I just got diagnosed yesterday.....

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ImAud
Regular Member


Date Joined Jul 2008
Total Posts : 113
   Posted 8/7/2008 6:27 AM (GMT -7)   
Hi everyone! I've been chatting over on the ulcerative colitis page for a couple of weeks now, I thought that's what I had since my twin sister was diagnosed with UC when she was 16. Now i'm 21 and i started to develop symptoms and they got worse over the past couple of weeks. I finally got a colonoscopy done yesterday, which sucked, i was scared and hadn't eaten since monday night and it was wednesday at 3pm by the time i got in! But it went well until i got the diagnosis...i thought it was going to be UC but he said it's mild to moderate chron's. Im not so sure on the difference, i know chrons goes further up the GI track but i dont know if it's worse or could be worse than UC. Im on prednisone now, 40mg/day for 2 weeks and then im gonna wean off, so i'll b on it for about 5 to 6 weeks. I hope my side effects aren't too bad! I'm also on asecol, 3pill/3times a day, and that suppository thing, i forget the name! O and once im off the pred the doctor said he's never going to put me on it again..he wants me to start this IV thing that i would get every couple of months..i don't remember the name either, but i think it starts with an "R." Well i hope i get better! I'm just happy that we now know what it is, but i'm still bascially in denial that i have this chronic illness. I dont want to ever think of myself as sick or weak. I'm a very active person and i don't want it to run my life! hopefully the meds make me get my energy back...i've been so exhausted from it and im just tired of feeling nauseas and sick all the time! I hope some of you can give me some advice on all of this! i'm so new to everything and i don't know of another person who has it, so it's kind of lonely!!! Thanks!!!!!!!!!!!!!!!!! :)

Texan with Crohn's
Regular Member


Date Joined Dec 2007
Total Posts : 362
   Posted 8/7/2008 6:47 AM (GMT -7)   
Greetings and welcome to CD. Denial of CD... this sounds oh so very familiar. Took me a year to accept this wonderful disease. Watch what you eat and start a food diary to log what foods trigger flare symptoms. This will help you eliminate them from you diet. This disease is different in everyone. You will, in time, know your body and CD symptoms very well. Sounds like you are starting Remicade. There are multiple threads on this subject, side effects, etc...

I was very active myself. Now, I let my body dictate when and how active I get. Good luck to you. This forum is extremely responsive and knowledgeable. The folks here are WONDERFUL. So ask away if you have any questions. Also, read through the threads... they are riddled with good info.

-Leslie

ddr030505
Regular Member


Date Joined Nov 2007
Total Posts : 68
   Posted 8/7/2008 6:51 AM (GMT -7)   
Welcome to the forum.. I know the feeling of lonelyness. I am glad you found us here, There are lots of great people on here with lots of good advice, they have really helped me through my last 2 years.. I tried to do this alone with out talking to anyone and now I am so much better being able to talk to people who do understand whats going on..I know the denial feeling.. I still want to go out with my friends and eat and drink what ever i want, but I have limited that because (as you will learn) health is very important. Stay as active as your body will tolerate because excersize is really good for your stress levels as well as keeping healthy bones and body.. I hope you get to feeling better too.. But you probably will feel pretty tired alot of the time.. I force myself to go out everytime someone ask just so I will stay active and not let it control my life.

Denise
23 year old married female Diagnosed Sept '03 still fighting for remission
longest break 9mths; meds: Asacol 6-400mg tabs aday, Iron 40mg; just stopped Humira due to live problems
Live Laugh Love, Live by this and you can fight anything!!
There are moments in your life that makes you and sets the course of who you're going to be. Sometimes there little, subtle moments. Sometimes, they're big moments you never saw coming. No one ask for their life to change, but it does. It's what you do afterwards that counts. That's when you find out who you are.
 


mmckenna
Veteran Member


Date Joined Jan 2006
Total Posts : 725
   Posted 8/7/2008 7:38 AM (GMT -7)   
The "R" IV drug is probably Remicade. It's good stuff. I've been on it for 5+ years now and it has kept me pretty much in remission the whole time, with one exception.

Sorry to hear you have Crohn's, not a fun disease at all. Just be careful how much you read into stuff on sites like this. There is a lot of information here, and some of it can be pretty scary. Crohn's can be controlled pretty well in most cases with the right drugs.

Hang in there.
Matthew McKenna,
Joey's dad.

Remicade, 6MP and a few of their friends.

"I'm just along for the ride."


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 8/7/2008 10:33 AM (GMT -7)   
welcome, you will find great people here. my main advice is always try to breathe through the first few months. they can be crazy with tests, drugs, doctors, confusion...it gets better after awhile. I would recommend that you ask questions here and of your doc, get copies of all test reports, and try to enjoy your life. yp
49 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 8/7/2008 3:52 PM (GMT -7)   
Hi Welcome to HW . It is scarry when diagnosed we all go threw that but I have learned alot here reading others post it is a great place to not be alone. I follow low residue diet. I am glad your diagnosis is not severe mine was. I did the Remicade for 6 months .lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail

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