It's me again! Am I okay? blood in stool ... frequent bms

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hukleberrie
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Date Joined Jan 2008
Total Posts : 491
   Posted 8/9/2008 8:12 AM (GMT -7)   
I seem to always keep coming back.... You all are so helpful. I have had problems for a while. I finally ended up being dx'd with IBS & told everything would be fine. I started to gain weight, and although I still had 3-4 BMs a day, I wasn't getting up for BMs at 4:00am like before & no blood. Then I started with the low grade fevers again, and blood in my stool. I missed taking my 1/2 pill of amitriptyline last night (which helps with my frequency) & I ended up up at 4:30, and have 8 BMs since then & it's only 11am. I have lost 3 lbs in 2 days & my last BM was D. I am starting to get a little worried that this is starting up again. I refuse to have another scope, last one was fine. I don't quite understand why this is going on, there is nothing wrong that they can find really. Borderline anemia, that's it. They have tested me for lupus & RA & all kinds of things with no luck. I am tired. Very tired. Doctor said to start treating me like it's UC, but I know it's not. But he wants me back on the azulfidine. I don't want to, but want to listen to him because I trust him. Just confused. Any ideas? Am I crazy?
Live for today, for tomorrow you might just get hit by a semi.


aoccc
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Date Joined Feb 2005
Total Posts : 455
   Posted 8/9/2008 8:27 AM (GMT -7)   
back in the days, you are describing my good days
SCD since 01, remission since 01, occasional Arby's breaks :)


hukleberrie
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Date Joined Jan 2008
Total Posts : 491
   Posted 8/9/2008 8:42 AM (GMT -7)   
so I am fine? Just IBS?
Live for today, for tomorrow you might just get hit by a semi.


sammies
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Date Joined Feb 2008
Total Posts : 493
   Posted 8/9/2008 9:22 AM (GMT -7)   
these diseases are so evasive. Sure, you could very well have crohn's and it is not showing up yet. I had symptoms for years as a child and then was finally diagnosed at 13. If you feel comfortable, go on the med. If not, go for a second opinion. As for me, I have blood in my stool and frequent bms everyday. Bloodwork tells me if I'm ok or not. Stay hydrated. Try a softer diet and take your vitamins if you normally do so. Good luck.
23 years with moderate Crohn's/colitis; fistulizing crohn's; pentasa, just started humira


Jen77
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Date Joined Mar 2006
Total Posts : 2691
   Posted 8/9/2008 9:23 AM (GMT -7)   
Have you had that capsule test yet? Might be helpful to see what could be going on in your small intestines. No one can tell you if your okay or not hukleberrie. I was told for 9 years it was IBS, and obviously it wasn't. I do know that blood in the stool and fevers aren't symptoms of IBS. I'd talk to your doctor about these new symptoms, and see if maybe there are other tests that could help you find answers. I know these doctors hang on to the all mighty colonoscopy, but those things are far from full proof in getting a diagnosis. Good luck!
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapering down again at: 4mg now, Asacol, Questran, Toprol XL (for high blood pressure).


hukleberrie
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Date Joined Jan 2008
Total Posts : 491
   Posted 8/9/2008 10:48 AM (GMT -7)   
Thank you for posting.

No, I have not had the capsule test. I did have the small bowel follow through, which said that I had IBD, but did not confirm which. Then when I had my next c-scope it came out clean & I was told the sbft was a mistake. (I remember it very well & remember the talk with the radiologist who told me something was definitely going on).

I just get confused about when I am "better" & when I am "sick". I still felt ill, still having 3-4 BMs a day & feeling run down & low grade fevers & such. No blood for a long time. Then all the sudden, it changes & I am gurgling again & having undigested food & the bleeding.... I know the bleeding is not normal for IBS, but I have heard that undigested food it.

sammies: It's funny you say to stay hydrated, because even though I don't normally have D, I normally am dehydrated. I always drink water & don't understand how it happens, but I have problems keeping hydrated. I do take vitamins & lately have been doing the Emergen-C due to the electrolytes (doc told me to drink gatorade & salt everything, but I think the Emergen-C is better.) I am also on Lortab 7.5s & those I guess are supposed to bind people up, but not me. I wonder what my BMs would be like without all the constipating drugs....

The thing is, my GI wanted me to get off ALL drugs & just keep on the low fiber/low residue diet. But once they told me I could get off the azulfidine & prednisone, I said cool & quit the diet too. I thought I was done with all this & I could just keep trying things to get rid of this IBS.

Why can't it be easy to figure out? I don't understand. There has to be an answer.

Oh! Could my problem be from taking the Digestive Advantage for IBS (probiotic)? Anyone had problems with it?
Live for today, for tomorrow you might just get hit by a semi.


bentwistle
Regular Member


Date Joined Jul 2006
Total Posts : 330
   Posted 8/9/2008 3:17 PM (GMT -7)   
I think you would really benefit from a capsule test too - blood in the stool is not a sign of IBS. The weight loss and undigested food, plus the frequency of bm's suggest problems. I know you've had lots of tests and have no insurance, but things sound more severe than IBS. I think the doctor's have missed something. Plus you waited for a while before the scope, while on prednisone...perhaps healing had gone on.

Don't give up, and don't let yourself get as sick as before! Keep us updated,

Bev

hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 8/9/2008 3:50 PM (GMT -7)   
I hate to say it but I am so depressed. I keep thinking it's just the flu or something because I feel like I am going to get sick, my stomach is in knots. Probably just the worrying I have been doing. I am trying to convince myself that nothing is wrong. Ugh. I guess I had better take his advice & start back on the azulfidine. I am so bummed. I had really hoped it was IBS.

: (

How do we feel better? What do we do? How do you all cope?
Live for today, for tomorrow you might just get hit by a semi.


Jen77
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Date Joined Mar 2006
Total Posts : 2691
   Posted 8/9/2008 3:56 PM (GMT -7)   
I agree with Bev on the prednisone point. One reason why I refused the scope back in June. I'm sure it would have looked great in there after 1+ month on prednisone. I wasn't looking for him to say I had nothing wrong after treatment that caused healing! That happens a lot I think.

I know how you feel, I really wanted it to be IBS too. I'm sure we all did! Coping can be hard, we all have our good and bad days with that. Getting proper treatment helps. When you start feeling better, coping isn't as hard.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapering down again at: 4mg now, Asacol, Questran, Toprol XL (for high blood pressure).


hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 8/9/2008 6:17 PM (GMT -7)   
How long till you start feeling better? I guess I was better after the prednisone, but I didn't feel that great. Not as bad as in January, but not great. I want to feel great again.
Live for today, for tomorrow you might just get hit by a semi.


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 8/9/2008 6:20 PM (GMT -7)   
I don't think IBS would give you bloody BM's. Obviously something inflammatory is going on.
Dx'ed in 1999. No surgeries.

Current meds: 75 mg 6MP. 10mg prednisone (trying to taper). Udo's Choice Probiotics (30 billion).


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 8/10/2008 3:59 AM (GMT -7)   
Hi I have had IBS for 27 years before DX with crohn's .I would definitely stay on low residue diet and yes the foods aren;t digested so low residue helps with that. Try to relax and not stress I know IBS is no fun to live with and if your really worried go for more test.lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


LondonRed
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Date Joined Oct 2007
Total Posts : 1184
   Posted 8/10/2008 4:08 AM (GMT -7)   
Do you have IBS or Chrohn's? If it was just IBS then why were you on Pred? I had a small bowel test and they found nothing on the MRI which is very thorough. Chrohn's can sometimes limit itself to the small bowel so the Colon on a scope would be clean. If you have blood and you don't have a fissure or piles then it's more likely inflammation somewhere. Also it doesn't have to be Chrohn's or Colitis if there is inflammation it could be an infection or just non-specific which will clear up after drugs.

Diagnosis: Oct 07 - Non Specific Colitis (possible UC or Chrohn's but biopsy not confirmed by 2 seperate GI's) (Mild inflammation on Rectum, Plus some patchy inflammation on Right side of Colon).

Medication Still taking: 800mg Mesalazine (Asacol) 3 times a day appear to have stopped working. 

Symptoms: Jun 08 - Bleeding returns with diarrhoea after taking meds for stomach ulcer. Sigmoidoscopy in June rules out rectal inflammation, Colonoscopy planned for August. (Doctor hinting it's Piles and IBS). No pain, no other symptoms.

Procedures: 2x Sigmoidoscopy result - all slight non specific inflammation non IBD. 1x Colonoscopy result - mild non specific inflammation on right hand side - IBD not confirmed. 1x OGD result - small ulcer. Barium MRI of stomach and small bowel result - all normal.


hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 8/10/2008 7:11 AM (GMT -7)   
I have IBS, I guess. They thought it was crohn's (originally thought cancer due to rapid weight loss in beginning) until they did the last c-scope & all the biopsies were clean (I was currently on pred.). I had really thought they were right. I kept having a little while where slightly improved & weight holds steady, then all the sudden out of the blue something hits. I was told in October that there were a few small ulcers in my colon, up through the transverse colon. Nothing about the cecum or ileum was mentioned. I was told the gen surgeon who didd it thought it was lymphocytic colitis & to wait for the biopsy results. Focal active colitis was the result. Thne I was to take azulfidine for a month, and from what I had understood, it was NOT UC & would clear up after a month of drugs, maybe two. Then off the azulfidine for a month, I lost another 10 lbs & that's when the bowel problems seemed to show up (before I only had blood & 2 hard bms a day). Foods weren't digesting. I was beginning to feel so weak. I was at this point underweight. I ended up in the ER a couple times with pains, migraines, low potassium & dehydration. At one point, they gave me some steroids in my IV and gave me a small short burst of prednisone. I began to feel a little better, but the fatigue & dehydration & frequent BMs continued. No blood. I was sent to a GI who said she felt I had crohn's & I was put on the low res/low fiber diet, given the sbft which showed clumping of contrast, inflammation of either the ileum or small bowel loops overlying the ileum, but more probably the cecum. I was told it was consistent with IBD, but did not point to UC or CD. I was put on 20mg of prednisone. I started having this lump show up in my lrq, where I felt the stool was stopping. Once I had a BM it was gone. After a while on pred, I was feeling better but still having frequency & fatigue. I ended up in the ER again for hip/groin/low back pain (I was having ovarian cyst problems, too.) The nurse & doc looked at my tests & said they felt it was CD. I had I had laproscopic surgery for the cysts & also a D&C & hysteroscopy for neverending bleeding (thinking I had cancer again due to family hx). Everything was fine. Had the c-scope 2 weeks later while still on pred. GI said it looked clear but didn't want to take me off the pred & azulfidine until biopsies came back, she was very surprised, she still felt I had CD, & she was surprised the scope was clear. I was told I had a small internal hemrrhoid. I asked about the bleeding & she said that was the cause, the sbft must've been a mistake.(?!?) After the biopsies came back fine, I was taken off the pred & azulfidine & told I must've had a really bad case of infectious colitis that caused IBS which was what I was experiencing. I was confused, but kinda hopeful that was so. She wanted me to stay off meds & stay on the diet until I saw her again in September. I decided that if it's only IBS & I can stay off meds, I can stay off the diet too. To keep up my weight I have been on what I call the 2 candybar a day diet. hee, hee. If I pack in the calories, I am able to do it. I ended up changing my doc to the DO I had been seeing for back/flank pain (& that hip/groin pain) & he felt the pain was tied to the GI problem or some type of visceral problem. He sent me to another DO for a different type of manipulation & her opinion, which ended up in a bunch of tests for Lupus & RA & who knows what. Nothing really showed up except the borderline anemia. He put me on ampytripline, 1/2 pill at night, which is supposed to help slow my gi tract down (I have very fast transit time) and help with weight. I also went on birth control to help with my bleeding (which it has helped immensely) & also hope to help with weight. I have been on those since June & I had gained about 7 lbs. I have lost 4 lbs this week. I figured the bleeding was from the 'roid too, but it was more than ever before & dark red. Nothing on tissue or in the bowl, just covering the stool.

So there it is. The story of the last year & 2 months. I want my life & old body back. Any ideas?
Live for today, for tomorrow you might just get hit by a semi.


hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 8/10/2008 7:14 AM (GMT -7)   
I forgot to mention that I also have Hypermobility Joint Syndrome & I might have Ehlers-Danlos Syndrome & I am going to a genetic clinic next month. I am not sure how that complicates things.....

There is so much going on it's all too confusing for me. I don't know what the cause is or what I can to change my life, but I have to do something.
Live for today, for tomorrow you might just get hit by a semi.


LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 8/10/2008 7:26 AM (GMT -7)   
8 years ago I got super sick and it took the doctors 3 months to figure out what was wrong with me. I had the scope, they found Crohns and my doctor put me in the hospital for a week. Well since then it hasn't shown up every time I got sick. My current doctor wasn't 100% I had crohn's because he never saw anything on my scopes he has done. All my test always came back no active disease. Until this past April when I had another flare. He finally did a scope in June and saw my Crohn's. I also get bloody stool and lose weight when my crohn's is flared.
So it is possible for you to have it and them not to see it. I don't know how to explain it. This disease is crazy and I'm still trying to learn it even after 8 years of having it.
Living with Crohn's Disease since Jan./2000 but had a few years prior
I'm a true Crohnie with IBS and Arthrities too
 
Meds I have tried:  Too many to list- LOL
Meds currently on:  Prednisone 15mg tapering
                           Methotrexate injections once a week 25mg
                           Folic Acid 5mg once a week
                           Wellbutrin twice a day
No Surgeries
 


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1184
   Posted 8/10/2008 7:28 AM (GMT -7)   
The most worrying thing about what you say is the weight loss. The bleeding you can say is Piles, and the IBS is causing them to flair up even more and obviously make you go quite a lot. Maybe you should have a capsule endoscopy or an small bowel MRI?

If that is all clear then I'd suggest looking at your diet and moving on - the anxiety can play havoc with IBS. I currently have blood and lots of diarrhoea and don't know which way to turn but the anxiety makes it worse. Sometimes I don't even get blood then half an hour later it comes again - I am just at a loss... so often it's better to just listen to the docs and move on.

Diagnosis: Oct 07 - Non Specific Colitis (possible UC or Chrohn's but biopsy not confirmed by 2 seperate GI's) (Mild inflammation on Rectum, Plus some patchy inflammation on Right side of Colon). 2 small Piles also diagnosed but not clear whether they are bleeding or not.

Medication Still taking: 800mg Mesalazine (Asacol) 3 times a day appear to have stopped working. 

Symptoms: Jun 08 - Bleeding returns with diarrhoea after taking meds for stomach ulcer. Sigmoidoscopy in June rules out rectal inflammation, Colonoscopy planned for August. (Doctor hinting it's Piles and IBS). No pain, no other symptoms.

Procedures: 2x Sigmoidoscopy result - all slight non specific inflammation non IBD. 1x Colonoscopy result - mild non specific inflammation on right hand side - IBD not confirmed. 1x OGD result - small ulcer. Barium MRI of stomach and small bowel result - all normal.


hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 8/10/2008 7:39 AM (GMT -7)   
The problem is every doctor says something else. At one point all of them said crohn's. Now after biopsies, they just aren't sure. I told them no more colonoscopies. Obviously I don't have CD or UC. But now the PCP wants to treat it like UC. Ugh. But my GI said stay off everything except the diet. The other DO I saw disagreed with the GI completely. She said she would look at all my doc notes/results except hers because obviously there was something wrong with my bowels & she didn't agree with the GI. So what is a patient to do? I try to be proactive but it is all so confusing. I'm lost.

I don't understand how you can keep being tested & not find anything. And every doctor thinks something else. I am tired.
Live for today, for tomorrow you might just get hit by a semi.

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