I understand what you are going through! I am 41 and was diag with CD in 2005 after a hysterectomy, an appendectomy 8 weeks later, followed by a re-section in the small intestine of 18 inches that CAME APART after surgery!!! followed by a week in ICU and a great bout of C-dif. 10 months later I had to have a hernia surgery to fix how poorly they put it together! And all in the Mayo Clinic state! Can you believe it?
Anyway, my GI put me on prednisone for a year in 2006 with a tappered down that was pretty slow...but when it was totally out of my system I had joint pain terrible! I too was on Imuran/Asacol at the same time. I felt like my GI doctor didn't care about my joint pain. He'd ask me if I told my primary physician about it. I have to be physical and on my feet at my job. Finally, got an appointment with a Rhuem...he thought I had Reactive Arthritist. Which I guess means after a severe auto-immune outbreak this happens as a secondary problem. I don't know. He set me up for Remicade. Then when my GI doctor got wind of taking Remicade he said no! He wanted to wait till things were really bad with me. Really BAd....what does that mean? I had lost 40 pounds and felt like death. The pain took about 2 months to get better. I missed alot of work and felt like crap! Cried alot. But, now 2 years later I'm in another bout of Joint pain for about 2 months now. They come and go. I'm frustrated. Now, my GI doctor says to take glucosamne? The whole word GLucose makes me nervous. And now reading about levequin and Cipro on this web site makes me wonder if I'm not experiencing effects of an Antibiodics that I've been off and on throughout. Some days I feel like I need an advocate just to deal with my disease. I joined this to hopefully gain knowledge. I don't know if this will help you or discourage you. Sometimes it just helps to know your not the only one.
Post Edited (Banjonut) : 4/4/2009 9:54:32 PM (GMT-6)