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Date Joined Dec 2005
Total Posts : 259
Posted 7/27/2008 12:51 AM (GMT -6)
Remicade infiltrated into my arm today. I had to stay in the hospital for 1 1/2 hours afterwards with the my arm elevated and warm compresses on it. It is still swollen and has red streaks near where the IV was inserted. Normally the nurse will keep checking but somehow today didnt and I fell asleep after the pre-meds were given. They said to just keep my arm elevated and gave me to heat packs to take home. They said if it got worse to go to the ER. I am wondering if I should go to the ER or try to call my GI on Monday which I was going to do anyway. The last time I had Remicade in May they had to have the anestheisologist put an IV in my foot. Today they used the ultrasound machine and put it in my upper arm after sticking me numerous times. They are strongly recommending that I get a port-a-cath I think it is called surgically implanted so I dont continue to have these ordeals and I have been resisting this until today. I was in the room for the Remicade at 930am and I left at 230pm. It has become a nightmare. I had blood clot from a PICC line in 2005 in my right arm and a staph infection that went into my bloodstream, so IV's and I dont get along. I keep looking at my arm and it is warm to the touch and red. Has anyone else ha d a port-a-cath for remicade or due to poor veins for IV's or had Remicade or other medicine infiltrate completely into you?
42 yrs, diagnosed Crohn's 1988, 2 bowel resections, 1 strictureplasty, 1 botched exploratory surgery, 1 emergency surgery for ruptured ulcer, Remicade every 8 wks, Immuran 100 mg, Protonix
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Date Joined Jan 2006
Total Posts : 449
Posted 7/27/2008 5:32 AM (GMT -6)
OH dear! I have horrible veins. They just seem to blow so easily. Never had one blow DURING REmicade. But my last hospital stay resulted in 4 IVs in less then 24 hours. At that point, my nurse called the doc and basically told him "I've already called IV Therapy and she's getting a PICC" They only left my PICC in for the 8 days in the hospital, but we questioned leaving it in until my next Remicade, but they didn't think it was necessary. I have a 1yo (almost) and I actually wanted them to do the Port-a-Cath instead of the PICC because the Port-a-Cath is up on your chest and doesn't dangle like a PICC does on your arm. (I was thinking - toy for my daughter) But, it was Sunday, and they couldn't schedule a Port-a-Cath until the following morning at the earliest and they needed veins now, so a PICC it was.
I was told it'd have to be flushed monthly (the Port-a-Cath), but that didn't bother me. My aunt is a breast cancer survivor and JUST got her Cath removed. The nurses were all "It's surgery?" "It has to be flushed." Trying to scare me away, but honestly, I think I would of taken the Cath over the PICC because everytime I go to ER, the hospital for blood, or Remicade, well, it's at least 1-2 sticks. I have certain people that stick me now just because we know the issue. My veins are small, almost child-like and they a lot of times get the pediatric needles for me so they don't blow my veins out as quickly. I have some NASTY bruises from some failed IV lines.
I've been on Remicade for 2 1/2 years and gradually, the nurses are suggesting it more and more. I can't see that the flushing would be all that bad because I have done In-Vitro Fertilization and given my own intramuscular shots in my hip as well as sub-q injections in my belly area, as well as given myself 2x daily shots of Heparin to sustain pregnancy, and in addition, I've mixed a lot of vials of meds and Heparin doesn't require mixing, only pulling and measuring. Seen a lot of needles and syringes in my household in the past few years, so I think the doc/nurse would allow me to flush at home, but who knows.
I'm sorry that didn't seem like much help, but they are on the fence with what to do about
me. I'd say if I have one more stint like I did this last time, they will get me a Port. At least with a Port, you don't have to get stuck for blood draws, no waiting on IVs, medicine is given easily and quickly, etc..etc...
KUP on how it goes. HOpe you are feeling better...
- Age: 26
Crohn's - Dx Nov 05
Remicade - Next infusion - July 10th - new dose - 10mg/kg
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 11 months old
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Date Joined Mar 2007
Total Posts : 4527
Posted 7/27/2008 6:44 PM (GMT -6)
Hi Sounds like your having quite a go of it. Was your arm having red streaks at the hospital? Sure hope it is getting better. If they said to go back if it is worse then that's what I would do. Hopefully they can get a better way to give you your med. Thinking of you and keep us posted on how your doing. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail
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Date Joined Jul 2006
Total Posts : 6927
Posted 7/27/2008 6:58 PM (GMT -6)
I have seen a port for Remicade, but it was in someone who got it every three weeks.
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants)
Make sure your suffering has meaning...-?
All suggestions/options/opinions are caveated with please consult with your local health care provider...
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