortunately, aside from the ones in St. Charles (my town), I can't really name many. Most of the places I've been to are pizza places and the like, so not always a good idea for a Crohnie lol. I've actually never been to the Panekoeken right there downtown, cos theres one over by the The Crossroads Mall, where parking is better.

Parking is terrible, especially downtown. Wal-mart has a shuttle that goes to Mayo, and they don't charge for parking, so you could park there and take a shuttle over to Mayo. I don't know if just anyone can ride the shuttle though, so you might have to buy something at Wal-mart or something. Regardless, it's probably cheaper than leaving your car in the Ramps all day!

Unfortunately, I can't tell you what shuttles/buses go where, because I've never ridden them. I'm not sure exactly where the fairgrounds are, but if they're the ones behind Denny's, I'd be surprised if the buses didn't make a stop in that area.
20, Male, diagnosed over Christmas Break of my Junior year in High School. BEST CHRISTMAS EVAR LOL

(not really)


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 7/26/2008 7:55 PM (GMT -7)   
Thanks again, Bane. When I was at Mayo in April we stayed at the Koehler Executive Inn, a little more expensive but nicer than the Days Inn (which I've been told is in the oldest building in downtown Rochester). I checked into the busses 'cause we wanted to go the fairgrounds. Uh uh. They don't go there. Sheesh! Seemed odd, but .... There's another hotel, now I've forgotten the name, across the street from the Koehler Executive Inn, one block further from the Clinic, that was advertised $10 a night cheaper than the KEI and I meant to check them out but didn't.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 7/27/2008 9:42 AM (GMT -7)   
C2 - just curious, does your insurance cover you going to Mayo instead of a local doctor? Do they help with your travel costs at all?
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 7/27/2008 3:44 PM (GMT -7)   
No help w/travel and lodging expenses, altho lodgings is pretty reasonable in Rochester, more expensive closer to the clinic, less expensive further away but GREAT shuttle and public transportation centered to the Clinic's hours and to appointments.

Until recently we had traditional BC/BS thru UAW-GM Hourly, now that is our secondary and Medicare is our primary. It used to be that our medical care at Mayo didn't cost us a cent but Medicare only covers 80% of most expenses and our secondary coverage whilst still darn good has been reduced somewhat.

Our previous experience has been that Mayo is actually cheaper for many of their procedures, etc. than locally. But the only time we've had close hospitalizations for comparison was back in 1976.

Hubby spent exactly two weeks in the hospital here for his back. He had a myelogram here that he didn't have at Mayo. He was in tractions twice a day here but never put in traction at Mayo. He was sent to Physical Therapy twice a day during the week here, but none on the weekend. He had two doctors in attendance here.

He spent exactly two weeks in the hospital at Mayo for his back the same year. Mayo used his local myelogram to determine his problem. He was sent to Physical Therapy three times a day at Mayo during the week and twice a day on weekends. He had a primary care doctor, a neurologist, a neuro surgeon, a dermotologist for the staph infection he developed at our local hospital and several neuro fellows at Mayo.

He came home from Mayo w/o surgery and was back golfing w/in 3 months. The Mayo bill which INCLUDED ALL THE DOCTORS was $1400 cheaper than the local hospital bill that did NOT include the two doctors.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


Sniper
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Date Joined Feb 2004
Total Posts : 6518
   Posted 7/28/2008 9:31 PM (GMT -7)   
Just wanted to let you know I'm thinking of you. Hope this all works out without having to be cut on . If not , at least you have Mayo. You can rest assured of getting the best care there. When I had my bypass there was no time to shop for a good place to have it so I ended up with it where I had the test that found the blockage. Only concern I had was I did not even know the surgeon. I got to meet him just as I was being put to sleep. He did a good job though and didn't leave any tools inside that I know of. I believe he at least wiped them off on his pant leg before cutting too. Point is, you have a good place to go and good doctors. Trust that they know what they are doing. Also let us know whats going on,,,you know I worry.....
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 7/29/2008 6:54 AM (GMT -7)   
Ahhh, bless you, Sniper. As if you don't have enough worries of your own!

Well, I actually printed out my letter to the Mayo surgeon about getting me scheduled. And I even the next day finally put it in the addressed envelope. Even took it into town w/me yesterday - but had forgotten to put a return address on it and a stamp. So .... my excuse for the day.

Their smoking cessation program did call me. They even switched me over to the program doctor for a telelphone interview. I'm tentatively scheduled for the September 8 day in-house smoking cessation session depending on the surgery scheduling.

Of course, the surgeon can't know about arranging the scheduling until he receives my letter ...... hey, I did put the stamp and return address label on the envelope and it IS sitting in the Outgoing Mail slot in my kitchen! One of these days someone will get it out to the mailbox or up to the Post Office .... one of these days.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 7/29/2008 1:54 PM (GMT -7)   

I hope all goes well for you!!!

 

I think you are going to do just fine. If the anxiety is getting too much try some relaxation techniques or let the surgeon know maybe he/she can give you some ideas not to worry so much. Seems like a relaxed body could heal better.

Also, I am one of those weirdo's that like the sedation.... for the scopes I don't care what they do to me while I am under as long as I will never know.

Good luck and heal quick!!!!!  We need you around here!

Karen


 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 Started Humira June 2008 (have been on other cd meds)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Diagnosed w/ General Anxiety Disorder in 2005- Effexor and now new med Clonazepam starting 7/18/08

 

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