Pentasa as primary medication?

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meowese
Regular Member


Date Joined Jan 2008
Total Posts : 121
   Posted 8/6/2008 1:24 PM (GMT -7)   
Does this stuff help? I'm curious if any of you are taking it as your primary treatment for Crohn's in remission. Any side effects? Thanks!

mel05
Regular Member


Date Joined Jan 2008
Total Posts : 87
   Posted 8/6/2008 2:15 PM (GMT -7)   

Pentasa is the only medication I am currently on.  I was diagnosed in January and was on pentasa as well as prednisone to stop my flare.  I have been off of prednisone for 3 months and am doing fine.  I don't have any side effects, but I know some people feel that it does not help them or some people's symptoms get worse.  I do have some gas and gas pain, but other than that I am fine.  This disease is so individual, as are the medications that will help each person.  Are you taking pentasa now? 

Good luck to you!


Diagnosed with crohn's in January 2008! 
Pentasa 1000 mg 4 times a day
On Topamax twice daily for migraines (went off this in May to clear my system in order to get pregnant...only have had 1 headache since then...woohoo!!)
No longer on Nexium
 
I am 27 years old and have been married for 2 1/2 years.  I cannot wait to try to have children so I want to get this under control!!


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/6/2008 4:43 PM (GMT -7)   
I take the sister medicine to Pentasa called Asacol. It is the only Crohns med I take. Before my resections I took Pentasa, since my resections I am now maintained only on Asacol. I personally believe everyone should be on some kind of maintenance med. And you couldn't ask for a milder medication with little to no side effects. And you can take it during pregnancy too. Good luck!
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


VCD
New Member


Date Joined Jul 2008
Total Posts : 8
   Posted 8/7/2008 6:36 AM (GMT -7)   
Pentasa is used to treat if CD is in large colon, asacol is helful for small bowl. Been on pentasa for 3-4 years now and even after recent colonoscopy shows some inflammation my doc wants me still on pentasa with combo of 6mp for some days.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/7/2008 10:17 AM (GMT -7)   
Actually VCD you have that reversed. The Pentasa is for the small bowel and Asacol for the large.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


RK
Regular Member


Date Joined Oct 2006
Total Posts : 153
   Posted 8/7/2008 10:53 AM (GMT -7)   
Have been on Pentasa for 7 years. Up until recently, it was the only medication I have ever taken for CD and I never had any side effects. But due to a fistula, I started Remicade two months ago. So far so good. Continuing with the Pentasa as a back up.



32-year-old female diagnosed with CD in 2001.
Currently taking Pentasa 1g x 4 times daily. Started Remicade July 2008.


dmc24
Regular Member


Date Joined Aug 2007
Total Posts : 37
   Posted 8/7/2008 11:56 AM (GMT -7)   
i have been on Pentasa for 4 years and prednisone for flares ups. They wanted to put me on 6mp last year but that didn't work out too well. So, far so good. Plus I eat lots of yougurt too and I take Allign.
Diagnosed with crones for 3 years. Pentasa put it in remission. Disease is now active again, going on 6mp. Still able to live every day to it's fullest.


MysteryGirl
New Member


Date Joined Feb 2008
Total Posts : 19
   Posted 8/7/2008 8:49 PM (GMT -7)   
Pentasa is my primary medication. My Crohn's is only in my small intestine and stomach and I take Pentasa (for the crohn's in the small intestines) and Protnix (for the crohn's in the stomach). I've heard mixed reviews about it, but for me it has been working great!
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