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Sniper
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Date Joined Feb 2004
Total Posts : 6518
   Posted 7/30/2008 5:45 AM (GMT -7)   
  OK, so the preperation H is not working, nor is the 4 different ointments, the peroxide or any other thing that has been tried on me. Someone told me to use vinegar but I think all that would do is make me smell like a pickle. The rash on my arm is worse than ever. I am on my way back to the skin doc this morning but I have no great expectations. I even thought it may be one of my meds but I have not started a new one in the time frame of the rash. Needs some help here. Anyone have a rash ?? Noooo not a rash of @#%$.. We all get those, a skin rash. Maybe I just dont heal anymore. Maybe one of the mice they squeezed remicade juice from had mange..... eyes
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


justjenjen
Veteran Member


Date Joined Nov 2003
Total Posts : 518
   Posted 7/30/2008 6:10 AM (GMT -7)   
Even though you did not start a new drug during that time frame does not mean it could not be a med. You can develop an allergy to a med after you have been on it. I don't remember what you've tried from your previous post--have you tried taking Benadryl? --or some other allergy med with an antihistamine? I hope you feel better soon--sounds miserable!!! Oh--and I loved your mange comment...LOL

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 7/30/2008 9:42 AM (GMT -7)   
Sniper my friend
I was given a new med ( in Canada anyways LOL) called Protopic

For me it helped with the rash I had not the PG but rash........

I sure hope you find something as I know how much of a pain in the keister they can be
Take care you
Love
Lyn N Cait
Emailed you
  DX With Crohns,Pyoderma Gangrenosum,Anxiety/Panic,Fibro & Other DD
                                    Donate at  www.healingwell.com
 
Moderator @ Alzheimer's,Co Mod @ Anxiety/ Panic,Co Mod @ Crohns 
 
                                    FIGHT the FIGHT with all YOU HAVE
               Look For The GOOD,Even At Your Lowest
 
     Listen To Your Heart,Look Inside Yourself,Understand You
 
 
 
                    


crohnspatient13
Regular Member


Date Joined Jul 2008
Total Posts : 128
   Posted 7/30/2008 10:52 AM (GMT -7)   
possibly you could try a zinc ointment? i've heard it can work wonders on any kind of rash, i'm about to get some for my rashes
18 year old female- diagnosed with severe crohn's in December of 2004, only one mild remission since being diagnosed
have been treated with prednisone, 6mp, and remicade. now trying humira


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 7/30/2008 3:28 PM (GMT -7)   
Lyn,,,No rash on my keister,,thank goodness. JJJ I've tried benadryl. Haven't tried a zink ointment yet CP. Well Doc did another biopsy(third one) so at this rate the whole rash should be surgically removed in a year or so leaving my arm looking somewhat like the face of the moon.. Yep, its the pits.. I have to wait a week for results now. She says it may be crohns related but she has doubts. Also could be a med but she wants to rule out some things first. Does this sound familiar ? I almost croaked from heart blockage while the doctors played,,I think its crohns,,lets run another test. Anyway until the test results,,,DONT SCRATCH IT !!!! Ohhhhhhh Yeah,, thats great advice. What am I suppose to do ? I scratch in my sleep and gloves dont stop me, I take them off in my sleep. By the way, have i missed something on the news ? Is there a band-aid shortage ? She chopped a hole about the size of a dime in my arm and then put a band-aid about the size of a match head on it. I'm bleeding like a stuck pig and the liitle bandage just floats off so they stuck another one just like it on and sent me home. Good thing I keep a first aid kit in my truck. You know what,, smelling like a pickle may not be that bad...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Mellie
Regular Member


Date Joined Mar 2008
Total Posts : 110
   Posted 7/30/2008 4:22 PM (GMT -7)   
confused Hi Sniper. I don't know if its similar, but I have had some itchy raised areas that have popped up on my shoulders, hand, arms, and just recently the top of my foot. They are asymmetrical and are between 1/2 inch to 2 inches in size. they almost remind me of the raised marks you get from a dog scratch. They itch like hell for up to an hour sometimes, and then go away like nothing happened. I have some that reoccur. Is that what your itchy spots are like?
Diagnosed with Crohns/Colitis in 2004. Currently taking Azulfidine 500 mg/3 x 3 day, Synthroid. Have had joint complications such as pyroderma gangrenosum in ankles as complication of IBD. Started Humira March 2007


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 7/30/2008 5:11 PM (GMT -7)   
Hi Sniper Have you tried calamine lotion it is suppose to be good for releaving itch caused by chicken pox and things like that. Mangie are you. Gotta giggle Sniper at that one. Tell us more about your rash where is it ,how big ,and what does it look like. I did have a rash awhile ago and had to go off the Imuran. Do hope you can get yourself under control . Been wandering how you been doing. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/30/2008 5:29 PM (GMT -7)   
When did you last have your Rem?
Co-Moderator Crohn's Forum.


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 7/30/2008 10:26 PM (GMT -7)   
I had rem less than 2 weeks ago but have had this rash well over 4 months.Mostly on my right forearm but I do have a few small spots on an elbo and on a thigh. The one on the arm is almost from elbo to wrist now but only on the top of the arm. it starts out as a small spot about dime size with very small bumps . This is when it itches the worse. Then the small bumps become welts and after a week or so start to go away . Thats when the whole thing starts anew next to the old one and then back in the same place. Calamine dried it out and made it itch more so I put something on it ever time it itches. Sad to say, preperation H did the best but even that did not last. It just keeps spreading. Guess I will have to wait for the biopsy to come back. Red mange is contagious and people do catch it. I have no pets and have not been near any animals ( no VV gators dont have mange)so I doubt it is that but deep down inside I cant help but woder what the h---- this is. I hate the thought of allergy tests. Wheres the vinegar ????
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


kmfdm
Regular Member


Date Joined Jun 2008
Total Posts : 78
   Posted 7/31/2008 12:25 AM (GMT -7)   
Hello fellow Remicade Infusioners,

I have had a rash that just recently appeared on my arm and I have been taking Temicade for the last year. I also have had Pyrodermal Gangreneousel on my foot in the past buy that is a very painfull, bruising, cratering kind of rash caused by Crohn's.

I also have Shingles, which is a form of dorment Herpes caused by the Chicken pox virus that stays dorment in your system and can appear when you have immune system problems.

I would love to hear your "first time" story's of when you initially felt the symptoms in your guts.

I have and will keep studying this and know that there is an answer, we just have to figure it out ourselves....go back to the roots.

HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 7/31/2008 5:27 AM (GMT -7)   
Sniper: Go to the pharmacist and ask for Claritin and ..... an OTC gut burn med starts with a P I think. I was thinking Prilosec but not sure.

Seriously, ask about getting Claritin (which is an antihistamine A) and the other is an antihistamine B. Together they made a difference the time I had the whole body burning rash and swelling. They took the symptoms down quite a bit. The only thing that completely kicked it out of me was a bout of prednisone for two weeks.

And Snipe...mine was not related to meds, food, new soaps or anything else they asked about. They insist it was a viral reaction. I still do not know exactly what caused it, but I expect it will rear its ugly head again as I have had a few bouts like this. I think it has to be auto immune
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 7/31/2008 7:27 AM (GMT -7)   
Geeeez kmfdm, your just a rash of info.How did you get over all that ? I think its like our hockeyFan says, crohns leaves us susceptible to all sorts of fun things. I just noticed something this morning. I had a little callus on my knee so I brushed it up with an emery board and put some moisture lotion on it. Now its itching like blazes. I think this condition may be body wide and just appearing where anything irritates the skin. The spot on my thigh is right where my knife sits in my pocket and the one on my elbo is where the elbo sits when I am working at the computer. Hmmm maybe I better not sit too much.......
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 7/31/2008 1:31 PM (GMT -7)   
The anti-histamines are your best bet. I would guess that the rash is a result of your gut mast cells reacting to some damage there. There are a number of reports of mast cells at the site of some damage activating remote mast cells and causing damage in a place completely unconnected to the initial site of damage. One of the agents that the mast cells produce is histamine which would cause a rash. Mast cells are believed to be responsible for allergic reactions (red eyes, runny nose, cough and of course rashes and itching generally). Mast cells are also involved in the progression of Rheumatoid Arthritis and there may be a connection between Crohn's and the development of RA in Crohn's patients. Of course the perfect solution would be to cure your Crohn's.......

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 7/31/2008 1:51 PM (GMT -7)   
Sniper my friend'
I am almost willing to bet it is got to do with CD
There are so many skin probs due to this DD and also immune as you know all to well

Look after you
YOU know how much of a worrywort or wort I ams .........
Luvs
]Lyn N Cait .


  DX With Crohns,Pyoderma Gangrenosum,Anxiety/Panic,Fibro & Other DD
                                    Donate at  www.healingwell.com
 
Moderator @ Alzheimer's,Co Mod @ Anxiety/ Panic,Co Mod @ Crohns 
 
                                    FIGHT the FIGHT with all YOU HAVE
               Look For The GOOD,Even At Your Lowest
 
     Listen To Your Heart,Look Inside Yourself,Understand You
 
 
 
                    


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/31/2008 1:52 PM (GMT -7)   
I just think Sniper has COOTIES~Everyone quick, cross your fingers so he doesn't pass them on to you! Just kidding Sniper, I couldn't help myself, you must be rubbing off on me:)LOL

Seriously though I agree with the antihistamines. At least that will help to ease the itchiness. Hope you get rid of this icky rash soon. Good luck!
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


wanthealth
Regular Member


Date Joined Feb 2008
Total Posts : 78
   Posted 7/31/2008 2:04 PM (GMT -7)   
Sniper,
It's not likely because it's very rare, but I was one of the unlucky ones to get psoriasis from Humira.  A biopsy should clarify this although my PCP said any 1st year med student would recognize Psoriasis.  Very itchy and painful at times and difficult to get rid of.  Hope you get lucky and get a different diagnosis.
Moodindigo

Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 7/31/2008 8:22 PM (GMT -7)   
Cooties,,hmmm, thats a possibility, but if there are cooties in my skin they must be after my blood. Ha Ha, the jokes on them. To bad I cant handle a week long bender. Then they would all get pie eyed and fall off.
Thanks for careing guys, I'm going to wait for the biopsy but if I dont hear something promising I now have lots of hints at what to do next...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


dodger84
Regular Member


Date Joined Jan 2008
Total Posts : 37
   Posted 7/31/2008 8:28 PM (GMT -7)   
I had a crazy itchy rash that was sporadically localized on my fingers, elbow, forearm, leg, belly, and feet. It was after a Remicade infusion & consisted of patches of small red super itchy raised bumps. I smothered them with anti-bacterial cream and hydrocortisol cream and they went away after a few days. In the beginning I was convinced that they were going to take over my whole body because they were spreading so fast. Maybe it was all the scratching.

broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 7/31/2008 8:59 PM (GMT -7)   
Took 'em nearly a freakin' year to diagnose my psorasis! It's viral, it's fungal, it's the rash of the week! Where's the prize? Finally, I found a derm with a brain! Of course he came from the Mayo Clinic! What luck I stumbled across on that one! I have to use the strongest steriod cream they make during outbreaks and of course a maintenance cream as needed. I will note that the "rash" began at my weakest skin point...my healing incision from the resect. Hang in there Sniper! If you find a solution, let us know. Lately, I have developed an aggressively itchy area at the base of the left side of my nose. No rash or dryness, just itches like the devil for about an hour and comes and goes at will. Weird! Frustrating to me however because I am very conscience about not "handling" my face because of fear of transmission of germs to my nose & mouth. Especially since I work in a medical environment. Maybe Nanners is right and you gave me the cooties! I vote you take a soaking bath in vodka....no sneaking a snort though!
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Glucosamine, Multi-Vitamin, Ultracet Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, peri-menopausal.


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 8/1/2008 9:47 PM (GMT -7)   
A soaking bath in vodka,,,,,why didn't I think of that ? How about I take a swim in Tequila. Drown my sorrow and any cooties that may be around . I had a friend that drowned in a brewery vat..Yep they pulled him out three times but he kept diving back in...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 8/1/2008 11:06 PM (GMT -7)   
When you get a chance Google "pyoderma gangrenosum". I've had it on and off for about 15 years. Because it is a rare skin disorder, it is often misdiagnosed. There is a connection with PG to Crohn's patients. If it is PG, all the remedies posted here by well meaning forum members won't help at all. I had to deal with it for 3 long years before the 3rd dermatologist I saw figured it out. Go online and check Pyoderma Gangrenosum out. You just might have it.

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 8/2/2008 7:31 AM (GMT -7)   
I have serious doubts it is PG..BUT ya never know
I have had this for 15 yrs
Took 9 yrs to DX here
No one knew what it was
I have Bullous PG
I get it all over the body and it is the most painful hades I have felt I have to say
Protopic did not help with me but apparently it does help itchy rashes .....
'Mine is not a rash they are outbreaks of horror sores..Ulcerlike and painful
Sniper you have seen pics of my sores my friend
Does it look like any of those at all ??
I will bring that up if I can BTW
Nothing grows with a biposy with PG either
It is autoimmune for sure and directly related to CD We have 3 or 4 now with it
When I first came here there was one other plus myself.......

Take care you
Luvs ya my friend........Lyn N Cait

I brought it up all right BUT it ended up in Anxiety and Panic..Check there

Trust this ole babe to do that

I blame the FOG lol

Luvs

LYN


  DX With Crohns,Pyoderma Gangrenosum,Anxiety/Panic,Fibro & Other DD
                                    Donate at  www.healingwell.com
 
Moderator @ Alzheimer's,Co Mod @ Anxiety/ Panic,Co Mod @ Crohns 
 
                                    FIGHT the FIGHT with all YOU HAVE
               Look For The GOOD,Even At Your Lowest
 
     Listen To Your Heart,Look Inside Yourself,Understand You
 
 
 
                    

Post Edited (Howlyncat) : 8/2/2008 9:08:48 AM (GMT-6)


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 8/2/2008 1:42 PM (GMT -7)   
A bit late, but there is a possibility that you can help the problem with plain old vitamin E. I read that vitamin E reduces the trigger immune globulin that sets off the mast cells which cause the rash. At least it is a harmless thing to try and it deals with the cause and not just the symptoms.

broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 8/2/2008 9:04 PM (GMT -7)   
What a way to go!
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Glucosamine, Multi-Vitamin, Ultracet Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, peri-menopausal.


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 8/2/2008 9:58 PM (GMT -7)   
I really dont think its PG. It only makes sore if I scratch it too much. Mostly its just a ,,,son of an itch...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

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