Skin Rash part 2

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Sniper
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   Posted 8/6/2008 6:50 AM (GMT -7)   
  Well the biopsy is back and the doc says it appears that I may now be allergic to steriods. Ain't that a wonderful bit of news. Only good thing about that is Remicade is not a steriod. But now any other med I take or use topically must be changed to a non steriod. This is sure going to mess up my sports career. How am I going to bulk up for the NFL now ? I have only been on steriods long enough to decrease my bone density down to the ostiopenia stage. Just a few more years of use and I could have become a spineless wonder. Then I could have run for public office. Son of a peach, dont it irk you when they tell you the bad effects of the meds you have taken for years ,,after the fact ????
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Nanners
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Date Joined Apr 2005
Total Posts : 14995
   Posted 8/6/2008 6:54 AM (GMT -7)   
That's kinda like good news/bad news. The good news is at least you don't have to use the dreaded Pred anymore, but the bad news is what if you flare. At least you now know what's going on. Hugs!
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


Sniper
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Date Joined Feb 2004
Total Posts : 6518
   Posted 8/6/2008 7:05 AM (GMT -7)   
Yep, Nanners. I hate pred too but what else do they have that works ? If I relaps now I may be , pardon the expression,,,,up crapp creek....
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Nanners
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Date Joined Apr 2005
Total Posts : 14995
   Posted 8/6/2008 7:17 AM (GMT -7)   
How bout we just change the diagnosis to "cooties", I like that one better:)
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


CrohnieToo
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Date Joined May 2003
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   Posted 8/6/2008 7:55 AM (GMT -7)   
Yeah, I like the "cooties" Dx better too, Sniper!! My pulmo just pitched a fit the other day when I told him I had quit the Advair due to the steroid in it.

Hey, its MY eyes and my right eye which has ALWAYS had good pressure was sky high at 23! The left eye in which I do have glaucoma and have been treating w/one eye drop nightly for 4-5 years w/a steady, acceptable pressure of 17-18 was up to 21 despite the eye drop!

But at least I have the option to use or not use the Advair for my lungs depending on symptoms. As much as we hate pred I'm so sorry that option has been taken away from you, Sniper! (((hugs))) I pray the occasion never arises again when you would need it - and now must do w/o it!!!
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


broomhilda
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Date Joined May 2007
Total Posts : 1488
   Posted 8/6/2008 11:32 AM (GMT -7)   
Some Beach...Some Where...!
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Glucosamine, Multi-Vitamin, Ultracet Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, peri-menopausal.


Jen77
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Date Joined Mar 2006
Total Posts : 2689
   Posted 8/6/2008 12:38 PM (GMT -7)   
Amazing how we can suddenly be allergic to something! I broke out in some hives this morning out of no where. Can't even recall coming in to contact with anything new. Always something! Guess I'll take that "cootie" diagnosis too!
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapering down again at: 4mg now, Asacol, Questran, Toprol XL (for high blood pressure).


karendee
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Date Joined Mar 2007
Total Posts : 1642
   Posted 8/6/2008 1:23 PM (GMT -7)   
Sniper said...
  . Son of a peach....
OK, I am stealing that phrase from you.... I can say that one around the kids!
 
I also like the cootie diagnosis....
 
Aren't cooties something we thought as kids could catch from someone but had no clue what they were?
 
Sounds like a perfect description of the rash on my face, a cootie I have no idea what it is and no idea where it came from. (plus my back is itching a lot and my head the cooties must be spreading)
 
So sorry you are allergic to steroids now. that really can be bad if you need them in a flare.....
 
Karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 Started Humira June 2008 (have been on other cd meds)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Diagnosed w/ General Anxiety Disorder in 2005- Effexor and now new med Clonazepam starting 7/18/08

 


Sniper
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Date Joined Feb 2004
Total Posts : 6518
   Posted 8/6/2008 1:40 PM (GMT -7)   
Cooties sorta suits me, dont it? But , alas, they checked for that and I am cootless...C2, I never thought about the eye drops. Are you on Cosopt ? Thats what they have me on and I have not checked to see if its a steriod. I have an apt. next week to do the blind spot test again so I will have a talk with my optam.. I have a good mind to just flush all the pills down the tube and stop taking anything but I dont want to see a fish kill in the bayou behind my house. Guess with the mouse proteen in remicade and the rash I have I am reminded of the flying squirrel and the moose vs Biggy Rat and itchy brother..Hmmmmm, Hey Rockie, want to see me pull a rabbit out of my a,,,,,,,,,,, ??????
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


CrohnieToo
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Date Joined May 2003
Total Posts : 9448
   Posted 8/6/2008 2:27 PM (GMT -7)   
Nah, Sniper. T'warn't the eye drops (Xalatan), 'twas the steroid in the Advair inhaler. Some peach .... !
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/6/2008 5:35 PM (GMT -7)   
Yikes, that's pretty scary. I'm so sorry, Sniper.

Will the rash disappear if you stop the steroids, or are you stuck with it permanently?
Co-Moderator Crohn's Forum.


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 8/6/2008 5:44 PM (GMT -7)   
But what do you use to treat cooties???

SydneyJo
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Date Joined Mar 2006
Total Posts : 1354
   Posted 8/6/2008 10:30 PM (GMT -7)   
Sniper,
Eek that would be a major dilemma for me being allergic to pred.
What would be on offer for when you flare Sniper?
And why are you only now allergic to it?
Jo (sorry for the inquistion)

curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 8/6/2008 11:36 PM (GMT -7)   
Sniper thats ok it took months of me telling my GI that the steroids was what was causing me to have lung issues and I was told that was inpossible because they give people steroids to help people with lung problems well du du.After nearly dieing with a right clasped lung and fluid on my lungs they then du decided that I was right took me off of them and every since getting all of it out of me system I have not had any problems so steroids are big no no for me so don't to bad at least we don't have to worry about eating 'our selfs out of home and we don't have bad mood swings so there is a positive side.
Curley
.........
 


Sniper
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Date Joined Feb 2004
Total Posts : 6518
   Posted 8/7/2008 3:26 PM (GMT -7)   
Ivy, I am hoping it will go away after I am off steriods for a while. Jo I dont know why I am alergic now. I have been on them for years and years, perhaps my body just said ,,enough. So what do they use for you now Curley? I need to get my ducks in a row for when I need pred again. Fallcolors,,,I have never been decootiefied so I dont know. Bonsai bug, Cootie X, Rid-A-Critter,,, perhaps...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 8/7/2008 4:54 PM (GMT -7)   
Sniper -- Yes, a pesticide is in order! Announcing the new and improved coot-icide -- Rid-A-Cootie! Guarranteed to kill your cooties and cure all your diseases, phobias, financial problems, and clean your house too. Frequently reported side effects include turning completely blue, growing a twin on your back, and massive D (of course -- don't many of our meds!!). Slather it on you and your children!!

But seriously, once you are off steriods, can you get on something that will help improve your bone density? The fewer politicians the better!

broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 8/7/2008 7:18 PM (GMT -7)   

Hey Sniper- Did you happen to catch Dateline NBC this week?  Check it out online a msnbc.com and look for the article of alternative skin treatment gone bad!  It could actually always be worse!

My vote is steriod overload.  Maybe as you are off them awhile you'll clear up. Here's hoping you'll feel better soon! yeah


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 8/7/2008 9:15 PM (GMT -7)   
Thank you Ms Hilda. I always know that there is something worse out there for me to watch out for. Thats why I stay so happy. Fallcolors, if you have such a product I will take two bottles. Just to end my financial woes I would put up with another me on my back, question is , could everyone else. Fear not that I should go into politics. I am not qualified. Even were I spineless, I only have one face and can only talk out of one side of my mouth. I could never enjoy spending someone elses money, living well while others suffer nor kissing up to someone I despise. Guess I am about the least fit person for any political position.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 8/7/2008 10:37 PM (GMT -7)   
I was allergic to pred from the start. When I need to (ick) I take methylprenisolone (solumedrol) instead. No allergies to that so far. Did the test conclude that you are allergic to all steroids? Or, prednisone?
--40 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine
--rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--methylpred - finally off 6/15/08, tried Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08, started Xifanan 5/24/08 
--single mom to 10-yr-old girl


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 8/8/2008 3:30 AM (GMT -7)   
Sorry Sniper. I read the fine print on the Cooticide bottle more carefully and found frequent use causes you to morph into a politician and like it. An irreversible side effect. Lots of Rid-A-Cootie bottles are sold each year. And there are lots of politicians. Does this mean that politicians have cooties?!

broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 8/8/2008 8:39 PM (GMT -7)   
I don't know sniper...as far as politics go...most of us crohnnies have the buns up & kneelin' down pretty well! Maybe public office could be your calling...you already have the best office around!
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Glucosamine, Multi-Vitamin, Ultracet Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, peri-menopausal.


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 8/8/2008 9:28 PM (GMT -7)   
I think most polititcians are in the wrong profession anyway. The lot of them in Washington should all be in the oil business. They are all a bunch of ,,Dip Sticks...BH, I put out the same thing in my office as they do. Sorry FC. If thats the side effect, I will suffer in silence, glad to be scratching something other than a lobbyist's back.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 8/9/2008 7:10 AM (GMT -7)   
I am planning on trying tee tree oil for my rash, I hope it works cause I am sick of it on my face. it starts to go away then comes back.... it must really like me...

Karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 Started Humira June 2008 (have been on other cd meds)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Diagnosed w/ General Anxiety Disorder in 2005- Effexor and now new med Clonazepam starting 7/18/08

 

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