I am so scared

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LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1184
   Posted 8/5/2008 12:42 PM (GMT -7)   
Hi all , I am not new to Healing Well but new to Chrohns.
 
After a Colonoscopy, 2x Flexi Sigmoidoscopy, and OGD, a Barium MRI Small Scan - they have found only inflammation on thee right hand side which cleared up with Asacol. For this reason they thought that it was infective colitis and left it. However, it has  returned and I have another Colonoscopy on Monday and the outcome will either be joy and elation or utter dejection.

If there is inflammation on the right hand side I have Chrohns Disease.
If there isn't any Inflammation I only have IBS and Piles.

UC can be ruled out as I don't have rectal inflammation.

Alternatively my UC could be in remission and I am bleeding from the Piles - depending on the biopsies but this is least likely.

Pray for me people, I am so worried.

PS: Does anyone know what the Clipper drug is and it's side effects? He said if I have it I only need to take it for a month!


Diagnosis in October 2007: Non Specific Colitis (possible UC but not confirmed) (Mild inflammation on Rectum, Plus some patchy inflammation on Right side of Colon).

Medication Still taking: 800mg Mesalazine (Asacol) 3 times a day  

Symptoms: Colitis Remission, last had black stools but it might have been something I ate, Asprin, or an infection as it has cleared up.


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 8/5/2008 1:03 PM (GMT -7)   
Hey guy,
Sorry I never heard of anything called Clipper here in the US.
As for rectal bleeding, I get it all the time, even without gross inflammation or not being in full flare. I think mine is some small hemmies that remain inflammed despite everthing else being calmed.
Try not to worry, you'll only make it worse stressing out over it. Besides, at this point it its just something they are going to call it, right?
Take care now.

Sincerely,
Matthew

LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1184
   Posted 8/5/2008 1:08 PM (GMT -7)   
Thr fact is I do have IBS and I do have small hemmies - they have been found. But I can't accept that is all it is, and as they have found previous inflammation on one side they want to check if it has recurred. If it has then I have confirmed Chrohns, of not then it's the piles.

Clipper in the USA is made by Eurand N.V. and known as Beclomethasone dipropionate.

Is it a steroid and how long is it used for?

Diagnosis in October 2007: Non Specific Colitis (possible UC but not confirmed) (Mild inflammation on Rectum, Plus some patchy inflammation on Right side of Colon).

Medication Still taking: 800mg Mesalazine (Asacol) 3 times a day  

Symptoms: Colitis Remission, last had black stools but it might have been something I ate, Asprin, or an infection as it has cleared up.


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 8/5/2008 2:08 PM (GMT -7)   
It is a type of steroid, normally used for asthma via an inhaler. See http://en.wikipedia.org/wiki/Beclometasone_dipropionate for more info and click on the "glucocorticoid" link on that page for more detailed background. It does not seem to have a set period of time during which it is used and then stopped.

LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1184
   Posted 8/5/2008 2:28 PM (GMT -7)   
http://www.scottishmedicines.org.uk/smc/files/beclometasone%20dipropionate%20(Clipper)%20FINAL%20Amended%20310807%20for%20website.pdf

Diagnosis in October 2007: Non Specific Colitis (possible UC but not confirmed) (Mild inflammation on Rectum, Plus some patchy inflammation on Right side of Colon).

Medication Still taking: 800mg Mesalazine (Asacol) 3 times a day  

Symptoms: Colitis Remission, last had black stools but it might have been something I ate, Asprin, or an infection as it has cleared up.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 8/5/2008 5:01 PM (GMT -7)   
Hi Hope you can stop worrying until you get your results. At least if they do find you have CD you can better look after yourself then have something and not know. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 8/5/2008 10:23 PM (GMT -7)   
Sorry you have to go through this. I was almost glad to hear I had crohns. At least I had a name for what was wrong and not more and more test for nothing. Hope all goes well for you..Let us know..
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 8/5/2008 10:45 PM (GMT -7)   
Funny, that was my reaction to diagnosis - good! now I can do something about this. about the Clipper - it seems to be used as an alternative to Prednisone and an addition to Mesalazine. The study that was done had a 4 week duration due to the reduction of blood cortisol levels. Cortisol is the body's natural anti-inflammatory, so you don't want to mess up the production of that - hence the 4 week limit.

LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1184
   Posted 8/6/2008 4:55 AM (GMT -7)   
I am so scared of the meds and the long term prognosis. Can you get into remission for years with this or is it like a life sentence?

Diagnosis in October 2007: Non Specific Colitis (possible UC but not confirmed) (Mild inflammation on Rectum, Plus some patchy inflammation on Right side of Colon).

Medication Still taking: 800mg Mesalazine (Asacol) 3 times a day  

Symptoms: Colitis Remission, last had black stools but it might have been something I ate, Asprin, or an infection as it has cleared up.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/6/2008 1:20 PM (GMT -7)   
You will have this disease for life as it is uncurable. But it is treatable. I have had this disease for over 33 years and am currently in remission. I also had a 20 year remission before this one. Not everyone is so lucky, but the disease can be controlled with medication and diet. It is not a death sentence at all.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1184
   Posted 8/6/2008 2:14 PM (GMT -7)   
20 years remission seems like a dream. Wow. I just hope if I do have it God is kind and keeps me in remission. God willing.

Diagnosis in October 2007: Non Specific Colitis (possible UC but not confirmed) (Mild inflammation on Rectum, Plus some patchy inflammation on Right side of Colon).

Medication Still taking: 800mg Mesalazine (Asacol) 3 times a day  

Symptoms: Colitis Remission, last had black stools but it might have been something I ate, Asprin, or an infection as it has cleared up.


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1184
   Posted 8/10/2008 1:15 AM (GMT -7)   
I have my Colonoscopy tomorrow (Monday) and that will once and for all decide what is wrong as I have had every other procedure under the sun. The hope (God willing) is that my previous "Non Specific Inflammation" has disappeared and the problem is piles and IBS.
 
My symptoms are pretty clear now.
 
1. Regular diarrhoea - some soft stools, some watery - going about 3-5 times a day. I can't tell whether it's IBS or Inflammation.
 
2. Regular bright red blood but not a lot of it, sometimes in the pan, sometimes on tissue, sometimes nothing at all - usually at the end of the bowel movement or on straining - can't tell whether it's Inflammation or Piles that causes it.
 
3. However, I feel totally fine, no pain, no other symptoms and lead a normal life and if I go out I don't look for the toilet at all and have no problems waiting to go to the toilet - although the morning one is urgent but only if I decided to get out of bed, I don't need to wake up to go!
 
3. I guess the Asacol (6 a day) has stopped working for some reason or the diarrhoea means they aren't being obsorbed properly hence the inflammation. It's a shame because the diarrhoea started after treatment for a Stomach Ulcer using Omeprazole - that gave me such bad diarrhoea and it's continued. The chronic diarrhoea has brought my piles back, or it has ensured my Asacol aren't obsorbed.
 
4. Back to square one I guess - I just want the diarrhoea and blood to stop like everybody else.



Diagnosis: Oct 07 - Non Specific Colitis (possible UC or Chrohn's but biopsy not confirmed by 2 seperate GI's) (Mild inflammation on Rectum, Plus some patchy inflammation on Right side of Colon).

Medication Still taking: 800mg Mesalazine (Asacol) 3 times a day appear to have stopped working. 

Symptoms: Jun 08 - Bleeding returns with diarrhoea after taking meds for stomach ulcer. Sigmoidoscopy in June rules out rectal inflammation, Colonoscopy planned for August. (Doctor hinting it's Piles and IBS). No pain, no other symptoms.

Post Edited (LondonRed) : 8/10/2008 2:48:30 AM (GMT-6)


CrohnssuxBrian
New Member


Date Joined Aug 2008
Total Posts : 4
   Posted 8/10/2008 3:04 AM (GMT -7)   
wow London red seems you have been through alot. I wish the best outcome possible
Peace  Brisn

LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1184
   Posted 8/10/2008 3:28 AM (GMT -7)   
Thanks Brian. It doesn't help that I suffer from anxiety - the symptoms are double!

Diagnosis: Oct 07 - Non Specific Colitis (possible UC or Chrohn's but biopsy not confirmed by 2 seperate GI's) (Mild inflammation on Rectum, Plus some patchy inflammation on Right side of Colon).

Medication Still taking: 800mg Mesalazine (Asacol) 3 times a day appear to have stopped working. 

Symptoms: Jun 08 - Bleeding returns with diarrhoea after taking meds for stomach ulcer. Sigmoidoscopy in June rules out rectal inflammation, Colonoscopy planned for August. (Doctor hinting it's Piles and IBS). No pain, no other symptoms.

Procedures: 2x Sigmoidoscopy result - all slight non specific inflammation non IBD. 1x Colonoscopy result - mild non specific inflammation on right hand side - IBD not confirmed. 1x OGD result - small ulcer. Barium MRI of stomach and small bowel result - all normal.

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