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songstress
Regular Member


Date Joined Jul 2005
Total Posts : 393
   Posted 8/5/2008 1:55 PM (GMT -7)   
I feel like when I see my primary care I have a ton of issues...BUT I really do and I think alot of it is side effects from medicines/medicine I am on or have been on. Not to mention my life right now, isn't peaches and cream(financially) but whose is?
 
How do I talk to her about everything I need or is wrong with me without her thinking Im a fruitcake, hypochondriac, or drugseeker....I just want to be NORMAL!
 
Here is my first problem......I cant sleep! I have terrible insomnia, it keeps me up ALOTTTT, and then if I dont get enough sleep I am sicker by morning. My mind just wont shut off or stop when I lay down.
 
2nd issue...this one is worse I think....Im SOOOO irritable, short-fused, impatient, and feel like Im losing control ALOT. I can tell its due to the pred or other drugs because I dont feel this way when off drugs. Im not depressed or sad. But sometimes I do lose control to where I will cry/sob. I don't have good coping skills, ya know. I quit smoking and can't drink but need something LIKE A FREAKIN VALIUM....cause I worry and obsess over small stuff. It will consume me!
 (By the way, Im not bipolar/been tested.)
 What do I need to be on to help me? I have a 19mth old who needs mommy to be okay.
 
and then I have the migraine headaches, my aching right knee, and another issue with my tonsils/throat, and now a constant (I think) sinus infection! mad
I JUST CANT go into my PCP next week and say hey by the way....and tell her all this without her thinking Im crazy! confused

Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength

Diagnosed with severe Crohn's colitis in May 2005--spread to ileum and small intestine as of April 2008. Have taken Imuran, Remicade, TPN, Colozal, Entocort, Flagyl, PamineForte, Cipro, Dicyclomine, Prednisone, Asacol, Prevacid, and the list goes on. Currently on Humira every 2wks, 40mg Pred, Pentasa.


songstress
Regular Member


Date Joined Jul 2005
Total Posts : 393
   Posted 8/5/2008 2:12 PM (GMT -7)   
oh and I forgot to add she is also my OBGYN...so she gets to hear all my female issues I have too!!!

Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength

Dx'd w/Crohn's colitis in May05--spread to ileum & small intestine as of April08. Past meds: Imuran, Remicade, TPN, Colozal, Entocort, Flagyl, PamineForte, Cipro, Dicyclomine, Pred, Asacol, Prevacid, and the list goes on. Currently on Humira every 2wks,  Pentasa, Tapering Prednisone now.


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 8/5/2008 2:28 PM (GMT -7)   
I can't offer any experience dealing with your problems, but there are a couple of things that pop out. First, your other problems (migraine headaches, aching right knee, and another issue with tonsils/throat, and now a constant sinus infection) could easily all be due to Crohn's. I don't get migranes, but all the others happen to me and I think that many others could say the same. As for your mood problems, you could just tell the doctor that you are not sleeping well and suffer from mood swings. This should not be anything unusual given the other problems. That should get the doctor thinking along the lines of valium. In my case, I have had some relief from the sinus/throat stuff when I went onto the Specific Carbohydrate diet and I think that joint pains are also diminishing. Those symptoms were present in my case even though I followed a fairly strict diet before and was technically in remission. As for your mood problems, all of those, including insomnia are side effects of prednisone: http://en.wikipedia.org/wiki/Prednisone Maybe if you get a tolerable alternative to pred you will not need valium???

songstress
Regular Member


Date Joined Jul 2005
Total Posts : 393
   Posted 8/5/2008 2:34 PM (GMT -7)   
thx Keeper....Im hoping the taper will help some too!

Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength

Dx'd w/Crohn's colitis in May05--spread to ileum & small intestine as of April08. Past meds: Imuran, Remicade, TPN, Colozal, Entocort, Flagyl, PamineForte, Cipro, Dicyclomine, Pred, Asacol, Prevacid, and the list goes on. Currently on Humira every 2wks,  Pentasa, Tapering Prednisone now.


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 8/5/2008 3:41 PM (GMT -7)   
Songstress, it is your doctor's job to listen to ALL of your complaints and come up with a plan. Sit down and make a list of EVERYTHING that is bothering you, then review it with your doctor. I always used to worry about what the doctor would think, too! But that is what they are getting paid for, lol! Good luck to you. Blessings, Julie
Diagnosed with Ulcerative Colitis (Pancolitis) 10/25/05
New Diagnosis of Crohn's March 2006
Asacol 3 pills three times a day
Remicade 10mg/kg every 4 weeks
Prednisone 12mg a day
Imuran 75mg
Miralax as needed, Cortisone enemas as needed
Prevacid 30mg
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 8/5/2008 4:41 PM (GMT -7)   
I would certainly tell her everything that is going on. If she doesn't know, she can't help. Also, an anxiety/anti-depressant med might help with the emotional issues. You sound like me a few years back. I was put on zoloft for about a year and then was able to wean off and I haven't needed anything since, so far.

Angela101
Regular Member


Date Joined Mar 2005
Total Posts : 79
   Posted 8/5/2008 5:34 PM (GMT -7)   
hey songstress,
do you have a specialist for your guts?
My family doctor always gets an earful from me when I go in as the side effects from all the meds, especially prednisone which makes me very loopy.
I have to warn my friends and family so that they can give me reality checks when I am over reacting.
I agree with julie1014 - make a list and be specific about dates and such. It will help you pin down exactly when you are having symptoms and give your doctor something to go on.
Good luck - you are not a hypochondriac!
Dx/ed October 2003,
April 2004 - Surgery - 2ft of small bowel removed
Feb 2007 - Surgery again and a temporary ileostomy
Present - on Remicade waiting for surgery to reverse the ileostomy - Health Care System in Canada sucks - wait list is 6 12+ months.
 
 
 


songstress
Regular Member


Date Joined Jul 2005
Total Posts : 393
   Posted 8/5/2008 6:49 PM (GMT -7)   
yes but my GI suggested to go to my PCP...crazy eh? I think they just dont want to deal with it

Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength

Dx'd w/Crohn's colitis in May05--spread to ileum & small intestine as of April08. Past meds: Imuran, Remicade, TPN, Colozal, Entocort, Flagyl, PamineForte, Cipro, Dicyclomine, Pred, Asacol, Prevacid, and the list goes on. Currently on Humira every 2wks,  Pentasa, Tapering Prednisone now.


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 8/5/2008 7:42 PM (GMT -7)   
I often feel the same way. Like I have too many problems and take too much time. If I have a lot going on I will tell the receptionist when I call that I need to discuss 4 new issues (or 5 or 12) and that I may need a longer appointment than usual. She then schedules the doctor accordingly and I don't have to feel like I am taking up too much time. You might want to call your docs office and ask what to do about needing extra time.

Then have a list. Often I will say "I have a lot of things going on. Some of them may be minor but I wonder if they could somehow all be related. If I tell you all of them we might have a better chance of figuring this out." Then I list them.
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


SallyC
Regular Member


Date Joined Nov 2004
Total Posts : 158
   Posted 8/5/2008 8:17 PM (GMT -7)   
I know how you feel! I am actually meeting with my ob next week to control my pms. I just had the lovely return of my first period even though I am still nursing my 9 month old twins. And with that it describes how you are feeling! I am not depressed and do not have anxiety. But with this return period I have crazy behavior and of course the return of a crohns flare up. I wonder what came first the crohns or the stress.

Hang in there! Talk to whatever doctor makes you feel most comfortable and knows you best.

Sally
Sally
 
Diagnosed with UC in July of 2003 then diagnosed with Crohns in August of 2006.


songstress
Regular Member


Date Joined Jul 2005
Total Posts : 393
   Posted 8/6/2008 5:27 PM (GMT -7)   
thx sally! great to know someone understands..and FITZY..thats a terrific idea..I think I will try that

Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength

Dx'd w/Crohn's colitis in May05--spread to ileum & small intestine as of April08. Past meds: Imuran, Remicade, TPN, Colozal, Entocort, Flagyl, PamineForte, Cipro, Dicyclomine, Pred, Asacol, Prevacid, and the list goes on. Currently on Humira every 2wks,  Pentasa, Tapering Prednisone now.


Bane
Veteran Member


Date Joined May 2007
Total Posts : 589
   Posted 8/6/2008 8:14 PM (GMT -7)   
Part of your doctor's job is knowing how to distinguish genuine patients from drug-seekers. I get the impression you've been with this doc for a while, so she probably knows you're not faking. Besides, who would come up with such a crazy list of symptoms unless they were actually true?
20, Male, diagnosed over Christmas Break of my Junior year in High School. BEST CHRISTMAS EVAR LOL

(not really)

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