did anybody hear anything different about fistulas??

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lalalaCD
Regular Member


Date Joined Jul 2008
Total Posts : 36
   Posted 7/28/2008 8:50 PM (GMT -7)   
 is anybody on any medications BESIDES 6 mp....humira...or remicade to close fistulas??? now like i told everyone earlier i should be starting remicade very soon like within the next week....as everyone here knows i am scared( horrified) to start this medication...my doctors told me that only .....6mp ( which im on now and isnt closing my fistulas) remicade and humira are the only 3 drugs known to close fistulas...is anybody else on anything else to close fistulas??  i just wish there was something to close these darn holes that dont have horrifying side effects..please help!! thanks everyone

 
         
 
 
 
 
                     Diagnosed Aug 2007 of crohns disease
                     Currently Taking 6mp (soon remicade)
                        Fistulaes make me mad!! lol
                                   


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 7/28/2008 9:31 PM (GMT -7)   
Some doctors prescribe antibiotics to try and heal the fistulae. I think that a few people have had success with antibiotics but most have not. Which of Remicade's side effects has you so horrified?
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 7/29/2008 4:10 AM (GMT -7)   
You could try flagyl and cipro.

br4d
Regular Member


Date Joined Feb 2008
Total Posts : 71
   Posted 7/29/2008 6:49 AM (GMT -7)   
the side effects of 6mp are very similar to those of remicade. whats your worry?

i've been on 6mp for about 6 years and start my first remicade infusion tomorrow. i'm super excited!
.:brad:. 23 year old male from PA.

diagnosed with crohn's disease in april 2002 during surgery for obstruction
meds: 10mg prednisone, tapering. starting remicade july 30th. no more 6MP.


miguelblanco
Regular Member


Date Joined Dec 2007
Total Posts : 131
   Posted 7/29/2008 7:36 AM (GMT -7)   
I have had antibiotics prescribed for abscesses. I have heard it being used for fistulas as well. Flagyll and Cipro were prescibed to me (didn't work.) THe Cipro did, however, make my Achilles tendons ache horribly when I took it and my ankles swelled with edema. I stopped it immediately. The doctors said that the Cipro couldn't possibly do that. Lo and behold, two weeks later, Cipro was blacklisted by the FDA for the possibility of it causing tendon ruptures- specifically in the Achilles tendons.

Read up on all side effects of all medications and weigh your options. I refuse to take Remicade. It has such a litany of side effects its ridiculous. I think I saw that Remicade is either blacklisted by the FDA now as well, or is about to be blacklisted.
Type I Diabetes- 29 yrs. (MiniMed Insulin Pump)
Celiac Disease- 8 yrs.
Crohn's Disease- (Nov. '06)
No meds at this time. (Don't agree with me.)


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 7/29/2008 7:43 AM (GMT -7)   
As others posted, Flagyl and Cipro are both used for Fistulas.  But I was just told that Xifaxan can also be used.  I'm a little skeptical of that one.  I have a permanent R/V fistula that I've had for about 6 years or so, and I've been on Xifaxan for about 2 years. One of my GI's didn't realize that I had a fistula, since it predates when I started seeing him and I guess he didn't pay attention to my records.  But he was shocked that the Xifaxan hadn't healed it.  But you may want to look into it.  It is also an antibiotic, but used off label for CD.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

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