Has everyone with CD had all the tests done?

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LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 8/2/2008 7:39 PM (GMT -7)   
Has everyone with CD not only had a colonoscopy, but the CT scan, small bowel scan,
the pill scan, and whatever else I may be missing, done??  My GI has never done anything on me but a colonoscopy.
With all the reading I do here, it seems like a lot of you have had a lot more test
done than just a scope.  I often times wish my GI would check other areas on me
as well just to make sure they are clear of things. Maybe because I have such a mild case of CD
he feels there is no need. But sometimes I think I would just feel better knowing it isn't in other
area's as well.  I wonder if I expressed my concern with him if he would do other tests?
Living with Crohn's Disease since Jan./2000 but had a few years prior
I'm a true Crohnie with IBS and Arthrities too
 
Meds I have tried:  Too many to list- LOL
Meds currently on:  Prednisone 15mg tapering
                           Methotrexate injections once a week 25mg
                           Folic Acid 5mg once a week
                           Wellbutrin twice a day
No Surgeries
 


vadreamer1
Regular Member


Date Joined Aug 2006
Total Posts : 196
   Posted 8/2/2008 8:22 PM (GMT -7)   
Yes. All of that twice - plus the stool samples on numerous occasions.

randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6050
   Posted 8/2/2008 8:25 PM (GMT -7)   
at least a dozen of each except the pill cam. no need,,, can see all the way with scopes :0).
randynoguts 



     http://www.geocities.com/randynogutsweb/


lilturbo
Regular Member


Date Joined Feb 2008
Total Posts : 298
   Posted 8/2/2008 8:41 PM (GMT -7)   
I've had all tests possible done. The only test that actually confirmed that I had Crohn's was the capsule endoscopy. At first my GI thought I had UC based off of my colonoscopy, but the capsule endoscopy showed that it was actually Crohn's. Good luck!
turboemma.blogspot.com/


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 8/2/2008 9:23 PM (GMT -7)   
I had all those tests (except the pill) along with MRI and CTscan within the first few weeks of my DX. yes, I think more tests are in order for you. yp
49 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 8/2/2008 9:35 PM (GMT -7)   
I had the whole gamut including the pill cam. However, the ONLY tests that confirmed my CD were a colonoscopy and the IBD First Step. The IBD First Step is not recognized by some insurnace companies and doctors because it is considered "experimental."
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


indigosunrise
Regular Member


Date Joined Nov 2007
Total Posts : 497
   Posted 8/3/2008 5:30 AM (GMT -7)   
I would ask your GI about getting the pill camera done, seriously. My colonoscopy showed inflammation and ulcers, but my GI said that if you have disease in the small bowel, the treatment is different. My pill cam showed disease in my small bowel and this test probably got me the "official" Crohn's diagnosis.

I believe I also have a mild case of Crohn's and I still have had numerous tests (Endoscopy, Colonscopy, SBFT, Pill Camera, and what feels like about 1,000 blood tests).

I would ask about at least getting the pill camera done.

Best of luck and let us know how it goes!

-Nicole

Texan with Crohn's
Regular Member


Date Joined Dec 2007
Total Posts : 362
   Posted 8/3/2008 6:32 AM (GMT -7)   
LBJ -
I have had everything but the pill cam due to diverticulum in ilium. The first CT scan showed CD then after that none of the remaining tests showed CD. This illness is different for everyone and CD just loves to hide. I am at the point where I am giving up on GI specialists because I am tired of all the expensive tests and blood work being done.

hydrangea
Regular Member


Date Joined Mar 2007
Total Posts : 190
   Posted 8/3/2008 8:27 AM (GMT -7)   
I was diagnosed with colonoscopy with a biopsy. My gi said that was the only really true diagnoses.

42 yr old female diagnosed in January of 07, asfter being sick for a while.  pentasa 500mg 4 times a day. probiotics,
prednisone (evil) 50 mg a day. Imuran 20 mg a day.
andibiotics.
 


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 8/3/2008 9:06 AM (GMT -7)   
I haven't had the pill cam yet, but yes to everything else. Probably a few times over.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapering down again at: 6mg now, Asacol, Questran, Toprol XL (for high blood pressure).


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/3/2008 9:29 AM (GMT -7)   
I am not sure if I am off base here, but you know you have Crohns already because of the c-scope. I have had many tests done over my life with Crohns, but some of the initial tests were to see what was wrong with me and I got the diagnosis of Crohns. Most of the other tests that have been done have been done at a time that I was having a new flare and symptoms and they were researching if I had a blockage. So you have been diagnosed via C-scope, what more do you want to test for? Are you having other symptoms that you think you need more tests? Are you not being controlled with your medications? If I don't need tests ran, I know my diagnosis, and am having no other problems, my question is just becuz others have had tests, why do you feel you need more tests? Just curious. Not trying to be argumentative, just trying to understand your questions.

God Bless,
Gail *Nanners*
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 8/3/2008 4:08 PM (GMT -7)   
I'm with Nanners - I see no need for additional testing if a dx was made and the treatments for it are working.

I was dx by a CT scan and a colonoscopy. I have had a small bowel scan done while in the hospital last time so they could locate what the issue was. Have had no other tests done, and no need to right now.

LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 8/4/2008 4:57 AM (GMT -7)   
I'm still having issues so yeah this Methotrexate isn't doing too well on my stomach. Its helped my joint issues but that's about it.
I have been able to get down lower on the prednisone this time but this week I'm suppose to lower to 10 and I don't see it happening.
I have to call doc today. :-( 
I'm not saying I feel I have to have other tests because everyone else has, I was just trying to see how many have had other
tests done other than just a scope. (Hope this makes sense)


Living with Crohn's Disease since Jan./2000 but had a few years prior
I'm a true Crohnie with IBS and Arthrities too
 
Meds I have tried:  Too many to list- LOL
Meds currently on:  Prednisone 15mg tapering
                           Methotrexate injections once a week 25mg
                           Folic Acid 5mg once a week
                           Wellbutrin twice a day
No Surgeries
 

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