2 Questions - Antinuclear Antibodies and Petechiae

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meowese
Regular Member


Date Joined Jan 2008
Total Posts : 121
   Posted 8/5/2008 11:17 PM (GMT -7)   
I was diagnosed with Crohn's in 2006. At that time I tested positive for antinuclear antibodies. I recently had extensive blood tests done after petechiae appeared all over my shins (which has since faded but unfortunately reappeared on my arms). All of my blood tests were virtually NORMAL (except for a severe Vit. D deficiency...). It freaked me out because I cannot remember a time I was not anemic. In addition, I was told that my antinuclear antibodies had just DISAPPEARED. According to my hematologist I no longer have them. That doesn't sound right? Am I cured? HA. What's going on? He said he did not know why they would come and go. It is frustrating because I was hoping a careful examination of my antinuclear antibodies would help give a diagnosis for the petechiae and other symptoms I have (fatigue, brain fog, joint pain --- all of these are possibly associated with Crohn's).

Secondly, I've been seeing a rheumatologist because I have presented with several Lupus symptoms including the petechiae already mentioned. Since my blood tests were normal, and the petechiae were fading (left behind frecklish looking spots), I was not given a definitive diagnosis. Now that they have reappeared on my arm, I am feeling anxious. What should I be tested for, which my blood would not show, that could possibly cause them? I feel like there HAS to be a reason for them.

Thanks for your time.

Post Edited (meowese) : 8/6/2008 12:21:42 AM (GMT-6)


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/6/2008 12:42 AM (GMT -7)   
I don't know, meowese, but I'm going to ask some of the Lupus mods if they can give you some advice. I think they'd probably know more about these things than a lot of the Crohn's people.

I hope we'll be able to have some answers for you soon.

Ivy.
Co-Moderator Crohn's Forum.


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 8/6/2008 6:13 AM (GMT -7)   
I'm sorry that you are wondering about Lupus. Because symptoms of lupus vary so much from person to person, it's best that you post your quesations at the lupus forum

www.healingwell.com/community/default.aspx?f=29

so that you can find someone who has experienced a similar issue. We have a large group of active members, and I'm sure you'll get responses from folks with petechiae and ANA information. As far as I know, petechiae are harmless. We have information about ANA in the topic "Lupus Resources" at the top of the page.

You may never get a definitive dx from a rhuemy when you are dealing with autoimmune disorders -- the diseases change symptoms so fast it is difficult, often impossible, to tell one from another.

Take care,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 8/6/2008 7:51 PM (GMT -7)   
p is not abnormal with some crohns induced swelling

were you on remicade at any point in time.
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...-?
All suggestions/options/opinions are caveated with please consult with your local health care provider...

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