Vicky - your last comment about the FMLA form...oh my gosh! The trouble I went through to get my doc to fill them out properly, haha! I finally ended up going to his office with the form and post-its attached next to every question (with the appropriate answers on them). I told them "it's okay if he's busy, I'll just wait" and sat down, and waited.
I do have a hard time working a full-time job. I so wish I could be at home, but with kids and a mortgage I HAVE to work. Fortunately I have a very supportive manager. Most days I get in 30-60 minutes late due to my extreme fatigue and/or pit stops along the way. I never know if it will be a "good day" or a "bad day". So far things have been okay, this unspoken flexible schedule I've been keeping. But I had an unexpected meeting with him yesterday and although he's cool with my absences, I don't think his boss is. Yes, I know I'm on FMLA and my job is protected that way, but if they want to get rid of someone they can usually figure out a reason. He said they are concerned and want to find a way to get me better (allowing me to be here and do my job consistently). I just shook my head and tried hard not to cry. They don't get -- I won't get better. This is my life
So, all of a sudden I'm very concerned about my job. It's tough. My sympathies go out to you Julie. (((hugs)))
Diagnosed with CD in 1994;
Have being treated with Chinese herbal medicines for over 10 years.
I struggle working full time and I do not have an understanding boss. I am a teacher, so I need to cover my class during emergencies, but my fellow teachers are wonderful. I figure if my boss tries to get rid of me then I will call the union and show them my documentation on her discrimination against me. I have to agree we wil not get "better". My boss said the same thing. I miss about one day a month and she says it is too much. So, this year I will go in with D, barfing, and all the other crazy things, but I have no respect for her and I will continue to fight for my rights as an American. One day I am sure she will be sick and then maybe she will realize it is hard everyday. She told me that at least I have options. She said it's not like cancer. I have more medication choices. I was shocked she was comparing CD to cancer. It is not the same thing. Good luck with work. During the week I end up going to bed about 6:00 pm and sleep until 6:00 am. That seems to help me.