What on earth is happening to me?

New Topic Post Reply Printable Version
27 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 8/4/2008 10:27 AM (GMT -7)   
Okay...where to begin?

If any of you have any idea what this might be please, any advice is welcome. I'm trying to call the GI office but can't get hold of any real people right now, and I need answers.

I've been on a liquid diet for nearly two weeks now because ANY solid food is excruciatingly painful to pass through my system. I even tried very soft, mashed up baby food and still had trouble. It especially hurts when it hits the lower abdominal area, and I can hear my body making angry noises.

Right now my stool just looks like blood and/or a lot of very dark particles; probably from the ensure and boost energy drinks I'm using just to get calories in my body.

The only thing keeping me able to do anything is the ultracet painkillers I am taking every 6 hours.

I can barely get my fluids down and I'm just passing it anyway...I can only stay awake for about 2-4 hours a day and the rest is spent sleeping or losing more blood and fluid. I'm 5'5 and down to about 95 pounds. I'm just very concerned and wondering if any of you have gone through this and know what it sounds like. I'm thinking maybe a stricture or...I'm not even sure. All I know is that I am STARVING and can barely function(even talking is difficult. don't even get me started on walking just to the bathroom...). I'm just very afraid right now and am exhausted almost already just from sitting up writing this. Please, any input would be appreciated. I'm tired of being in pain and my next appointment is still a week away.
20 years old, Diagnosed with severe Crohn's and colitis in May of 2008.
Currently taking prednisone and asacol.
Surgery for ectopic pregnancy in July of 2008.


Sugarmarie
Veteran Member


Date Joined Jul 2003
Total Posts : 1205
   Posted 8/4/2008 10:30 AM (GMT -7)   
Go to the ER now dont fool around.
Confucius say : He who goes to bed with itchy butt wakes up with stinky finger.

Words of wisdom: Never trust a fart

:) Sugarmarie A.K.A. Poopy Pants :)


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 8/4/2008 10:32 AM (GMT -7)   
If I had a way to get there believe me. But it doesn't help that the doctors are just telling me to wait. They've already performed a variety of tests and are simply telling me to wait and see if I can get on humira. If I don't get an answer by tomorrow then I have no choice but to go into the ER(yet again...).

They prescribed pentasa and alinia in addition to my prednisone this past weekend, and I swear I think it's made it worse.
20 years old, Diagnosed with severe Crohn's and colitis in May of 2008.
Currently taking prednisone and asacol.
Surgery for ectopic pregnancy in July of 2008.


irish63
Regular Member


Date Joined Jan 2006
Total Posts : 242
   Posted 8/4/2008 10:33 AM (GMT -7)   
PLEASE go straight to the ER, you are probably so dehydrated an I would be your electrolytes are very low and that is so dangerous. I have been there are I know, you need to go straight to the ER and get someone to drive you.. Please let us know how you're doing.
Dx: 10/04 Crohn's, GERD, IBS,Osteporosis, Depression, Hypokelemia, "Crohn's" Arthritis, Migranes,
Meds: Asacol, Protonix, Lexapro, Celebrex,Potassium, Remecaide,Entocort, B12 injections wkly, Magnesium, Calcium, Phosphorus 
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/4/2008 10:34 AM (GMT -7)   
I agree with Sugarmarie, I think you need to just head to the ER. One you sound as if you are getting anemic, that could explain the fatigue and I am really concerned about the blood loss. Also, if you aren't able to keep anything in you are in risk of getting dehydrated. And yes there could possibly be a stricture. Please do not wait any longer, go ahead and go to the ER. I will keep you in my prayers and please keep us updated.

God Bless,
Gail *Nanners*
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


smile1967
Regular Member


Date Joined Jan 2008
Total Posts : 174
   Posted 8/4/2008 10:36 AM (GMT -7)   
I agree with Sugar, get to the hospital NOW. Keep us posted how you are and good luck. Thinking of you.
  • 41 yr old farmwife!! and mom of boys 11 and 9
  • resection surgery Feb. 2008
  • Pentasa, Entocort (when needed), citalopram,probiotic
 


Writer
Regular Member


Date Joined Aug 2006
Total Posts : 443
   Posted 8/4/2008 10:37 AM (GMT -7)   
Is there a voicemail option at the GI's office for people who have an emergency? That might get you a live person. Or at least, leave another message saying that you believe you need to be admitted to the hospital today, and can they make the arrangements. If you can get a hold of them, that might be easier for you than sitting in a waiting room at the ER since they could arrange for you to be admitted directly. But if there's no way of arranging that, I agree that you may need to call an ambulance. It sounds like you're very seriously ill, and this is too much to handle it home. BTW, the dark particles in the stool might be blood from another portion of the intestinal tract (as opposed to the red of fresher blood).

I hope you are feeling better very soon!

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/4/2008 10:40 AM (GMT -7)   
Call a ambulance if you have no other way to get there. No friends or family who could drive you? You really need to go, don't wait you will only get worse.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


Linn
Regular Member


Date Joined Jul 2008
Total Posts : 118
   Posted 8/4/2008 12:13 PM (GMT -7)   
you should be on IV steroids. it sounds sucky, but it will at least make you feel better. you'll probably not be able to take anything by mouth at all, but you can be sustained on IV dextrose, and if you're in pain, ask for pain meds. they'll understand...i was getting 2mg of dilautid every 3hr for the two weeks i was in the hospital...no one is going to judge you.
24-year old Crohny, dx'd at 16.
Deferred medical school till January 09 because of most recent flare

Currently take:
Tysabri
Pred 60 mg
Nifrex


Bane
Veteran Member


Date Joined May 2007
Total Posts : 589
   Posted 8/4/2008 12:25 PM (GMT -7)   
Dehydration is much more dangerous than you'd think. I passed out in the shower, in part because i was dehydrated, and messed up my back really bad. the chiropractor was able to fix me up, but those moments in the shower of disorientation and pain were some of the scariest of my life. get to the hospital! if nothing else they can get you on an IV for fluids.
20, Male, diagnosed over Christmas Break of my Junior year in High School. BEST CHRISTMAS EVAR LOL

(not really)


closure
Regular Member


Date Joined Jul 2008
Total Posts : 471
   Posted 8/4/2008 1:13 PM (GMT -7)   
I know everyone's been saying this, but you really should get to the ER. Can you ask a neighbor, call a cab, family, anyone to take you? I don't drive so I know the frustration of needing to get somewhere and not having a ride. While you're not the average ambulance patient I would call an ambulance if all else fails. You are in serious condition...I know when I get really bad I still don't feel like I should bother to get an ambulance, but you're bleeding, feeling faint, can hardly walk...just because you might not be in a car accident or whatever you're bad enough for an ambulance. You really need treatment ASAP and don't listen to your GI docs if they tell you to wait it out! I'm not nearly as bad as you, but have been waiting it out for weeks now, but when I get really bad I find a way to the ER and every time I've needed to be hooked up to IVs and stuff. Will be thinking of you. Please keep us updated when you get a chance. *hugs*
27 female
 
Bipolar, panic disorder, PTSD, PCOS, hashimoto's disease/hypothyroidism, acid reflux, and in the process of being diagnosed with either crohns, colitis, or even lupus...who knows really! the docs sure don't lol. Now possibly even celiacs disease!Lots of tests coming up so hopefully I'll know more soon. Too many meds to list!


dietcoke
Regular Member


Date Joined Jul 2008
Total Posts : 186
   Posted 8/4/2008 1:40 PM (GMT -7)   
Go to the ER. I am allergic to Pentasa and that put me in the hospital so that could be making your situation worse. Hopefully you're at the hospital and didn't get to read my post!

yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 8/4/2008 9:06 PM (GMT 0)   
tell us that you are on your way to the ER, now!
49 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 8/4/2008 2:39 PM (GMT -7)   
Boost does not cause dark particles. You are probably having upper GI bleeding. Go to the ER.
Dx'ed in 1999. No surgeries.

Current meds: 75 mg 6MP. 10mg prednisone (trying to taper). Udo's Choice Probiotics (30 billion).


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 8/4/2008 3:20 PM (GMT -7)   
Hope you've already gone in to the ER, you sound pretty bad off. Bleeding is nothing to fool around with trust me. When I started bleeding it all went down very quickly, suddenly I lost A LOT of blood. Hope you got this all checked out.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapering down again at: 6mg now, Asacol, Questran, Toprol XL (for high blood pressure).


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 8/4/2008 4:56 PM (GMT -7)   
Hi Lmills Hope you have taken the good advice given. How are you now? Keep in touch and I agree with the others that you need better help then you are getting at home. Best Wishes lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


Linn
Regular Member


Date Joined Jul 2008
Total Posts : 118
   Posted 8/4/2008 6:46 PM (GMT -7)   
...here's hoping you're not reading any of this because you're at the hospital and at least getting pain meds for your belly...and being supervised by a team that has a plan to get you started on some serious solumedrol!

be well. was just in your shoes last month. hell.
24-year old Crohny, dx'd at 16.
Deferred medical school till January 09 because of most recent flare

Currently take:
Tysabri
Pred 60 mg
Nifrex


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 8/4/2008 6:58 PM (GMT -7)   
Very very dangerous. You probably won't last until your next doctors appt. Go to the ER immediately. Please let us know that you are going!

Cookie's Wife
Regular Member


Date Joined Aug 2005
Total Posts : 299
   Posted 8/4/2008 8:37 PM (GMT -7)   
Us Crohnie's are stubborn...
I agree with everyone else get to the ER now! I had the same symptoms and went to the ER two times in a week but refused (I told you Crohnie's are stubborn lol) to be admitted. By the the third visit I was SO sick I didn't have a choice and was in the hospital for a week. PLEASE go now before it gets any worse!

I'll be praying for you! Be strong!
~april
 

 



FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 8/6/2008 4:42 PM (GMT -7)   
Hello LMills -- How are you doing?? Just worried about you.

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 8/8/2008 6:52 PM (GMT -7)   
I got out of the hospital today finally--went in to the ER on Tuesday morning.
They gave me plenty of fluids, intravenous steroids, a blood transfusion, and PLENTY of painkillers.
Things are a lot better now, but I still am having stomach pains on and off. I have to say that they are nothing compared to what I was going through and I'm just happy to be able to eat solid food again.
The only issue I have right now is very burred vision and headache so..it might be from one of the new medicines prescribed, but all in all I am doing much better.
Thank you guys for your posts!! You have all been so kind!
Here is to getting better. I have 12 days to get back enough strength so I can go to school. We'll see how walking to class is..
20 years old, Diagnosed with severe Crohn's and colitis in May of 2008.
Currently taking prednisone and asacol.
Surgery for ectopic pregnancy in July of 2008.


Cookie's Wife
Regular Member


Date Joined Aug 2005
Total Posts : 299
   Posted 8/8/2008 8:05 PM (GMT -7)   
I'm SO glad your feeling better. Just keep an eye on yourself. If you start feeling that way again go back to the ER. I've been praying for you!
~april
 

 



FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 8/9/2008 6:11 AM (GMT -7)   
Hi LMills! Thanks for letting us know. Glad you are finally feeling better! I hope you have an excellent GI at school who knows CD. Don't be bashful about running to the Doc or ER. Problems caught early are easier and take less time to resolve. I hope this is the last problem you will have for a good long time!! Take care.

FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 8/9/2008 8:37 AM (GMT -7)   
Glad you let us know how you were AND that you went to the ER. I hope you feel better soon.
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 8/9/2008 1:36 PM (GMT -7)   
Hi Glad your feeling better and read threw your med info to see if blurred vision is a sideeffect or you could call your drudist. Hope you continue to improve. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail

New Topic Post Reply Printable Version
27 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Thursday, December 08, 2016 7:42 AM (GMT -7)
There are a total of 2,734,629 posts in 301,228 threads.
View Active Threads


Who's Online
This forum has 151346 registered members. Please welcome our newest member, heelm007.
310 Guest(s), 14 Registered Member(s) are currently online.  Details
Psilociraptor, at20148, Butterflake, JNF, sararaewald, Loutucky, robby vieira, Huddie, Tudpock18, pmm73, time2reclaim, Traveler, pitmom, Momtogigiandquinn


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer