TPN help please!

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patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 8/8/2008 9:57 PM (GMT -7)   
I got the stupid picc line put in this morning.

I started my first intake of TPN at about 6pm. Already my bloodsugar has skyrocketed to almost 300. and now they want to give me insulin injections.

Has anyones else on here been on TPN?
Advice or concerns?

I've having the nurse discontinue the TPN until I can speak with an actual TPN specialist sometime tomorrow.
I refuse to get into any more of this that is necessary and insulin shot in addition to everything else in the last week is just about to put to be over the frikiing edge!
26f, dx'd CD July '05 after 6 fistula/abscess surgeries
No current chronnie meds, but I've tried just about all of 'em!
Digestive enzymes, and probiotics only.

And, I'm pregnant with my first baby! Due around Valentine's Day. :-)

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."

~Marianne Williamson


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 8/9/2008 11:07 AM (GMT -7)   
PatientSpikers, TPN can be a real blessing. And, really, its not such a big deal. At least between, what 6PM and 8 AM? you are taking it easy and relaxing and getting sufficient rest. I was on it for 3 1/2 months and would do it again in a heartbeat w/o a qualm should I need it again.
 
Two mornings I just donned my backpack w/battery and kept morning appointments. Three evenings I just donned my backpack w/battery and attended grandkids functions at school.

However, I totally understand your frustration and worries about your blood sugar skyrocketing and the insulin recommendation.

I was on TPN via Apria w/the actual home health care sub-contracted to Genovia. I could call my Apria pharmacist at any time to discuss my "recipe" or any concerns I had about it. The Apria pharmacist was more "up" on my nutrition needs and problems than my gastro and she deferred to his suggestions tho she was the one who had to write the order. They drew blood and tested each week for my nutritional needs and any "recipe" changes that might be needed. Only one time did they have to send me a changed "recipe" mid-week when they got the blood results back.

Check your paperwork. In mine there was the phone number to call the Apria pharmacist direct. The pharmacist I had was just terrific! He was out of the Detroit area office. If I remember correctly (its been 4-5 years), his name was Marcus.


Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


smile1967
Regular Member


Date Joined Jan 2008
Total Posts : 174
   Posted 8/9/2008 11:19 AM (GMT -7)   
Hi, I just read the post now...........I am so frustrated for you. I have never been on the TPN so I have no insight unfortunately. Did they give you the insulin? or did you stop the TPN and refuse the insulin. How scary. Let us know what the specialist says today about the TPN? Did you get to start the Humira injections yet? I hope you find some relief soon.

Does your GI come in and see on his rounds each day? or is it the nurse/call the dr. relationship? When I was in the hospital my specialist would come in each morning with his interns and the nurse and a little meeting would take place so everyone was on board and on the same page. (It was like a Grey's Anatomy" moment hahaha) I just know it made me feel good knowing that everyone communicated together and ideas and concerns could be discussed...like what to do next?

Please post later and let us know whats happening..........thinking of you lots.

Shelley
  • 41 yr old farmwife!! and mom of boys 11 and 9
  • resection surgery Feb. 2008
  • Pentasa, Entocort (when needed), citalopram,probiotic
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 8/9/2008 1:28 PM (GMT -7)   
Hi Randynoguts has been on it hope he's around and will see your post. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 8/9/2008 2:10 PM (GMT -7)   
hey pspiders, thats totaly normal for when you start tpn.. your body will self regulate in a few days. getting the insulin wont harm you. sometimes they even put it right in the tpn.. it will help in the long term, just be patient. they know what thewy are doing, so many are on tpn now in the hopital for surgeries etc.. they have the xperiance with it im sure. good luck and keep us posted..
randynoguts 



     http://www.geocities.com/randynogutsweb/


lilturbo
Regular Member


Date Joined Feb 2008
Total Posts : 298
   Posted 8/9/2008 4:08 PM (GMT -7)   
I was on TPN for a little over a week when I was hospitalized in October. I had to start getting insulin shots b/c my blood sugar was going crazy. Once I came off of the TPN my blood sugar returned to normal and I no longer needed the insulin shots.

TPN helped my intestines rest and when combined with remicade and prednisone I went into remission. Good Luck and please let us know how you are doing!
turboemma.blogspot.com/


patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 8/9/2008 6:06 PM (GMT -7)   
Thanks for the replies everyone.

I have my first "personalized" bag of TPN going in right now...and it looks like a giant sack of MILK. A REALLY expensive giant sack of milk.

BUT, like randy said, my sugars seem to be stabalizing a bit... I don't think I would have been nearly so irritated with the whole thing yesterday if ANYONE at the hospital had explained ANYTHING about TPN to me. Plus I hated the nurse I had at the time which always influences my cooperativeness. Can't help it.

So, I'm doing a bit better. Got to eat a little "real food" even. And of course, the magic "TPN MILK" is a dripping away into my arm.

I hope my guts appreciate all this!!!!
26f, dx'd CD July '05 after 6 fistula/abscess surgeries
No current chronnie meds, but I've tried just about all of 'em!
Digestive enzymes, and probiotics only.

And, I'm pregnant with my first baby! Due around Valentine's Day. :-)

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."

~Marianne Williamson


smile1967
Regular Member


Date Joined Jan 2008
Total Posts : 174
   Posted 8/9/2008 11:03 PM (GMT -7)   
oh I am so glad the TPN is going ok now. That is very reassuring what Randy said. What would we do without the expertise on here! I hope you get the rest you need and start to feel better soon. I am going away in the morning for a week, so I will check back in and see how you are then. Take care.
  • 41 yr old farmwife!! and mom of boys 11 and 9
  • resection surgery Feb. 2008
  • Pentasa, Entocort (when needed), citalopram,probiotic
 


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 8/10/2008 12:52 AM (GMT -7)   
pspiders, the milky color of the tpn is from the lipids put in (fats) i always got mine in a separate bottle, cause i only needed them a few times a week. now i dont get them at all. for several years now, so my TPN is just yellow,, pee in pee out!
randynoguts 



     http://www.geocities.com/randynogutsweb/


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 8/10/2008 3:33 AM (GMT -7)   
Hi So glad your getting the nutrients your body needs and it should bring your strength back soon. So what good food did you eat I used to look forward to the jello it gave me something to chew. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 8/10/2008 6:46 AM (GMT -7)   
Giggle. I sure do know how an irritating medical professional can affect how cooperative I am. *wicked smile* They just bring out the worst in me. It just gives me the incentive to make things as difficult for them as I can. And then when they try to take it out on me, "give 'em h*ll, harry!"

Enjoy all that good nutrition!!!
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

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