Devastated and scared with results- Help

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kgirlie
Regular Member


Date Joined Jan 2008
Total Posts : 101
   Posted 7/30/2008 3:00 PM (GMT -7)   
I got the results of my small bowel follow through. It showed that my disease has spread since feb. My boss is being a jerk because she thinks I should be better. The probelm is I am better, but I am not "fixed". She said that I was sick last year and she's not doing that again. I am a special education teacher. I can have a disabled body and still be effective. I reach children's minds. I can do that sitting or standing. I have a special connection with my students and their families. I am a very effective teacher, but all my boss sees is my disability. I am currently filing under ADA to protect myself. I am so sick of people thinking they have the answer. My dr wants me to go on Imuran and I don't want to start another new drug at the beginning of the school year. I am finally feeling ok, one or two rough days a week, and I am learning to deal with my disease on a day-to-day basis. My boss needs to lay off and keep her opinions to herself. She only knows about my disease because I missed a lot of work last year and I have remicade treatments every six weeks during school hours. My dr worried me becasue she wants to pull me off all meds, except pentasa, and in a couple weeks start me on Imuran. I feel like I am a trial and error hamster. Any thoughts of comfort or opinions? I think I am a little sensitive, but anyone who has had the year I have had would be sensitive and tirede. I just slept my summer away going to the dr every week. My boss aggravates me and judges me for being disabled and I can't stand people like that. I know it isn't just me. I teach children with disabilities and when a general education student was beating up (physically hitting) one of my students, she brushed it off and said, "it's no big deal). It happened multiple times and I finally went to the parents and got them involved. People with disabilties should not be picked on no matter what. Thanks for listening to me rant.
 
Thanks,
Kgirlie
Kgirlie
 
27 year old female dx with CD in 2001. Pentasa 4 g/day, Prednisone 30 mg/day, Lexapro 10 mg/day, Wellbutrin 150 mg/day, Remicade, topamax, nadalol, Maxalt 10 mg as needed. Mother of son, 3, and daughter, 10 months.  


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 7/30/2008 3:44 PM (GMT -7)   
You cant reach your boss like your kids because unlike them , she has a closed mind. Ask her what part of, THERE IS NO CURE, is giving her difficulty . If that does not help perhaps the words harassment, or law suit may ring a bell. Through many years of work I have found that there is always a person that is close to the boss. I call this person a kiss,,,uhhhh, well, lets see, lets just say this person is a pipeline to the boss. What goes in the pipeline goes right to the boss. The words law suit in the pipeline could spell relief for you...If you get rid of the stress at work, you may feel better too...Hope your doc finds an answer soon too...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Stef17
Veteran Member


Date Joined Feb 2003
Total Posts : 1811
   Posted 7/30/2008 6:03 PM (GMT -7)   
As a now "disabled" middle school teacher, I don't need to remind you that people in education can get apathetic very quickly. Your boss has lost the "spark" of what education is all about. All she sees is that she's "running a business" and you're a wrench in the works. When my boss called me in and had the talk about me missing so much work I was offended - afterall, I was sick, I couldn't help it. BUT... I had to stop and see it from her side. There I was teaching a specialty subject (foreign language) that not just anyone could fill and I was missing work. She was in a bad spot. I hated to think that I wasn't pulling my weight because I was truly doing all I could do. The truth was, that just wasn't enough. And in the long run it worked out in my favor because her nasty letter to me and her threats to fire me were exactly what I needed to prove my "inability to work" in my disability case. Not saying you'll end up on disability. I'm just trying to help you to not take it so personally. There are jerks out there who don't get it and they don't want to. Your boss sounds like one of them. Can you talk to the teacher's union? Maybe they can offer you a way to protect yourself. In the meantime keep your chin up.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 7/30/2008 6:21 PM (GMT -7)   
Hi I know people who have had very good results with Imuran and have been in remission for many years. Hope you get the work part of your life going a little better. Sometimes things do get better with our condition. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


Bane
Veteran Member


Date Joined May 2007
Total Posts : 589
   Posted 7/30/2008 9:27 PM (GMT -7)   
this reminds me of the story someone told about parking in the handicapped spot and getting chewed out by some random self righteous jerk- and then collapsing and going to the ER.

anyway, as far as feeling like a trial-and-error science project, well, sadly thats the only effective way to determine what treatments work best for your particular flavor of crohns, at least that i know of.

As offensive and hurtful as it is to endure, unfortunately, stef is right. people that do stuff like that are 99% of the time not trying to be mean, they just havent taken the time to look at it from your perspective. i lost my job because i missed a week of work. but i couldn't blame them, because i had seen what happened when people skipped work, regardless of the reason. there were a couple days where one of my coworkers was sick, another was on leave, and i was the only one used to working at that station there. it slowed us waaay down. I got lucky though, because despite the end result, the people involved were very kind about it.

That being said, just because their concerns may be justified (or in your case not), doesnt mean their method of expression is.
20, Male, diagnosed over Christmas Break of my Junior year in High School. BEST CHRISTMAS EVAR LOL

(not really)


kgirlie
Regular Member


Date Joined Jan 2008
Total Posts : 101
   Posted 7/30/2008 9:40 PM (GMT -7)   

Thanks, that does make me feel better. My mom keeps telling me to let it go, and for my health I will. I will take note of it and then I will put my notebook away and let it go. I am starting to think the stress from her is one of the reasons I was soooooo sick last year, and it WILL NOT happen again. You guys made me feel so much better. I do understand her point of view, I was about to go into adminisration, BUT all teacher have to take a sensitivity training to familiarize ourselves with diversity and I think she should have to do the same. I will file under ADA, I will lay low at work, but I will not stop fighting for my students rightws and my rights. I will pick my battles, but I do need to remember that I am good at what I do and if my students are making the gains and I am still passionate about my job and healthy enough to do it, then I will be okay. I am glad I see my counselor this week because that will help with helping me learn to relax. This disease is so scary and tiring, but I am finally learning how to deal with it day after day. A big part of that is my HW family. Again I thank you guys so much. I know I will finally get a good nights rest.

Kgirlie


Kgirlie
 
27 year old female dx with CD in 2001. Pentasa 4 g/day, Prednisone 30 mg/day, Lexapro 10 mg/day, Wellbutrin 150 mg/day, Remicade, topamax, nadalol, Maxalt 10 mg as needed. Mother of son, 3, and daughter, 10 months.  

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