made it through my first colonoscopy!

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closure
Regular Member


Date Joined Jul 2008
Total Posts : 471
   Posted 7/31/2008 7:42 PM (GMT -7)   
First of all I want to thank you all again for all you've done for me over the past month while I've waited for colonoscopy. All of your advice and experiences have really helped me.
 
So I had my colonoscopy today. Like most everyone has said the prep was by far the worst part of the whole thing. I did the miralax prep with ducolax. The miralax part was nothing. Obviously I was running to the bathroom like crazy, didn't make it once, but was in no discomfort what so ever and I wasn't nauseated or anything from it. Then an hour after I was done with the miralax stuff I was supposed to take 4 ducolax. So I did. Oh my! I was in so much pain for hours after that. Severe cramping like you wouldn't believe. My poor butt was so sore from wiping so much too...like burning pain. Anyway I don't have to go into how the rest of the night was because obviously most of you know pretty much lol.
 
Today I went to the hospital, they got me in pretty quick. The doc that was doing the scope was a doc I had never met. I only met with the practice's physician's assistant because it was an emergency appt to get my colonoscopy scheduled. The office said I probably wouldn't get to talk to the doc at all before or after my procedure which I wasn't happy about at all. I sucked it up and made a list of all my concerns for my boyfriend to talk to the doc about after the procedure. Luckily the doc did come in to talk to me beforehand because he knew nothing of my case, but a very general description. "change in bowel movement, rectal bleeding". his plan was a normal colonoscopy, basically just look and remove anything that shouldn't be there. Once I told him what was really going on he said he would biopsy various parts of my intestines thank goodness. I finally felt more comfortable. Then they did the IV started the drugs...I was still awake. The doc came in again to do the procedure...still very awake. Waited a couple of minutes and I finally asked if I should be feeling anything yet. At this point apparently they had already put in double what they do for other patients lol. So they put a little more in and still nothing so there was no more waiting...we were doing this fully awake. Did the whole scope and was in no discomfort whatsoever. The only thing that hurt was my poor rubbed raw from toliet paper bumhole (as I've seen others refer to it lol). He couldn't find a cause for my bleeding, found one small polyp, and did 6 or 7 biopsies of different areas just in case. I talked to him during the whole thing because I wanted all of my questions answered plus it helped keep my anxiety down to know exactly what he was doing. I think I was starting to talk too much though...just a vibe I was getting...so I quieted down a little after I got my answers lol. Obviously I remember everything.
 
So off to recovery I went fully with it. The one nurse asked the one who helped with my procedure how I did and she just said "she was fully awake for the whole thing" then the nurse who asked told me "you're supposed to take the free nap". lol. I don't think medicare would agree with the free comment. My boyfriend got to join me in recovery and was shocked by how well I was doing. Another woman was soon rolled in and was asking the nurses where she was and if they did her procedure yet...I looked at my boyfriend and said, "see that's how I'm supposed to be!". Oh well. Anyway it went very well and now I just wait for my results in a week to two weeks. If nothing shows up and I'm still sick, which I probably will be since a colonoscopy isn't going to cure anything, I have to go for an endoscope. I hope they use different sedation or whatever because I really don't want to be awake or remember that! That totally scares me more than a colonoscopy. So I'll keep you all updated. I've been home for over 7 hours now and no problems. A tiny bit of bleeding, but that's what I was told would happen so no worries.
 
Hopefully this post makes sense...the drugs hit me a bit after I got home so I've been a bit foggy in the head.
27 female
 
Bipolar, panic disorder, PTSD, PCOS, hashimoto's disease/hypothyroidism, acid reflux, and in the process of being diagnosed with either crohns, colitis, or even lupus...who knows really! the docs sure don't lol. Now possibly even celiacs disease!Lots of tests coming up so hopefully I'll know more soon. Too many meds to list!


CrohnieToo
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Date Joined May 2003
Total Posts : 9448
   Posted 7/31/2008 8:01 PM (GMT -7)   
Wow! You lucky! Did you watch the screen at all? Yeah, my gastro has had to tell me once or twice to shut up so she could concentrate on what she was doing. In fact, one time telling me to shut up unless I liked pain! :-)

Darn! I was just reading today, someone who had had the upper endoscopy w/no sedation and he/she said that whatever it was they used to spray his/her throat, he/she had NO gagging!!! Man! I could go for that stuff whatever it was!! On the other hand I have a real strong gag reflex so who knows if it would work for me or not? *sigh*

Anyway, glad to hear the prep is past, the scope is done, and .... now the wait. *sigh* Don't you just HATE the wait?

Oh, about that Dulcolax overkill. I get HOR-EYE-BULL cramping from that stuff too. I just laughed the first time my gastro gave me prep instructions w/the 4 Dulcolax requirement. No way in heck, I told her, no way in heck! 2 made for bad enough cramping. Now I don't use it at all. I'm running clear w/o it so I just keep drinking the clear liquids up until NPO time to keep rinsing and flushing the old GI tract.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


CrohnieToo
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Date Joined May 2003
Total Posts : 9448
   Posted 7/31/2008 8:06 PM (GMT -7)   
I just went back and read that upper endoscopy post. The stuff his/her throat was sprayed w/was Cetacaine.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


closure
Regular Member


Date Joined Jul 2008
Total Posts : 471
   Posted 7/31/2008 11:46 PM (GMT -7)   
thanks crohnietoo! yeah I was totally considering cutting back on the ducolax because the first thing that stupid box says is "stomach discomfort and cramping may occur". like I said they are NOT lying!!! I did what I was told though because it was my first time, but before I even did the ducolax stuff everything was clear coming out from the miralax. keep in mind I had diarrhea 5 times that day before I even started the prep so I was already on my way to being clean. oh well. if I have to do it again and I have the same doc, which I will request because he was great, I'm going to ask if maybe I could just do 2 ducolax or none if possible. I know one thing for sure if I ever do get constipated, which is never the case, I'm using miralax. a whole bottle of that stuff and no cramping or anything so I know a little capfull of the stuff will be fine.

if they say they're using the same sedation stuff they used on me today if I have the endoscopy I'll ask about that spray. I know going down would be bad, but I think having that thing come out all the way from your small intestine would be worse! again a procedure I've never had done so I don't know how bad it really is, but I gag from brushing my teeth sometimes and hate it lol.
27 female
 
Bipolar, panic disorder, PTSD, PCOS, hashimoto's disease/hypothyroidism, acid reflux, and in the process of being diagnosed with either crohns, colitis, or even lupus...who knows really! the docs sure don't lol. Now possibly even celiacs disease!Lots of tests coming up so hopefully I'll know more soon. Too many meds to list!


closure
Regular Member


Date Joined Jul 2008
Total Posts : 471
   Posted 7/31/2008 11:48 PM (GMT -7)   
oh and yes I watched the screen the whole time. definitely something different lol. I got to see the polyp and all the areas they took for biopsy. it was cool.
27 female
 
Bipolar, panic disorder, PTSD, PCOS, hashimoto's disease/hypothyroidism, acid reflux, and in the process of being diagnosed with either crohns, colitis, or even lupus...who knows really! the docs sure don't lol. Now possibly even celiacs disease!Lots of tests coming up so hopefully I'll know more soon. Too many meds to list!


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 8/1/2008 7:15 AM (GMT -7)   
Well, they routinely spray your throat before starting the upper endoscopy. I'm just not sure what spray they use for me - that doesn't stop my gagging. But I'm gonna ask and gonna mention the Cetacaine.
 
They only go to the beginning of the small intestine w/an upper endoscopy. Its not that far. Unless what they are talking about is Enteroclysis. Or the double balloon endoscopy. Removing the scope is much more comfortable than going down. Same was w/the colonoscopy. More comfortable coming out than going in.
 
As for the Dulcolax: I don't ask, I just don't take. The docs have no way of knowing what you used to clean out with, they only know if you are clean or not.


Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


indigosunrise
Regular Member


Date Joined Nov 2007
Total Posts : 497
   Posted 8/1/2008 11:02 AM (GMT -7)   
Did the scope hurt at all, with being awake?

I read that my health insurance doesn't want to cover the anesthesia for colonoscopies anymore...that has me a little bit worried!

I was completely out for mine...I don't remember anything!

MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 8/1/2008 11:49 AM (GMT -7)   
A colonoscopy is actually not that invasive a procedure. I have had a half-dozen with no meds at all and the worst discomfort I ever experienced was the equivalent of a moderately uncomfortable gas pain, and that only for a few seconds. It is uncomfortable, like bloating and an occasional bit of pressure when the scope turns corners, but not really painful. I know that in women who have much more complex abdominal anatomy and in those with bad inflammation at the time of the procedure it can and likely would be more uncomfrtable, it's still not like undergoing surgery without anesthesia or any other horror story. And there are no sensory nerves in the bowel wall so biopsies and polyp removals are entirely painless. I'm not suggesting that anyone forgo the meds if that is your choice, but the fact is that having a colonoscopy without sedation is far less uncomfortable than most dental work and nowhere near the ordeal some think it would be. Even with mo meds, the prep is still a lot more hassle than the procedure. My GI told me at my last scope that only about one out of 100 patients opt for no meds, but that they almost always do fine and that he has had his screening scopes done med-free for years himself. In fact if you google colonoscopy without sedation you will find some clinical studies where sample populations reported that most would do it again med-free after experioencing it and most rated pain and discomfort as minimal or at worst moderate.

closure
Regular Member


Date Joined Jul 2008
Total Posts : 471
   Posted 8/1/2008 12:16 PM (GMT -7)   
MikeB described it quite well. The nurse was telling another patient before we went in about how the discomfort level also differs depending on your doc. We were all sitting in rooms waiting for our tests and you could hear all the convos. She was telling the nurse she was nervous because she woke up during a previous one and it was kind of painful. The nurse said it could've just been the amount of air they were using. We, me and the other patient had different surgeons performing our procedures, but when I got back to the recovery room she was already gone so she must not have done too bad.

I think my doc used just the right amount of air because I really wasn't in much discomfort at all. It mainly felt like pressure...nothing painful. Like MikeB said...the biopsies and polyp removal were completely painless. I watched them do it all and so I knew when it was coming and still didn't feel anything. The cramps from the prep the night before were WAY worse than the procedure. I wish I could've been put out for that lol! The only discomfort I had is what I already mentioned...where I was rubbed raw the night before from all the wiping. When I have to do it again in the future, the procedure that is, I might just say no to the sedation since it did nothing for me. I mean why get pumped with all those drugs to be wide awake for the whole thing anyway? All it did was make me feel kind of dizzy for the rest of the night and that didn't hit me til after I left the hospital.

So here's my update for today. The diarrhea is back full force, but no bleeding anymore from the procedure. There was a tinsy bit of bleeding last night, but that's all. My regular rectal bleeding comes and goes so that's why I'm pretty sure the bleeding last night was just from the procedure...I haven't had any rectal bleeding for a few days before that. Which is probably why he couldn't find a reason for the bleeding. If I get bad again though hopefully they can get me in sooner so he can see the source of the bleeding. I'll be sure to give an update when my results come back. I'm hoping they find something because then I won't have to go through anymore tests and they can help me, but I obviously hope it's nothing serious.
27 female
 
Bipolar, panic disorder, PTSD, PCOS, hashimoto's disease/hypothyroidism, acid reflux, and in the process of being diagnosed with either crohns, colitis, or even lupus...who knows really! the docs sure don't lol. Now possibly even celiacs disease!Lots of tests coming up so hopefully I'll know more soon. Too many meds to list!


indigosunrise
Regular Member


Date Joined Nov 2007
Total Posts : 497
   Posted 8/1/2008 3:01 PM (GMT -7)   
That is good to know, just in case my insurance does decide to no longer cover sedation!

Thank you!

FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 8/1/2008 3:25 PM (GMT -7)   
Hi Closure,

I'm glad you had such a good experience. I was out from the sedation but like you, the sedation did not work AT ALL for my hubby. However, he said his was very very painful and he could feel the biopsies. So, hopefully if he ever has to have another it can be like yours or Mikes. However, his doc suggested he do general anesthesia instead of conscious if he ever goes in again. Novicaine also does NOTHING for him so he has to have ntirous.
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


closure
Regular Member


Date Joined Jul 2008
Total Posts : 471
   Posted 8/1/2008 3:43 PM (GMT -7)   
hmm...interesting. I guess it's just a different experience for everyone. sorry for your hubby. I'm just so thankful it turned out the way it did for me. if I would've been in severe pain or something we probably would've stopped after the first biopsy or they'd be knocking me out before they continued. the nurse was telling everyone that it's their body and if you're in pain and want them to stop just say stop. obviously I kept this in the back of my mind and luckily didn't need to do it, but would've tried to suffer it out if I was in pain because I want a diagnosis so bad...can't get one without a test being completed, but hey if you can't take the pain definitely say something. you're not there to be tortured.
27 female
 
Bipolar, panic disorder, PTSD, PCOS, hashimoto's disease/hypothyroidism, acid reflux, and in the process of being diagnosed with either crohns, colitis, or even lupus...who knows really! the docs sure don't lol. Now possibly even celiacs disease!Lots of tests coming up so hopefully I'll know more soon. Too many meds to list!


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 8/1/2008 10:10 PM (GMT -7)   
Wow, fully awake. No way! I woke for a minute during a scope, and yes I had PAIN. IMO it is an invasive procedure, and just inhumane for the most part. LOL Something they really should knock people all the way out for.

Glad you made it through with no pain. I'm having a hard time even agreeing to another one since waking up with that last one.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapering down again at: 6mg now, Asacol, Questran, Toprol XL (for high blood pressure).


rootsmith
Veteran Member


Date Joined Jan 2004
Total Posts : 598
   Posted 8/2/2008 8:31 AM (GMT -7)   
I've had 3 colonoscopies. The first one my doc told me afterwards that they gave me extra meds (which I think was demerol) which put me out completely because "I was letting them know" it was painful. I'd rather not think about how I was letting them know LOL Don't remember a thing for that one. I later found out from a laparoscopy that my sigmoid colon was stuck to my right pelvic wall. No wonder I had pain, he must have been poking my intestinal wall trying to go left when it was going right.

The second one different doc used fentanyl and versed. I remember parts of it and conversations in the room. He took several biopsies and it felt like I was frying.

The third one was done by another doctor who used propofol and versed. I was in and out and once again, biopsies felt like he was frying my mucosa. I remember yelling ouch. I was told by this doctor that I had a very "loopy" large bowel. I also learned that a female's large bowel is typically longer than a male's. I wonder if that is to allow for the expanding uterus during pregnancy.

When my husband had his first one everything worked the way it is supposed to- he watched the entire procedure on the monitor and the doctor explained it to him. He tells me that he doesn't remember a thing that took place during subsequent scopes. He's had polyps removed and never has pain, or if he does, doesn't remember it.

I also had an upper endoscopy and my experience was that I don't remember a thing about the beginning of the procedure after the nurse sprayed the local anesthetic. I do remember parts of the procedure though and conversations. I remember it sounded as if the nurse was screaming H. Pylori and sure enough, they did a biopsy which was positive. Don't remember the scope being pulled out but awake and sitting up when they wheeled me out of the room.
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin, sertraline, lyrica, 10mg prednisone, methotrexate    

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