Frustrated with Food - need diet help!

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LisaLee37
Regular Member


Date Joined Apr 2005
Total Posts : 384
   Posted 7/25/2008 2:38 PM (GMT -7)   
I have had Crohn's for almost 9 years. I have been on 6-MP, Remicade and now on Humira. I have tried the SC diet, Makers Diet, and many others. Unfortuanately, between all of the drugs and trying to eat healthy, I have never been able to get into remission. I am so sick of being sick! Sometimes I can eat a salad no problem, other times I eat baby food and I am in the bathroom all night! Just doesn't make sense.
 
I live in Southern California (South Orange County). If anyone knows of a good nutrionist/dietician, I would appreciate you passing on their name.
 
Thank you!!

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 7/25/2008 2:45 PM (GMT -7)   
Consider a naturopath. A dietician may just talk about the stupid food guide.
Dx'ed in 1999. No surgeries.

Current meds: 75 mg 6MP. 10mg prednisone (trying to taper). Udo's Choice Probiotics (30 billion).


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 7/25/2008 2:46 PM (GMT -7)   
Hi Lisa I don't live where you are but I have found low roughage works for me and I don't eat salads. I follow easy to chew east to digest and I even went without strawberries this year because of the seeds .It didn't hurt so instead of strawberry shortcake I had banana shortcake with my company and teen. I find compromising on what I eat makes me feel better then getting pain. No nuts ,seeds, corn, popcorn, pickles, peppers, boiled eggs,turnip,salads,no hard raw fruit for me .lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 7/25/2008 3:04 PM (GMT -7)   
I, too, would recommend a naturopath. everyone kept telling me to go to one and for two years I said no--and mine has turned my illness completely around.
49 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


CrazyHarry
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Date Joined Mar 2006
Total Posts : 1034
   Posted 7/25/2008 8:00 PM (GMT -7)   
i've heard good things about this guy, although i havent seen him yet myself, but plan to when i need a naturopath (ie when/if i flare again and i cant control it via diet): dr. mark stengler. he's in la jolla (lucky me cos that is where i live). you can reach his office at 858.450.7120


another one i know of, whom i saw for a few visits, was jacqueline kidd (phd, cnc, hhp) of natural health associates. you can call her at 818.222.0422
i liked her, but the problem was for me living in san diego and her being a few hours away in calabasas made it tough.

lisalee37 - i grew up in laguna niguel and visit often as i have family all over south oc, so if you ever want to meet up and know more about what i do let me know. i find talking is easier than typing for hours.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


sjs0018
Regular Member


Date Joined Jun 2008
Total Posts : 35
   Posted 7/26/2008 5:22 AM (GMT -7)   
I went to a naturopath and really glad I did. Right now I'm gluten-free, it has only been a week but I feel better. She has also help me emotionally, she listens to me more then the other DRs.

LisaLee37
Regular Member


Date Joined Apr 2005
Total Posts : 384
   Posted 7/26/2008 8:40 AM (GMT -7)   
Thanks everyone for all of your responses!

I did try the Whitaker Wellness Center in Newport Beach a few years ago, but I became pregnant and very sick and stopped the treatment plan. Once I lost the baby, my flare-up was so bad that they couldn't even help me anymore.

Crazy Harry, I will give your recommendations a call on Monday. Thank you! Yes, I would love to get together. I live in Aliso Viejo and also grew up here. Please feel free to email me.

Thanks again! :)

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/26/2008 8:48 AM (GMT -7)   
I just wanted to say that I too use the low residue diet (same as gachrons). And that has helped me alot, I have stayed on for about 3 years now. I wish you luck with the naturapath.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


lightningbug
Regular Member


Date Joined Jun 2008
Total Posts : 28
   Posted 7/26/2008 11:46 AM (GMT -7)   
Hi Lisa :)

I went gluten-free a few months ago (after years of not being able to determine what was upsetting my system) and I can't believe how much better I feel! I could never patch together the common denomenator in foods to figure out why something would bother me one day, but not another. It turns out that gluten is used in modified starches and several preservatives, which accounts for seemingly inaquouis foods irritating my system. I don't have an allergy to gluten, but after speaking with a couple of holistic nurses and doing much reading, I found that most people have an intollerance to gluten so that it irritates their system even though it doesn't show up as an allergy on tests.

I'm about 90% gluten-free and can eat wheat products from time to time, but if I eat more than one gluten-laden product every couple of days, the pain sets right back in!

I would highly recommend giving up gluten for a few weeks and see if you notice a difference. I did!

Do your best, then to hell with it.


LisaLee37
Regular Member


Date Joined Apr 2005
Total Posts : 384
   Posted 7/26/2008 6:41 PM (GMT -7)   
Hi Lightningbug...

Funny that you recommended going gluten-free. I just went to my local health food store yesterday and picked up some gluten-free products! I would love to find out more about your diet and what you eat on a daily basis. Would it be possible to email you? Thank you!

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 7/26/2008 8:05 PM (GMT -7)   
Going gluten free is very easy. The only change I had to make was switching my bread to gluten free bread and not breading fish before I fry it. You can get rice flour for baking. Much easier than, say, the SCD diet.

Labelling for gluten has been much improved over the years, my local supermarket even has a pamphlet on which deli meats are gluten free.
Dx'ed in 1999. No surgeries.

Current meds: 75 mg 6MP. 10mg prednisone (trying to taper). Udo's Choice Probiotics (30 billion).

Post Edited (Rider Fan) : 7/26/2008 9:14:06 PM (GMT-6)


LisaLee37
Regular Member


Date Joined Apr 2005
Total Posts : 384
   Posted 7/26/2008 9:57 PM (GMT -7)   
Thank you Rider Fan!

CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 7/27/2008 6:57 AM (GMT -7)   
quinoa is a great substitute for rice. it is gluten free and low glycemic.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 7/27/2008 7:30 AM (GMT -7)   
feel free to email me, as I have been gluten-free for 6 months and my health has completely returned. go back a day or two and you will find a post I started that has lots of talk about gluten. this might get you there:
 


49 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.

Post Edited (yogaprof) : 7/27/2008 9:03:17 AM (GMT-6)


lightningbug
Regular Member


Date Joined Jun 2008
Total Posts : 28
   Posted 7/27/2008 8:01 AM (GMT -7)   
hey lisa!

i'd love to talk with you more about my diet! how do you exchange email addresses on this crazy board thing? :)
it can seem daunting to go gluten-free when you think about all the things you CAN'T eat, but when you realize all the things you CAN eat, you don't miss it very much. you realize how WELL you eat when you dump processed foods due to gluten.

Do your best, then to hell with it.


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 7/27/2008 8:04 AM (GMT -7)   
if folks have their email address public, you can click on their name (on the left) and get to their profile with their address listed.
49 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.

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