Facing a Colostomy/Anal Stricture

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angela42
Regular Member


Date Joined Dec 2005
Total Posts : 30
   Posted 8/5/2008 9:38 AM (GMT -7)   
I've been having difficulties with an anal stricture for awhile (3-4years?), the main issue was just that doing a colonoscopy was rather painful even with the meds....
 
Anyhoo, about four months ago I started to have "seepage", never had it before, the occasional incident in the middle of the night and of course needing the bathroom 5- 10 times a day, but never incontinent.  Until now.
 
 
 
Went to see my gastro, who referred me to a surgeon...and even then, the thought of having a colostomy didn't really enter my mind.  I seriously thought that something else could be done....and when the surgeon started talking about "diverting the flow of stool", I STILL didn't put it together...the poor guy finally drew me a picture....slow realization, denial, etc.  The main bits of the conversation were that I have a "fixed stricture", dilating it with a balloon has temporary effects, but not long lasting, surgeon said that I would need a colostomy within the next five years, maybe sooner, and not to leave it until it was an emergency situation...well duh. 
 
I guess I'm looking for anyone who may have a similar issue and if they tried something that made the stricture better, easier to deal with, a magic wand...
 
Something other than the nuclear option.
 
Angela
Diagnosed at 13, am now 36. Bowel resection at 17 and two additional surgeries following bowel obstructions.
Gave birth to a beautiful baby boy on 9-21-2005 after being on Remicade.


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3110
   Posted 8/5/2008 4:05 PM (GMT -7)   
I don't know if there is a magic wand...I too had a similar problem (and others) and ended up having a proctocolectomy(removed colon/rectum) w/end ileostomy. It is always better to have surgery when your body is healthy, but we don't always have that choice. Even though I felt good, to a degree, my rectum was worse than we thought. My doc said that it would have been a harder recovery had I let things go on and get worse. I had my surgery two months before my 40th birthday and the first 8 weeks were difficult, but I improved daily. Have been able to travel and have fun since....and my daughter loves her "new" mom!

Good Luck with your decision, and check out the ostomy forum. There is some GREAT information there.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 8/5/2008 4:45 PM (GMT -7)   
Hi Just wandering if it is going to be reversable.Would resting the area with a temporary one help?lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


angela42
Regular Member


Date Joined Dec 2005
Total Posts : 30
   Posted 8/6/2008 7:44 AM (GMT -7)   
Thank you for your post OHIO76....I really appreciate it, and I definitely will check out the ostomy forum. I'm 38, so it sounds if you were in the same boat I was, it's so heartening to hear that you can travel and have fun and not be tied to the bathroom.

gachrons...the surgeon did mention that it MAY be temporary, and that he wouldn't actually remove the colon/rectum, alas, my limited research seems to indicate that reversals for anal strictures are not common....but definetly something to think about!

Angela
Diagnosed at 13, am now 36. Bowel resection at 17 and two additional surgeries following bowel obstructions.
Gave birth to a beautiful baby boy on 9-21-2005 after being on Remicade.

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