I'm losing it today... sorry to vent...

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patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 7/31/2008 8:48 AM (GMT -7)   
I'm 12 weeks pregnant. I was FINE before I got pregnant. Now ALL HECK has broken loose... LITERALLY! I have a permanent abode on the camode. I have internal hemmies that are bleeding like the dickens. My bowels wake me up ALL NIGHT long. I had a round of fevers in conjunction with my violent bowel movements last night. Most of the time all that I pass is little tiny pellets of mucus and blood, so it's not exactly "gratifying" trips to the toilet here... but the urgency and spasms are unreal! AAAAAHHHHHHHHHHHHHHHHHHHHH!

Why can't I just be constipated like EVERY OTHER pregnant woman on the planet!!!!???!!!!

"Call my GI" people will tell me. My GI is USELESS. He put me on anti-depressants without telling me that they were anti-depressants. Talk about destroying the doctor-patient relationship!

A new GI will not want to deal with me because I am pregnant. Either that, or he'll want to put me on Prednisone, which I really think WOULD put me over the edge right now. Not to mention the fact that I want nothing to do with Prednisone when I'm NOT pregnant, let alone when I have another little human inside me to be exposed to that evil crap. (Yes, I realize it is a necessary evil for some because it really helps, but I am not one of those people... hopefully some of you know what I mean and the rest won't be offended).

I have a call into a local "CAM" doctor... some sort of experimental/alternative type guy... but I had to leave a message. Hopefully he can help? I'm REALLY hoping that he'll be willing to prescribe LDN. If not that... maybe he can run some type of stool sample to see what the heck is going on down there...

Sorry to dump on you guys... but you know how it is... some days you just want to flush yourself down the toilet along with all the crap! It's just one of those days. Being hormonal doesn't help. My poor husband has no clue what to do with me right now because I never get like this.

I just want to have a healthy baby. If I keep spiraling out of control at the rate I'm going, I don't know if that will be possible! Wish me luck with the new doc... hopefully he will call back soon...
26f, dx'd CD July '05 after 6 fistula/abscess surgeries
No current chronnie meds, but I've tried just about all of 'em!
Digestive enzymes, and probiotics only.

And, I'm pregnant with my first baby! Due around Valentine's Day. :-)

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."

~Marianne Williamson


Stef17
Veteran Member


Date Joined Feb 2003
Total Posts : 1811
   Posted 7/31/2008 9:42 AM (GMT -7)   
((((((((((((HUGS))))))))))) Ok, so have you decided on the LDN, then? If you can't get the CAM doctor to prescribe it, what is your next option? Have you thought about Humira? I'm not trying to be pushy. I just want to help. Because I was totally in your shoes and the Humira is the only thing that saved me.

Do you have any other options for a new GI in your area? Anyone who is seasoned and been around the block a few times? If you can find a more seasoned doc, they're not going to even blink that you are pregnant and flaring. They're going to go into "scientific-let's-assess-this-and-fix-it" mode. That might really be your best bet.

When is the last time you went to the OB? How is baby doing so far? I know you're going to the bathroom a lot, but are you able to keep food down? Are you staying hydrated?

Sorry if it sounds like I'm badgering you. I'm not. I'm just concerned. Really concerned. Hope you're doing ok. Feel free to email me if you want.

Stef

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 7/31/2008 10:03 AM (GMT -7)   
Has Naltrexone been studied in pregnant women? I know you don't want prednisone, but at least it's the devil you know.
Dx'ed in 1999. No surgeries.

Current meds: 75 mg 6MP. 10mg prednisone (trying to taper). Udo's Choice Probiotics (30 billion).


patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 7/31/2008 3:45 PM (GMT -7)   
Update:
Right after I posted this, I had a bowel movement with no stool, just a huge blood clot. I freaked. I called my Colo-rectal guy - he said go to the ER. I freaked some more. I called my GI. He said go to the ER. So I went to the ER. They couldn't do an anal scope because of the strictures in my butt from all the surgeries. My bloodwork was fine. They gave me some fluids and sent me home. WHOOPIE! I love expensive liquid snacks!

Based on my own research - I believe that I have an internal thrombosed hemmie, brought on by a pregnancy induced flare.

I have an appointment with the LDN guy on Monday morning. I have an appointment with a NEW GI on Aug. 12th. Hopefully between the two we will figure something out! Be it LDN, be it Remicade, be in Humira... I do not know.

In the mean time, I am going to spend a lot of time on my belly rather than my butt, and switch to a liquid-only diet for a few days to give my bum a rest.

- I answered Stef's post via e-mail.

- Rider fan - there has been one study that I have found that administered 50 and 100mg doses of LDN to pregnant and nursing mothers with no ill effect. Obviously one study alone isn't enough to "bank" on. I'm hoping the alternative doc on Monday will have more info for me to read before I make the call.

Thanks for reading, guys. I know it was a hard post to respond to! I'll try not to get all crohnie AND hormonal on ya again.
26f, dx'd CD July '05 after 6 fistula/abscess surgeries
No current chronnie meds, but I've tried just about all of 'em!
Digestive enzymes, and probiotics only.

And, I'm pregnant with my first baby! Due around Valentine's Day. :-)

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."

~Marianne Williamson


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 7/31/2008 3:49 PM (GMT -7)   
Hi Are you taking anything for your hemmie? Sure hope this gets better soon for you. Just wanted to say be careful of Dr's that aren't GI's they aren't specialist. What about your GP ? Keep in touch and let us know what is going on with you. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


songstress
Regular Member


Date Joined Jul 2005
Total Posts : 393
   Posted 7/31/2008 4:18 PM (GMT -7)   
normally, the baby will be fine....they suck all your nutrients and you feel ill, while the baby is normal...only in EXTREME cases is the baby malnourished

do what I did....demand a HIGHRISK OB and then even if you feel terrible, you make sure your precious bundle is A-OK.....good luck...I will pray for you that you feel better soon!

Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength

Diagnosed with severe Crohn's colitis in May 2005--spread to ileum and small intestine as of April 2008. Have taken Imuran, Remicade, TPN, Colozal, Entocort, Flagyl, PamineForte, Cipro, Dicyclomine, Prednisone, Asacol, Prevacid, and the list goes on. Currently on Humira every 2wks, 40mg Pred, Pentasa.

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