Antibiotics are Awesome!!

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LavenderBlue
Regular Member


Date Joined Oct 2005
Total Posts : 168
   Posted 8/7/2008 10:36 PM (GMT -7)   
I haden't been feeling well in a long time.  Couldn't hold down a job, super nauseated, and so on.  I developed an abcess and my surgeon put me on antibiotics for it: cipro and flagyl.  I instantly started feeling better and have gotten most of my energy back, besides being very anemic.  I've been on remicade for 6 months now and haven't felt nearly as good as I did when I started the antibiotics.  I saw my gi and she said I could stay on them for at least a few months to see how I did.  She also said that flagyl (metronidazole) used to be a main rx for inflammation before remicade came out.    I'm not kidding, I feel fantastic.  only 1-2 bm's a day, almost normal, compared to my liquid d 10 times a day as before.  I'd like to go back to work, but I don't want to get my hopes up sinse it's only been 3 weeks like this. 
Has anyone had an experience like this with the antibiotics?
lavender
 
diagnosed: Crohn's Aug 2005
 
other set-backs: Vasculitis Aug 2006, Sub-total Colectomy (10 inches of colon left) Feb 2007, Ogilivie's Syndrome Mar 2007, Pulmonary Embolism Sept 2007, Collapsed lung Oct 2007, Recto/Vaginal fistula Nov 2007
 
drugs: Asacol, Imuran, Remicade, Humira, Prednisone, Canasa, Fentanyl, Warfarin, TPN


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 8/7/2008 10:47 PM (GMT -7)   
I took it for a week. I was also started on prednisone during that time, so I'm not sure how much it helped alone. However I did develop burning pains in my hand and pinky finger. Turns out it can be a side effect of Flagyl. I brought it up to my doctor right away, but he told me he felt it was from all the inflammation in my body. Well I still get it now, 3 months later. Looks to be some nerve damage from the antibiotic. So just keep a close eye out for it, the damage can become something that never goes away!
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapering down again at: 4mg now, Asacol, Questran, Toprol XL (for high blood pressure).


LavenderBlue
Regular Member


Date Joined Oct 2005
Total Posts : 168
   Posted 8/7/2008 10:57 PM (GMT -7)   
Hi Jen-
Yes, that is the one thing that my gi warned me about. She said that some people develop neuropathy mostly in the hands and fingers and that if I start feeling those symptoms then to stop taking it. She said that in most cases the neuropathy is irreversable. I'm sorry about the pain. My dad has an unexplainable neuropathy in his feet and it causes him so much pain, I feel really bad for him. I'll be sure to watch out for it. Thanks
lavender
 
diagnosed: Crohn's Aug 2005
 
other set-backs: Vasculitis Aug 2006, Sub-total Colectomy (10 inches of colon left) Feb 2007, Ogilivie's Syndrome Mar 2007, Pulmonary Embolism Sept 2007, Collapsed lung Oct 2007, Recto/Vaginal fistula Nov 2007
 
drugs: Asacol, Imuran, Remicade, Humira, Prednisone, Canasa, Fentanyl, Warfarin, TPN


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 8/8/2008 2:20 AM (GMT -7)   
lav, watch out for the cipro.... if you have been on it this long, you can pop and achiles tendon by stepping of a curb.. thats a specific warning for it, tendon weakining.
randynoguts 



     http://www.geocities.com/randynogutsweb/


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/8/2008 6:12 AM (GMT -7)   
Also, be sure to take a good probiotic. We already have problems with a bacterial imbalance in our guts, and a good probiotic will help to even out the playing field. Be sure to take the Probiotics at least 2 hours after your antibiotics. Good luck!
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 8/8/2008 7:20 AM (GMT -7)   
I love flagyl. I respond really well to it.

Ladybugs
Regular Member


Date Joined Jan 2006
Total Posts : 158
   Posted 8/8/2008 8:46 AM (GMT -7)   
Flagyl is a miracle drug for me.  I've used it before for abscess, and it has worked wonders but just last month I was in the midst of a horrible flare and I was waiting to see if the methotrexate I just stated was going to work.  My GI put me on Flagyl for a month.  Two weeks into the Flagyl I felt like a new woman.  I've been off it for about three weeks now and I'm still doing OK, I think the Flagyl calmed things down enough that now maybe the mtx is starting to work.  Keeping my fingers crossed.

Kittikatt
Regular Member


Date Joined Jul 2004
Total Posts : 422
   Posted 8/8/2008 8:48 AM (GMT -7)   
For me (so far) FLAGYL has ROCKED. Always made me feel better.
Diagnosed in October, 2004 at age 33.
36/F/SC
Current Rx's: Colazal (generic), Nexium (generic), Ferrous Sulfate, Librax, One-A-Day multivitamin, Align Probiotic, Omega-3 Fish Oil, Vitamin D, Vitamin A, Calcium-Magnesium-Zinc, Cranberry pills
Secondary conditions: mouth ulcers, joint pain, swelling ankles, extreme fatigue
Previous/occasional Rx's: 20mg Prednisone taper, Flagyl, Levaquin
No surgeries to date


HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 8/8/2008 10:20 AM (GMT -7)   
I loved Flagyl, but it didn't like me. It was doing wonders for my fistula. And like you said, my trips to the potty slowed down. BUTT, I too had the neuro effects even with a lower dose. I still have residual tingling in my hands and legs with the worst being around my mouth!

Hey Jen77...I noticed my tingling gets worse when I am low on iron or B12. If I keep my stores up on those the tingling minimizes. Have you checked that out?

Oh and Cipro did not do a thing for me.  Maybe you should check if just the flagyl alone is enough due to the potential side effects of both meds


Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


LavenderBlue
Regular Member


Date Joined Oct 2005
Total Posts : 168
   Posted 8/8/2008 11:20 AM (GMT -7)   
hey nanners, i take acidopholus. is that too weak of a probiotic? should i be taking something stronger like vsl3? anyone's opinion?
lavender
 
diagnosed: Crohn's Aug 2005
 
other set-backs: Vasculitis Aug 2006, Sub-total Colectomy (10 inches of colon left) Feb 2007, Ogilivie's Syndrome Mar 2007, Pulmonary Embolism Sept 2007, Collapsed lung Oct 2007, Recto/Vaginal fistula Nov 2007
 
drugs: Asacol, Imuran, Remicade, Humira, Prednisone, Canasa, Fentanyl, Warfarin, TPN


beave
Veteran Member


Date Joined Mar 2007
Total Posts : 1091
   Posted 8/8/2008 1:34 PM (GMT -7)   
Nanners, there is some debate about taking probiotics while on cipro and/or flagyl for Crohn's.

For other antibiotics, such as for other types of infections, it likely is wise to take probiotics along with the antibiotic.

With Crohn's, however, the purpose of the antibiotic is to reduce as much as possible the microbiota in the gut -- that means reducing "good" and "bad" bacteria. So taking probiotics sort of defeats the purpose in this case. I would certainly recommend "re-seeding" the gut with good probiotics after finishing the cipro/flagyl, but while taking them, it might be best to avoid probiotics.

Again, this is controversial, but this position has been taking by at least some of the top GI's treating Crohn's.
 
PS.  As a side note, I'm deathly allergic to flagyl.  That stuff almost killed me.

LavenderBlue
Regular Member


Date Joined Oct 2005
Total Posts : 168
   Posted 8/8/2008 6:25 PM (GMT -7)   
Thanks beave. That's definitely something i'll have to take into consideration.
lavender
 
diagnosed: Crohn's Aug 2005
 
other set-backs: Vasculitis Aug 2006, Sub-total Colectomy (10 inches of colon left) Feb 2007, Ogilivie's Syndrome Mar 2007, Pulmonary Embolism Sept 2007, Collapsed lung Oct 2007, Recto/Vaginal fistula Nov 2007
 
drugs: Asacol, Imuran, Remicade, Humira, Prednisone, Canasa, Fentanyl, Warfarin, TPN


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 8/8/2008 10:35 PM (GMT -7)   
There are bacteria that are reported to develop resistance to Flagyl and Cipro. One such is Bacteriodes Fragilis. It is also the likely cause of or contributor to the formation of an abcess in the first place. In order to avoid a recurrence of your problems, you need to take a probiotic to restock the friendly gut bacteria as soon as you stop taking the antibiotics. You should also add a whey supplement (one with little or no sugar FOS or lactose). Whey supports the growth of the friendlies and that will basically eliminate the nasties through competition. See: http://jds.fass.org/cgi/content/abstract/81/5/1229 for more detail.

Dimitris
Regular Member


Date Joined Jan 2007
Total Posts : 32
   Posted 8/9/2008 1:21 AM (GMT -7)   
I think that a member of this forum, Frazier or fc1001, had started a treatment using a combination
of three antibiotics. I have not see him in the forum for a long time.
Does anyone know where is he and how is he doing.
It would be very interesting to know the results

dietcoke
Regular Member


Date Joined Jul 2008
Total Posts : 186
   Posted 8/11/2008 6:28 AM (GMT -7)   
I was on Cipro for five years ... yes, five years, because it was the only thing that worked for me. Although, recently it just stopped working. I am trying Humira now but haven't seen much of a response.

karasmommy
Veteran Member


Date Joined Mar 2005
Total Posts : 589
   Posted 8/11/2008 7:47 AM (GMT -7)   

For me the combination of Flagy AND Levaquin work wonders.  It definitely helps with all the pain and bloody mucous, on the other hand all the antibiotics give me more D trips to the bathroom and and a nasty yeast infection... but such is life.

I have been on the stuff for 6 weeks and and looking at another 6 weeks of it before I start to slowly taper down on the doses I am taking.....we shall see what happens.

It is really hard to get the Probiotics in without killing them off with the antibotics, but I am taking them. 

 


Ellen
Diagnosed with Lupus - April 2002
Diagnosed with Crohn's Disease (and all the lovely things that come with it) - January 2003 (problems since early 1990)
Fibromyalgia 2005 
Normal Meds:  Lunesta 2mg, Flexeril 10mg as needed, Plaquenil 400mg, Probiotics
"Extras" Right Now for Crohn's Flare:  Flagyl, Levaquin and Entocort


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 8/11/2008 10:56 AM (GMT -7)   
HabsHockeyFan said...
I loved Flagyl, but it didn't like me. It was doing wonders for my fistula. And like you said, my trips to the potty slowed down. BUTT, I too had the neuro effects even with a lower dose. I still have residual tingling in my hands and legs with the worst being around my mouth!

Hey Jen77...I noticed my tingling gets worse when I am low on iron or B12. If I keep my stores up on those the tingling minimizes. Have you checked that out?

Oh and Cipro did not do a thing for me.  Maybe you should check if just the flagyl alone is enough due to the potential side effects of both meds

Oh really? I would have never thought to have that checked, when all that tingling starts. Wouldn't surprise me, I've trouble with both iron and B12 in the past! Thanks for the heads up!
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapering down again at: 4mg now, Asacol, Questran, Toprol XL (for high blood pressure).

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