so how are things with the new people on remicade??

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lalalaCD
Regular Member


Date Joined Jul 2008
Total Posts : 36
   Posted 7/31/2008 1:24 PM (GMT -7)   
in the last couple blogs i wrote how i was going to be getting my 1st remicade injection soon and a couple of you said that you were also going to get yours within the last week?? how did it go...anything for me to worry about for when i go get mine??it was just apporoved with my insurance today! let me know love ya all!
 
         
 
 
 
 
                     Diagnosed Aug 2007 of crohns disease
                     Currently Taking 6mp (soon remicade)
               panic/anxiet attacks...not on meds for them
                               Fistulas make me mad!! lol
                                   


ImaKeeper
Regular Member


Date Joined Nov 2007
Total Posts : 51
   Posted 7/31/2008 3:37 PM (GMT -7)   
I will tell you the one thing that everyone told me, stay calm dont let yourself panic over the what ifs, when I had my first infusion I was in tears I was so afraid of what might go wrong, well my nurse hooked me up and just talked to me about whatever just to get my mind off of it, and it all went fine.  I will be going for my 4th treatment in a little over a week and I just watch tv while im there or bring my laptop and just relax, oh and dont listen to others say just take a nap..they check your vitals about every 15 minutes so just bring something to take your mind off of it...good luck scool scool

currently taking

pentasa, hyocosamine, zofran, acphix and started Remicade back in May


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10392
   Posted 7/31/2008 3:42 PM (GMT -7)   
I've been on Remi for almost two and one-half years for ulcerative colitis. I find my infusions very relaxing, and have never had any problems with them. I take my laptop or a book and surf, read or sometimes take a nap. After the first few times, they take your vitals every 15 minutes only for the first hour, then when the infusion is finished, so you can rest.

Hope it helps you as much as it has me.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


Angela101
Regular Member


Date Joined Mar 2005
Total Posts : 79
   Posted 7/31/2008 3:46 PM (GMT -7)   
I have been on Remicade for 6 months and the only warning I have is that it may take time to kick in.
I had been told I would 'instantly' feel better - and it took about 3 months before I started to notice a difference.
Once you get through the first infusion you will realize how easy and relaxing it can be...
Good luck!
Dx/ed October 2003,
April 2004 - Surgery - 2ft of small bowel removed
Feb 2007 - Surgery again and a temporary ileostomy
Present - on Remicade waiting for surgery to reverse the ileostomy - Health Care System in Canada sucks - wait list is 6 12+ months.
 
 
 


br4d
Regular Member


Date Joined Feb 2008
Total Posts : 71
   Posted 8/1/2008 7:06 AM (GMT -7)   
i had my first infusion 2 days ago. haven't noticed anything yet, but i'm not really expecting to see (feel) any results for a while. the infusion went fine though. brought my laptop and used the hospital's wifi. time flew. :)
.:brad:. 23 year old male from PA.

diagnosed with crohn's disease in april 2002 during surgery for obstruction
meds: 10mg prednisone, tapering. starting remicade july 30th. no more 6MP.


RK
Regular Member


Date Joined Oct 2006
Total Posts : 153
   Posted 8/1/2008 9:47 AM (GMT -7)   
Had my 2nd infusion last week and all signs of my r/v fistula have disappeared. I feel so much better. Haven't had any problems yet. The infusions were easy and like everyone else, I either read or took a nap. Actually, the only problem I am having is that for the first time in 7 years I'm gaining weight!! All the food is actually staying in my system long enough for me to absorb everything. A sign of health I think?

32-year-old female diagnosed with CD in 2001.
Currently taking Pentasa 1g x 4 times daily. Started Remicade July 2008.

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