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carmen
Regular Member


Date Joined Feb 2003
Total Posts : 499
   Posted 7/29/2008 11:19 AM (GMT -7)   
Who is on asacol and has side effects, what are the side effects and do they eventually go away?
 
Thanks
Carmen

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/29/2008 11:38 AM (GMT -7)   
I take Asacol and have for about 2-3 years. I have not had any side effects except a little hairloss. Hope that helps.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


staci100
Regular Member


Date Joined Mar 2006
Total Posts : 111
   Posted 7/29/2008 11:50 AM (GMT -7)   
I have been on Asacol for 15 years and haven't had any side effects. I did lose some hair a few times but could not pin point it to Asacol because I was on so many things that could cause it. I have read or heard that if you are on Asacol you have less chances of getting Colon Cancer. Don't know how true that is.
34 year old Female
Diagnosed with CD 1993
Currently taking Asacol, 100mg Immuran, 5 mg prednisone (tapering), Humira injections twice monthly since Feb 08, Fish Oil, Probiotics, Multi Vitamin, B-12 tablet, folic acid


bentwistle
Regular Member


Date Joined Jul 2006
Total Posts : 330
   Posted 7/29/2008 1:34 PM (GMT -7)   
I was on asacol but it was of no use to me - my side-effects were that it intensified my symptoms instead of helping them and I felt really sick as a result. I had a fever and bled during every bathroom trip. Increasing the dose only led to worse side-effects. My doctor told me that happens in some cases, and that I can't use any of the 5-ASA products.

Most people have good success though,

Bev

potatoqwn
Regular Member


Date Joined Jan 2006
Total Posts : 355
   Posted 7/29/2008 2:11 PM (GMT -7)   
I have been on Asacol for about 15 years. No side effects at all. I used to take 12 a day and now I am down to 4 a day.

Stef17
Veteran Member


Date Joined Feb 2003
Total Posts : 1811
   Posted 7/29/2008 2:36 PM (GMT -7)   
I've been on asacol about 17 years. No side effects to speak of. I'm on 8 pills a day and have been the whole time. On a few occasions I've gone up to 12 a day, but that never seems to make a huge difference for me.

Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2689
   Posted 7/29/2008 3:23 PM (GMT -7)   
I've been on it for 2 1/2 years, no side effects that I can think of!
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapering down from 10 mg again, Asacol, Questran, Toprol XL (for high blood pressure).


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 7/29/2008 11:59 PM (GMT -7)   
talk to your GI about this: i was at the ccfa's san diego chapters educational seminar last april and they had 2 doctors, in talks independent of one another, who both stated that the 5-asa drugs are no better than a placebo in crohn's disease. they work for UC, but not really for crohns. i've been on asacol, colazal, and pentasa over 14 years. i never felt any of them did anything for me, but i took them religiously, never missing a dose, cos i was told i needed the medicine to make me well. when i found this out it made sense, in my case. i talked to my GI about this in may and he confirmed what these doctors at the seminar said. something to think about. do some research and talk to your doc so you can make a better informed decision. cos there is a chance you could spending who knows how much money for a drug that doesnt work as promised and instead subjecting your body to who knows kind of side effects, both long term and short term. but of course, some people swear by this and other 5-asa drugs. so like i said, do some research.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/31/2008 7:04 AM (GMT -7)   
CrazyHarry I have to disagree then with those 2 docs. I quit taking my Asacol after my last resection as my GI at the time said I no longer needed them. I quit taking them and got sick again pretty quickly. Went back on them and got back to feeling better. So while they may not work well for some they do for others (see above). And I have had Crohns for almost 33 years and always had success with Pentasa before my resections. JMHO
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 7/31/2008 7:50 AM (GMT -7)   
CH, surely those studies were published somewhere? But for the record, our GI told us the same thing in June and told my son to wean off it.
Mom to 16 year old boy diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, iron, vit. C, calcium w/D3, a good multivitamin, SCD legal yogurt, weaning off Asacol.
Started The Maker's Diet in Sept. '07. Gradually learning/using more SCD recipes, too! (cooking challenged)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 7/31/2008 9:45 AM (GMT -7)   
Back 17 yrs ago when I first got sick my GI at the time put me on asacol, after taking just one dose of 4 pills, a couple of hours later I broke out into a full body rash, had aches, fever and chills with a headache, dizziness and nausea, I phoned him and he told me to discontinue with them as I was clearly allergic.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


insagent
Regular Member


Date Joined Jul 2008
Total Posts : 97
   Posted 7/31/2008 9:56 AM (GMT -7)   
Im on Asacol, but have only been on it since May. I haven't had any problems with any of my meds tho.
 
Tannie 26 yrs
dx May 08 taking 30mg Prednisone,trying to taper, 100mg 6-mp, Asacol 6 twice a day, Remicade. 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/31/2008 2:05 PM (GMT -7)   
Well I think they work for some and not for others. Doesn't mean everyone should be off them. Cuz I feel if it ain't broke don't fix it. JMHO
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 7/31/2008 10:00 PM (GMT -7)   
hey, i said some people swear by the drug. i dont think it did anything for me though (my experience). the docs said that clinically, for crohn's patients, the results they get are as good as placebo. however they do get a clinical response in UC sufferers. but just cos the data says it works just about as well as a placebo, doesnt mean some arent actually getting a clinical response from it. and some may be getting a placebo response from it. i was just relaying some stuff i've heard from docs that was rather intriguing to me - they are prescribing us drugs that clinically dont really work. hard not to make one cynical. anyhoo, it is just one piece of info to arm yourself with and look into and talk to your GI with to make a more educated decision on how to treat your symptoms. that was my intention. there are a ton of drugs out there and it is interesting how what works for one person doesnt work for another. imho, what the docs said about the 5-asa class drugs and crohn's made sense to me cos that described my situation to a T. however it is nice to hear stories from people who say a particular thing works for them. always encouraging news. so the trick is exhausting all your resources and finding out what works for you.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07

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