bumping back up on pred

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westat
Regular Member


Date Joined Jun 2008
Total Posts : 167
   Posted 8/1/2008 9:41 AM (GMT -7)   
I am sooo disappointed. I was down to 2.5mg after 6 months. I was doing so well since starting Imuran too. Better than I felt in years, though I was still on low residue diet. I tried a couple days of ensure and other liquids and still had the pain and bad D.
GI said to go up to 10 mg again for atleast a month, then we will try weaning again.

I hope this small bump will be all I need.

I was so excited too. I only had 3 more days of the pred. SUCKS SUCKS SUCKS
Dx with Crohn's in 1997 after 5 years of worsening symptoms.
Resection a few months after dx after 1 month on TPN and IV steroids.
Also have severe asthma.

Tried: Pentasa, Cholestyramine

Presently taking: 3.2 grams Asacol, 150 Imuran (just started June 08), down to 2.5mg predisone, probiotics. For asthma I take Advair 500, singulair, arieus


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/1/2008 9:56 AM (GMT -7)   
(((HUGS))) I know how frustrating it is to have to go back on a medication we hate so much. Hope this wean goes more smoothly.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 8/1/2008 3:40 PM (GMT -7)   
I'm sorry!!! (((Hugs))) I'm having a little hard time coming down too. I'm down to 15mg but not doing great so not sure
I will be able to come down next week to 10mg.
Living with Crohn's Disease since Jan./2000 but had a few years prior
I'm a true Crohnie with IBS and Arthrities too
 
Meds I have tried:  Too many to list- LOL
Meds currently on:  Prednisone 15mg tapering
                           Methotrexate injections once a week 25mg
                           Folic Acid 5mg once a week
                           Wellbutrin twice a day
No Surgeries
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 8/1/2008 5:34 PM (GMT -7)   
Hi Don't worry about it perhaps your body just isn't ready yet .Although I understand your disappointment. The month will go fast. The Imuran working for you sounds great.I goota love low residue it is still keeping the tears away for me .Hang in there you"ll get your way down. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2687
   Posted 8/1/2008 9:46 PM (GMT -7)   
I'm so sorry. I know how you feel. I got down to 2.5 as well, but I started having withdrawl symptoms. Had to also go back up to 10 mg. I'm down to 6 mg again, and going down to 5 mg on Sunday. Really hoping this slower taper works this time. Hope you can get off it too!
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapering down again at: 6mg now, Asacol, Questran, Toprol XL (for high blood pressure).


westat
Regular Member


Date Joined Jun 2008
Total Posts : 167
   Posted 8/2/2008 5:05 AM (GMT -7)   
Thanks for the encouragement everyone. I guess it juts caught me off guard because everything was going decently. I was only dropping by 2.5 mg every 2 weeks too. I was so hopeful, especially since the dr suspects by burning spine pain may be related to the pred.

But atleast it is only going to be 2 or 3 months by the time I am done tapering again
Dx with Crohn's in 1997 after 5 years of worsening symptoms.
Resection a few months after dx after 1 month on TPN and IV steroids.
Also have severe asthma.

Tried: Pentasa, Cholestyramine

Presently taking: 3.2 grams Asacol, 150 Imuran (just started June 08), back to 10mg predisone, probiotics. For asthma I take Advair 500, singulair, arieus

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