What are your typical Crohn's symptoms? (Besides bowel movements....)

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Julie1014
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Date Joined Oct 2005
Total Posts : 1245
   Posted 7/28/2008 1:48 PM (GMT -7)   
I was wondering if you would be willing to share your Crohn's symptoms.  Some people who don't have Crohn's think it's all about "diarrhea."  I believe I am experiencing a flare, but the bowels aren't that bad.  I am having:
 
1.  Fatigue
2.  Body aches
3.  Feverish
4.  Chills
5.  Sore joints
6.  Brain fog
7.  Headache
 
What type of symptoms do you experience on a daily basis?  Or if you are flaring?
Thank you so much in advance for your time.  Blessings, Julie
Diagnosed with Ulcerative Colitis (Pancolitis) 10/25/05
New Diagnosis of Crohn's March 2006
Asacol 3 pills three times a day
Remicade 10mg/kg every 4 weeks
Prednisone 12mg a day
Imuran 75mg
Miralax as needed, Cortisone enemas as needed
Prevacid 30mg
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


crohnspatient13
Regular Member


Date Joined Jul 2008
Total Posts : 128
   Posted 7/28/2008 1:58 PM (GMT -7)   
Hi Julie,

like you said, besides the famed diarrhea, there are many more symptoms and here are a few that I experience when in a flare.

-severe fatigue
-bloating/gas
-blood in stool
-nausea/vomiting (sometimes blood in vomit)
-intense lower back pain
-joint pain (knees, ankles, fingers and wrists)
-angular cheilitis/ stomatitis (lip sores)
-night sweats/chills
-loss of appetite
-pain in abdomen

and some more but those are probably the more common ones. hope it gives some insight.
18 year old female- diagnosed with severe crohn's in December of 2004, only one mild remission since being diagnosed
have been treated with prednisone, 6mp, and remicade. now trying humira


indigosunrise
Regular Member


Date Joined Nov 2007
Total Posts : 497
   Posted 7/28/2008 1:59 PM (GMT -7)   
To be honest, sometimes my symptoms are worse outside my bowels! I get:

-Fatigue.
-Night Sweats, or I will feel like I want to have a fever, but I don't.
-Eye inflammation (Episcleritis and/or Scleritis)
-Arthritis symptoms
-Joint weakness at times (maybe that goes with the arthritis)
-Mouth sores
-Nausea
-Rectal Bleeding (not often, thank goodness!)

To be honest, the eye inflammation is there just about every day. Most of the other stuff seems to come and go--it gets worse at times. Sometimes, it almost builds up and then gradually stops.

sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 7/28/2008 2:26 PM (GMT -7)   
So far all of it sounds pretty familiar.
Fatigue-often debilitating
random fevers
pain that seems sourceless
joint inflamation and accompaning pain
Eye inflamation
Night sweats
light headedness
insomnia while exhausted
loss of appitite

Julie1014
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Date Joined Oct 2005
Total Posts : 1245
   Posted 7/28/2008 2:44 PM (GMT -7)   

Thank you so much for all of the replies!  It's nice to know I'm not going crazy, lol!  Yes, sometimes the "other" symptoms are worse than the bowels..... eyes

And, how could I forget mentioning bloating, gas, and back pain?  Silly me! tongue


Diagnosed with Ulcerative Colitis (Pancolitis) 10/25/05
New Diagnosis of Crohn's March 2006
Asacol 3 pills three times a day
Remicade 10mg/kg every 4 weeks
Prednisone 12mg a day
Imuran 75mg
Miralax as needed, Cortisone enemas as needed
Prevacid 30mg
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 7/28/2008 5:07 PM (GMT -7)   
I suffer all of the above symptoms, some days worse than others. I have trouble understanding why one day I can feel ok and then the next day all these symptoms intensify when I dont eat or do anything differently. Oh well, its the nature of this DD I guess. Jo

LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 7/28/2008 6:10 PM (GMT -7)   
severe fatigue
bloating/gas
bloody stool
lower back pain
knees and ankle joint pain
stomach pain

These are usually my symptoms besides D
Living with Crohn's Disease since Jan./2000 but had a few years prior
I'm a true Crohnie with IBS and Arthrities too
 
Meds I have tried:  Too many to list- LOL
Meds currently on:  Prednisone 15mg tapering
                           Methotrexate injections once a week 25mg
                           Folic Acid 5mg once a week
                           Wellbutrin twice a day
No Surgeries
 


Bane
Veteran Member


Date Joined May 2007
Total Posts : 589
   Posted 7/28/2008 6:30 PM (GMT -7)   
Fatigue
D
perianal fissures
rectal bleeding
occasional bloody stool
loss of appetite, weight loss

plus other stuff, conditions i had already had and have been compounded by Crohns... such as light headedness.
20, Male, diagnosed over Christmas Break of my Junior year in High School. BEST CHRISTMAS EVAR LOL

(not really)


Crohn'snme
Veteran Member


Date Joined Feb 2007
Total Posts : 734
   Posted 7/28/2008 7:18 PM (GMT -7)   
Fatigue
Diahrea
Sweats
Insomnia
Joint pain that wakes me up
sever bloating
mouth sores
Stomach pain
Oh I could go on and on. LOL

Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 7/28/2008 7:33 PM (GMT -7)   
Fatigue
joint pains
headaches
auto-immune caused angioedema (lip, and thumb swelled up during a flare)
Sever GI bleed
rectal abcsess and fistula
Lost my gallbladder

Probably more. LOL
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapering down from 10 mg again, Asacol, Questran, Toprol XL (for high blood pressure).


Momikins
Regular Member


Date Joined Oct 2007
Total Posts : 77
   Posted 7/28/2008 8:50 PM (GMT -7)   
lower back pain
joint pains
fatigue
bloating
right side pain (in front)
foot pain
neausea
anxiety

However, not all at the same time (thank heavens!) and some rare, but wonderful days I have none of these symptoms.

78SilvAnniv
Regular Member


Date Joined Apr 2008
Total Posts : 289
   Posted 7/28/2008 10:45 PM (GMT -7)   
Does anyone else have mucus? Dr said at last c'oscopy (2wks ago) that I had some colitis. Is the mucus from the colitis and not CD?

I've dealt with fatigue (feel like Superwoman when on 'roids), insomnia ('roids), bloating before surgery and the last 2-3 weeks suffering from severe gas (do NOT trust a fart!) that I control with Gas-X and recent probiotics. Still afraid to stop the gas-x, though...that was some baaaad gas! I have blood in the stool when I have gas. Mucus also seems to increase when I have gas. I didn't know night sweats were a symptom of CD, I get those occasionally. I thought it was just our cranky AC. Nausea and loss of appetite I attribute to 6MP.
I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
 
Crohn's and UC are pretty darn crappy, but if you can't laugh at yourself, you'll cry. 
I'd much rather laugh.
2001 Dx'd with UC.  No remission.  5/2008 surgery, removal of 6" of left side colon.  Dx changed to Crohn's.  Remission for 8-9wks after surgery, symptoms returning after resuming 6MP.


Bane
Veteran Member


Date Joined May 2007
Total Posts : 589
   Posted 7/29/2008 12:57 AM (GMT -7)   
i had a batch of bloody mucus once, but it was after a particularly painful scope. i remember waking up and doing my not-quite-screaming-but-still-in-a-ton-of-pain thing... but it all seems like a dream, so i was still at least partially drugged. recovery for that one was nasty too, they filled me full of a lot of air... and gas always hurts me.
20, Male, diagnosed over Christmas Break of my Junior year in High School. BEST CHRISTMAS EVAR LOL

(not really)


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 7/29/2008 3:45 AM (GMT -7)   
lower back pain
bloody mucus
nausea
severe abdominal pain now everywhere
possible fistulae(finding out today)
knee pain
horrible fatigue(can barely get to the bathroom sometimes!)
loss of appetite/weight loss(101 pounds as of yesterday)
rectal bleeding of course

That's what I can think of for now anyway...much the same as so many of you. Here's to us getting better!
20 years old, Diagnosed with severe Crohn's and colitis in May of 2008.
Currently taking prednisone and asacol.
Surgery for ectopic pregnancy in July of 2008.


westat
Regular Member


Date Joined Jun 2008
Total Posts : 167
   Posted 7/29/2008 5:32 AM (GMT -7)   
I think it is amazing that drs never mention all the OTHER symptoms you will have or that all those symptoms are disease related. Until I realized that other Chronies feel the same way being so tired and unmotivated really got me down.
My symptoms:
Fatigue (extreme and the one thing people don't understand and can be more dabilitating than any other symptom sometimes)
insomnia (wonder why I am so tired)
Night sweats
Chills
Sore joints (knees, shoulder, neck)
Headache
diarhea
right side tummy pain
nausea
Right now I have severe spine pain, but don't know if it is the pred or disease or something other.
Dx with Crohn's in 1997 after 5 years of worsening symptoms.
Resection a few months after dx after 1 month on TPN and IV steroids.
Also have severe asthma.

Tried: Pentasa, Cholestyramine

Presently taking: 3.2 grams Asacol, 150 Imuran (just started June 08), down to 2.5mg predisone, probiotics. For asthma I take Advair 500, singulair, arieus


br4d
Regular Member


Date Joined Feb 2008
Total Posts : 71
   Posted 7/29/2008 7:20 AM (GMT -7)   
i find it interesting that so many of you list fatigue (and extreme fatigue) as your most common side effect other than D.

i'm 23, work a full time job 70 miles away from home (about 2-2.5hrs of driving per day), work a part time job 5 miles from home, and am a full time student. (11 more classes and i'll finally have my bachelors!) i go to bed around midnight and get up around 7:30 and i'm never tired during the day until bed time. i don't exercise regularly, but i do occasionally take part in snowboarding in the winter, and riding my jet ski in the summer.

i'm not sure if it's my high metabolism or crohn's keeping me thin, but i'm 5'7 and 125-130lbs, 4% body fat. maybe im just lucky, but i don't seem to experience the fatigue that most of you all seem to.

i DO, however, have the headaches, joint pain, body aches, sharp lower right side tummy pain, rectal bleeding (but not blood IN the stool- usually drips out after a push) and occasional nausea/loss of appetite.
.:brad:. 23 year old male from PA.

diagnosed with crohn's disease in april 2002 during surgery for obstruction
meds: 10mg prednisone, tapering. starting remicade july 30th. no more 6MP.


EruditePaul
Regular Member


Date Joined Jan 2006
Total Posts : 266
   Posted 7/29/2008 7:31 AM (GMT -7)   
Excess gas/abdominal pain related to gas
Sometimes diarrhea
Lower back pain (more recent)

Fatigue if I have diarrhea


Diagnosed with CD in 1994;

Have being treated with Chinese herbal medicines for over 10 years.


indigosunrise
Regular Member


Date Joined Nov 2007
Total Posts : 497
   Posted 7/29/2008 1:40 PM (GMT -7)   
SydneyJo said...
I suffer all of the above symptoms, some days worse than others. I have trouble understanding why one day I can feel ok and then the next day all these symptoms intensify when I dont eat or do anything differently. Oh well, its the nature of this DD I guess. Jo
That is how I feel!  I am trying to understand this disease and the symptoms confuse me.  Sometimes I have bad days and then I have bad weeks.  I wonder if the longer time frames are considered flares?  It is just too weird! 

karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 7/29/2008 1:49 PM (GMT -7)   

 

 

Pretty much the same as the others besides the D I get:

 

Joints pain/ Arthritis

Some kind of skin tag thing that swells with flares…like a “flare-o-meter”

Bleeding (not lately)

Gut pain one area or another (usually upper right side)

Night sweats

Gas

Nausea

Headache (could be many causes might not be CD for me)

Fatigue

Bloating

mouth sores since childhood

weight gain (my body reacts the opposite and holds on to fat when I have D, aren’t I lucky?)

 

Karen

 

 


 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 Started Humira June 2008 (have been on other cd meds)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Diagnosed w/ General Anxiety Disorder in 2005- Effexor and now new med Clonazepam starting 7/18/08

 


SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 7/29/2008 5:22 PM (GMT -7)   
Indigo,
It is weird, i just think that I live in a continual flare with the random good days inbetween. Im too scared to say Im ever in remission because as soon as I voice this I will have all the above mentioned symptoms happen to me. After reading this thread it is comforting to know that your symptoms are 'normal' Jo

hcv299
Regular Member


Date Joined Apr 2006
Total Posts : 22
   Posted 7/29/2008 6:51 PM (GMT -7)   
I have most of the symptoms listed daily,
fatigue,
pain in the lower right abdomen,
gas,
sleeplessness, (could be the pain causing it.)
heartburn,
nausea,
mouth ulcers,-sometimes so bad I can barely swallow,
frequent bowel movements,
oh, and grouchyness-sorry honey.

I noticed before a flare up my left eye will swell up like I have the hives. I did not see any mention of heartburn. I get that alot! Prilosec every other day helps and staying away from fried foods. After 16 years of living with this I have learned a few tricks, such as staying away from a lot of caffine, raw veggies, and overcooked meats. Does anyone else experience severe nausea during bowel movements? Sometimes I feel as if I will be sick until I am done and then it passes.
 


Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 7/29/2008 8:42 PM (GMT -7)   

I don't get diarrhea - maybe a handful of times a YEAR just like a normal person - and I hate that so many assume all Crohnies have the big D!

Mine:

severe abdominal pain

excessive gas

joint pain

very painful sores in my vaginal area (like boils!)

mucus in my BMs

extreme exhaustion (typically connected to iron levels)

noisy intestines (I get asked if I'm hungry a lot!)

acute obstructions

Fever

 


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 7/30/2008 10:17 PM (GMT -7)   
Question - do you people have sinus pain and a runny nose? What about sore/dry throat and throat phlegm? I know that these are both unrelated to your gut and trivial by comparison to a lot of the other symptoms, but I am curious.

Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 7/30/2008 10:32 PM (GMT -7)   
flares are like being under water when a hand grenade goes off near by. Hmm maybe you cant relate to that one but thats like having someone stick an egg beater up your behind and crank it up...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 7/31/2008 3:03 AM (GMT -7)   
Keeper said...
Question - do you people have sinus pain and a runny nose? What about sore/dry throat and throat phlegm? I know that these are both unrelated to your gut and trivial by comparison to a lot of the other symptoms, but I am curious.
Keeper, yes to all of your questions!! eyes
Diagnosed with Ulcerative Colitis (Pancolitis) 10/25/05
New Diagnosis of Crohn's March 2006
Asacol 3 pills three times a day
Remicade 10mg/kg every 4 weeks
Prednisone 12mg a day
Imuran 75mg
Miralax as needed, Cortisone enemas as needed
Prevacid 30mg
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 

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