How do you tell your Doctor you want a change?

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78SilvAnniv
Regular Member


Date Joined Apr 2008
Total Posts : 289
   Posted 8/9/2008 10:22 AM (GMT -7)   
I really like my specialist, she is the head of the GI department at Emory.  I respect her and I trust her.  However, the meds we have tried are not working and I want to try other things.  How do I tell her without damaging our Dr/patient relationship? 
It isn't that I am not confident in her ability, but I want to see some results, darn it!  If what we have been doing in the past isn't working, it seems like madness to continue doing the same things in hopes the results will be different.
 
*of note, I had surgery to remove 6" of my left side colon in May, and I do feel I am still adjusting to the body changes.
Heidi
I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
 
Crohn's and UC are pretty darn crappy, but if you can't laugh at yourself, you'll cry. 
I'd much rather laugh.
2001 Dx'd with UC.  No remission.  5/2008 surgery, removal of 6" of left side colon.  Dx changed to Crohn's.  Remission for 8-9wks after surgery, symptoms returning after resuming 6MP.


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 8/9/2008 11:14 AM (GMT -7)   
Goshes, don't be bashful! Just tell her you're getting impatient w/the lack of results or the slow response and would like to try something different, maybe something more aggressive and ask her waht she suggests. If there is a specific medication or treatment you'd like to try just tell her you were wondering about ..... whatever your interest is.

If she is even only half as good as you say she is she's not going to be at all offended or touchy about it. She might even welcome your willingness to get more aggressive or willing to try something else!

And, if put to her that way, she does take offense .... which I seriously doubt .... then she's not as good as you think she is. It would be unusual tho if she did.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 8/9/2008 11:16 AM (GMT -7)   
If your relationship is good like you say it is, this shouldn't be a problem.
Dx'ed in 1999. No surgeries.

Current meds: 75 mg 6MP. 10mg prednisone (trying to taper). Udo's Choice Probiotics (30 billion).


aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 8/9/2008 1:08 PM (GMT -7)   
you pay her..tell her u want a change..u gotta let these people know. If you don't let me tell you how this works. They go home to their nice 500k home, sit on their leather couch and have a great night, meanwhile you go home and shat your pants on the way. When you get in you notice all the bills for the crap they are doing that not working, but you remember you need to take a shower because you shat on yourself. The rest of the night you get up every other hour and barely make it while she is at home sleeping in her castle, full nights sleep.
SCD since 01, remission since 01, occasional Arby's breaks :)


bentwistle
Regular Member


Date Joined Jul 2006
Total Posts : 330
   Posted 8/9/2008 3:01 PM (GMT -7)   
I think most doctors maintain the status quo until the patient speaks up. She might not even realize you're not happy with the progress. It's your body, and sometimes we have to speak up (and also be willing to hear the other side, in case she's got some valid reasons for your current treatment plan)

I wish you success. I'm sure she won't take offence for you being proactive with your treatment, from your description of your relationship.

Bev

sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 8/9/2008 3:43 PM (GMT -7)   
I think I would call and ask for an appointment and let the person scheduling the appointment know that you have some things you want to discuss with the doc so that they schedule longer than a double booked 15 minute appointment. Then make some notes about what your symptoms are how much relief you are or are not getting from your current meds and then ask what the doctor thinks-when does she expect the current meds will start working better, does she think its time to try something else and if you have something specific you want to try what do you think about "name med here".
I would not try to bring all of this up in the usuall seven minute appointment as you won't get a thourough review like you are entitled to but you should be able to ask for a longer appointment when you call to schedule.
Sj

LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 8/9/2008 5:44 PM (GMT -7)   
Just tell her. When I have concerns or want to try something else, I just tell my GI like it is. He listens to me and usually within reason will go with me. If not he explains to me why and often comes up with something better. You need to be able to communicate!! They don't know if you don't tell them.
Living with Crohn's Disease since Jan./2000 but had a few years prior
I'm a true Crohnie with IBS and Arthrities too
 
Meds I have tried:  Too many to list- LOL
Meds currently on:  Prednisone 15mg tapering
                           Methotrexate injections once a week 25mg
                           Folic Acid 5mg once a week
                           Wellbutrin twice a day
No Surgeries
 


78SilvAnniv
Regular Member


Date Joined Apr 2008
Total Posts : 289
   Posted 8/9/2008 6:36 PM (GMT -7)   
I have an appt for 9/2 and I'll bring it up.

I've tried the 'usual' drugs of asacol, balsaliside, colazol and low doses of pred.
With her we've done high doses of pred (60mg to taper), 6MP, doubled the 6MP and I developed jaundice and Remicade for 1.5yrs.
No positive results.
However, I really feel the damaged section that was removed with my surgery this past May was so far gone that NOTHING would have put it into remission. Now that it is gone, I'm feeling pretty good. I actually want to try no meds for a while. Or something lighter and less damaging to my system.

I've been reading here and have a list I've made:
Humira ~ must let remicade fade from system for min 4-6mo because of anti dsDNA something-or-other.
Methotrexate ~ takes 8-12wks to work but many here have had success. Is an anti-folate.
Imuran ~ metabolizes into 6MP, not interested.
Budesonide ~ can be used in place of prednisone.
These I've written down to ask about, but haven't done any research:
Cipro?
Cimzia, like Humira?
low dose Naltrexone? *interested in this one*
Librax?
Lialda?

I really feel the probiotics and getting my gas under control helped me to turn the corner for firmer BMs and I want this trend to continue.
I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
 
Crohn's and UC are pretty darn crappy, but if you can't laugh at yourself, you'll cry. 
I'd much rather laugh.
2001 Dx'd with UC.  No remission.  5/2008 surgery, removal of 6" of left side colon.  Dx changed to Crohn's.  Remission for 8-9wks after surgery, symptoms returning after resuming 6MP.

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