First Patient to Get Stem Cell Treatment for Crohn's in Remission

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redspot321
Regular Member


Date Joined Jan 2006
Total Posts : 303
   Posted 7/26/2008 5:30 PM (GMT -7)   
 
 
Sign me up!!! Does anyone know more info on this treatment??
29 YO Male
 
-CD diagnosed in 2005 illieum
-63cm bowel resection in Feb 08
-Steroid dependant following surgery
- LDN Naltrexone started May 08 been a happy man since!!


redspot321
Regular Member


Date Joined Jan 2006
Total Posts : 303
   Posted 7/26/2008 5:41 PM (GMT -7)   
http://www.jordanfifer.net/index.htm

Heres a kid that had the transplant done.
29 YO Male
 
-CD diagnosed in 2005 illieum
-63cm bowel resection in Feb 08
-Steroid dependant following surgery
- LDN Naltrexone started May 08 been a happy man since!!


belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 7/26/2008 7:08 PM (GMT -7)   
This is from 2001 and I can't find anything more recent about Joy Weiss on the net. Does anyone know if she stayed in remission long enough to eat another Big Mac?
Belleenstein:

30+ years living with Crohn's.


aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 7/26/2008 7:25 PM (GMT -7)   
"Over the years of treatment for the condition, Weiss suffered through as many as 10 daily attacks of painful diarrhea characterized by watery, bloody stools."


as many as 10? hell a healthy person could get that eating a big mac and other crap lol
SCD since 01, remission since 01, occasional Arby's breaks :)


78SilvAnniv
Regular Member


Date Joined Apr 2008
Total Posts : 289
   Posted 7/26/2008 9:06 PM (GMT -7)   
Only 10? Try 38 for a day... I hated my bathroom that day.
I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
 
UC is pretty darn crappy, but if you can't laugh at yourself, you'll cry. 
I'd much rather laugh.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 7/26/2008 9:13 PM (GMT -7)   

I found this...

http://gut.bmj.com/cgi/content/extract/56/9/1325?rss=1

 

:)


My bum is broken....there's a big crack down the middle of it!  LOL  :)


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 7/27/2008 10:22 AM (GMT -7)   


--40 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine
--rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--methylpred - finally off 6/15/08, tried Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08, started Xifanan 5/24/08 
--single mom to 10-yr-old girl

Post Edited (sr5599) : 7/27/2008 11:27:55 AM (GMT-6)


Reef08
Regular Member


Date Joined Dec 2005
Total Posts : 267
   Posted 7/27/2008 11:59 AM (GMT -7)   
belleenstein said...
This is from 2001 and I can't find anything more recent about Joy Weiss on the net. Does anyone know if she stayed in remission long enough to eat another Big Mac?


I read she died in a car crash a couple of years ago. Too bad she couldn't enjoy her new found health.

ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 7/29/2008 9:08 AM (GMT -7)   
The hospital where I did my Cimzia clinical trial is starting one using stem cells...University of Louisville Hospital.  I read the information and decided it wasn't for me right now, though.  They do the treatments over just a couple of months and then you have follow up appointments for about 2 years.  That just seems like a really long committment, especially if it doesn't work or if you get placebo.  Granted, you can drop out at any time, but then you mess up their data.  So, I decided to give Humira a try. 
Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


lilgeniexol
Regular Member


Date Joined Nov 2007
Total Posts : 50
   Posted 7/29/2008 10:20 AM (GMT -7)   
Hey Zena WP-How was your Cimzia trial?? Are you on it?

CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 7/30/2008 12:08 AM (GMT -7)   
man, my first meal sure as heck wouldnt be a big mac. there are a lot more better tasting danger foods i'd rather eat. like greasy fried chicken, something spicy, sweet corn, popcorn, broccoli, etc etc. big mac...yuck, and that was even before i was diagnosed.

the procedure sure sounds scary - they kill your immune system with chemo and then inject you with stem cells in hopes to build a new one. total sci fi. pretty cool though to live in a world where science like that is becoming a reality, but scary though. sounds total last resort, but sometimes it feels like what have you got to lose, sign me up, right?
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07

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