preliminary report from colonoscopy back.

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closure
Regular Member


Date Joined Jul 2008
Total Posts : 471
   Posted 8/8/2008 2:09 PM (GMT -7)   
So the nurse called today. The doc doesn't have the full typed up final report done, but they did have the basic results back.
 
No cancer...which I didn't really think I had anyway. But still obviously really good news.
 
So far from what she can tell they didn't find anything with my colonoscopy. sad not so good news. now she has to wait for the doc to figure out what to do with me next. my severe bleeding stopped before the stupid colonoscopy...I had to wait a whole month before I could even have the test so like I said in another thread my doc figures my intestines had already healed. also I forgot to mention this a while back, but the stool sample they made me do weeks ago showed nothing either. so the nurse thinks these are the options I'm going to be given on Monday.
 
1. wait until the bleeding starts up again, since it is a recurring problem, and try another colonoscopy ASAP. fun, fun!
 
2. try the endoscope next. see if the bleeding was maybe further than they could see with the colonoscopy and see if there's something there that could be making me live in my bathroom.
 
So those are the main options she's pretty sure the doc's going to suggest. Like I've been told before though they probably won't give me anything for my symptoms since they don't know what's wrong with me. So I suffer until something else comes up I guess. They would just call it IBS, but as most of us know the severe recurring bleeding I was having doesn't usually go along with the IBS. Who knows though. Looks like this isn't going to be an easy thing to figure out. *sigh*
27 female
 
Bipolar, panic disorder, PTSD, PCOS, hashimoto's disease/hypothyroidism, acid reflux, and in the process of being diagnosed with either crohns, colitis, or even lupus...who knows really! the docs sure don't lol. Now possibly even celiacs disease!Lots of tests coming up so hopefully I'll know more soon. Too many meds to list!


MysteryGirl
New Member


Date Joined Feb 2008
Total Posts : 19
   Posted 8/8/2008 2:52 PM (GMT -7)   
don't get discouraged that the colonscopy didn't show what is wrong. My first doctor tried to convince me there was nothing wrong (even though I was passing blood!) because my colonoscopy was fine. I changed doctors and my new doctor did some testing of my small intestines and that is where she found the Crohn's! Good luck getting a diagnosis!

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 8/8/2008 3:30 PM (GMT -7)   
Hi I think get the other end checked and then you "ll know for sure .lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


jacenta
Regular Member


Date Joined Nov 2006
Total Posts : 47
   Posted 8/8/2008 3:50 PM (GMT -7)   
check you small intestine! do the capsule endoscopy! good luck with a diagnosis!!

CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 8/8/2008 4:23 PM (GMT -7)   
Yup, a CT enterography and if still nothing the Capsule Endoscopy.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


closure
Regular Member


Date Joined Jul 2008
Total Posts : 471
   Posted 8/8/2008 4:28 PM (GMT -7)   
thanks guys. I'm terrified of the endoscopy, but will obviously do it if I have to because I can't take living like this anymore. it's not even living really. so we'll see what they suggest Monday. I don't know if he'd do the actual scope or the pill kind, but if it helps me find out what's wrong I'd do either, both, whatever! I was just really hoping this would've been an easy thing. one test, find out what's wrong, get treated, etc. I should've known better I guess. so I am kind of disappointed, but what can you do really? I look at some of you for inspiration to keep going. I mean I read how long some of you had to go without a diagnosis and that you're still fighting and it makes me want to fight because I know for most of you who have gotten a diagnosis not giving up is what got your diagnosis. For those of you still fighting it helps to know I'm not alone. so I really appreciate you all. *hugs*
27 female
 
Bipolar, panic disorder, PTSD, PCOS, hashimoto's disease/hypothyroidism, acid reflux, and in the process of being diagnosed with either crohns, colitis, or even lupus...who knows really! the docs sure don't lol. Now possibly even celiacs disease!Lots of tests coming up so hopefully I'll know more soon. Too many meds to list!


closure
Regular Member


Date Joined Jul 2008
Total Posts : 471
   Posted 8/8/2008 4:30 PM (GMT -7)   
I'm not up on all my tests...so what's a CT enterography? thanks!
27 female
 
Bipolar, panic disorder, PTSD, PCOS, hashimoto's disease/hypothyroidism, acid reflux, and in the process of being diagnosed with either crohns, colitis, or even lupus...who knows really! the docs sure don't lol. Now possibly even celiacs disease!Lots of tests coming up so hopefully I'll know more soon. Too many meds to list!


MysteryGirl
New Member


Date Joined Feb 2008
Total Posts : 19
   Posted 8/8/2008 10:36 PM (GMT -7)   
a CT Enterography is a CT with large amounts of oral contrast to get better imaging of the small intestines. I had one done months ago when my disease was active, but mine came back as inconclusive because even though I drank 4 bottles of barium they still couldn't get a good enough picture.

closure
Regular Member


Date Joined Jul 2008
Total Posts : 471
   Posted 8/9/2008 6:08 AM (GMT -7)   
thanks for the info mysterygirl. sorry to hear yours didn't work out too well. *hugs*
27 female
 
Bipolar, panic disorder, PTSD, PCOS, hashimoto's disease/hypothyroidism, acid reflux, and in the process of being diagnosed with either crohns, colitis, or even lupus...who knows really! the docs sure don't lol. Now possibly even celiacs disease!Lots of tests coming up so hopefully I'll know more soon. Too many meds to list!

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