Crohn's colitis and dehydration

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Cookie's Wife
Regular Member


Date Joined Aug 2005
Total Posts : 299
   Posted 8/10/2008 5:40 PM (GMT -6)   
I searched on the past posts but didn't find that answer I needed so I apologize if this is a repeat question/comment.
 
I have Crohn's colitis (disease strictly in my colon) and right now my disease is somewhat under control. I can feel myself starting a flare but for me it can take months to actually get there.
Anyway...on to my question. I feel that I'm getting dehydrated. It doesn't seem that I ever get enough to drink and ALWAYS thirsty. I don't know if I'm starting to get dehydrated because I'm beginning to flare. I also was in alot of pain today. Is that a sign of dehydration and do you think I need to go to the hospital to get "hydrated" before it gets any worse. Any comments or advice will help.
 
Thanks!
April
~april
 

 



hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 8/10/2008 5:48 PM (GMT -6)   
I have been dehydrated a lot. Even sometimes I have been dehydrated and go to the ER, if the dehydration is not too bad, they will send me home & say to drink more. My doctor told me since I am dehydrated all the time to salt everything I eat, and drink Gatorade. I don't like Gatorade, so I have been doing Emergen-C. Hope that helps.
Live for today, for tomorrow you might just get hit by a semi.


CrazyHarry
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Date Joined Mar 2006
Total Posts : 1034
   Posted 8/10/2008 6:01 PM (GMT -6)   
if you are feeling thirsty then you are already dehydrated. there is no real scientific evidence behind drinking 8 glasses of water a day, but it is a good start. i've also heard of dividing your weight, in pounds, in half and that is the approximate number of ounces of water you should drink per day. as for myself, i try to get at least 1/2 gallon per day. and remember, tea, soda, juice, coffee, beer, wine, etc etc is not water. those flavored waters and vitamin water are not water. water is water. most things are diuretics and will dehydrate you further. for a list of those things, look at what i just wrote. that doesnt mean you cant ever drink them, but know that you need more water and less of those things to stay hydrated.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


closure
Regular Member


Date Joined Jul 2008
Total Posts : 471
   Posted 8/10/2008 6:08 PM (GMT -6)   
I've been dehydrated off and on since my symptoms got worse a few months ago. Been in the hospital for IVs 3 times since then. They recommend for me regular water and gatorade.
27 female
 
Bipolar, panic disorder, PTSD, PCOS, hashimoto's disease/hypothyroidism, acid reflux, and in the process of being diagnosed with either crohns, colitis, or even lupus...who knows really! the docs sure don't lol. Now possibly even celiacs disease!Lots of tests coming up so hopefully I'll know more soon. Too many meds to list!


bektold
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Date Joined Jul 2007
Total Posts : 456
   Posted 8/10/2008 6:20 PM (GMT -6)   
Be careful with the Emergen-C.  It's got massive amounts of vitamin C in it, which is good for you in moderate amounts, but will cause diarrhea in large doses.

Cookie's Wife
Regular Member


Date Joined Aug 2005
Total Posts : 299
   Posted 8/10/2008 6:34 PM (GMT -6)   
Thank you all for your answers! I never now when to go to the ER without feeling that I'm making a bigger deal then I should. But I know that if I let myself get to dehydrated it's only downhill from there.
 
Tell me if I'm wrong but I was told that once your dehydrated, water will not rehydrate you. It will keep you from getting dehydrated but won't bring you back from it. You need sugars. Any thoughts?
~april
 

 



bektold
Regular Member


Date Joined Jul 2007
Total Posts : 456
   Posted 8/10/2008 6:51 PM (GMT -6)   
You may be thinking of electrolytes.  Potassium and salt get washed out of your body, but plain water won't put them back.  That's why some people recommend Gatorade.  After going into the hospital last spring with critical potassium levels, I started taking a potassium pill every day.  I don't ever want to do that again.  A potassium IV hurts.

Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 8/10/2008 7:01 PM (GMT -6)   
A simple thing to do that should help the electrolytes: salt your food with a product called "Half Salt". It is a mix of sodium and potassium chlorides with the usual trace of iodine. It should be in most grocery stores.

Cookie's Wife
Regular Member


Date Joined Aug 2005
Total Posts : 299
   Posted 8/10/2008 9:06 PM (GMT -6)   
Thanks again. I've had this stinkin' disease for 9 years and I still have so much to learn!

~april
 

 



closure
Regular Member


Date Joined Jul 2008
Total Posts : 471
   Posted 8/10/2008 9:55 PM (GMT -6)   
what everyone has said is true...I was meaning to mention the electrolytes thing, but it slipped my mind. glad you brought it up and got answers. I've even heard some people water down their gatorade a little because it's either too strong, they worry about the calories/sugar. I've heard they do half water half gatorade.

I may be wrong, but I think gatorade has even made a lower calorie/sugar gatorade with the same amount of electrolytes. I can't remember the name of it, but it's more see through than regular gatorade. I want to say it's called G2 or something like that, but I don't remember. It's in the same type of bottle and everything as regular gatorade and should be right next to the regular stuff.
27 female
 
Bipolar, panic disorder, PTSD, PCOS, hashimoto's disease/hypothyroidism, acid reflux, and in the process of being diagnosed with either crohns, colitis, or even lupus...who knows really! the docs sure don't lol. Now possibly even celiacs disease!Lots of tests coming up so hopefully I'll know more soon. Too many meds to list!


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 17880
   Posted 8/10/2008 11:41 PM (GMT -6)   
As IBDers we can very easily become dehydrated, it's important to drink plenty of water daily...plenty of water daily also helps flush toxins from your system too.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


nightwitch
New Member


Date Joined Dec 2009
Total Posts : 4
   Posted 12/23/2009 9:11 PM (GMT -6)   
Peidalight seems to work for me and I can usually avoid the ER, but it takes a lot longer to rehydrate. It's totally worth it to me to avoid the ER though!!!

nightwitch
New Member


Date Joined Dec 2009
Total Posts : 4
   Posted 12/23/2009 9:12 PM (GMT -6)   
Oops, Pedialight.

leysa
Regular Member


Date Joined Oct 2009
Total Posts : 111
   Posted 12/24/2009 4:02 PM (GMT -6)   
I usually do pretty well with Gatorade, but when things are so bad that they are going out as fast as I put them in, I have to go to the ER for fluids.
30/f
chronic active colitis/possible Crohn's - unspecified IBD
Lialda 2x/day
Entocort 9mg 1x/day
Darvocet or Tramadol as needed


vvolk
New Member


Date Joined Mar 2010
Total Posts : 2
   Posted 3/24/2010 4:09 PM (GMT -6)   
Is this still an active thread? It doesn't look like there is much activity. I was recently diagnosed with Lymphocytic Colitis. I think I am severely dehydrated right now. Feeling overall crappy, dry skin, etc. Exactly how much do I need to drink every day, and do I really need nasty Gatorade? Or is there something else? Thanks!

artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 3/24/2010 5:00 PM (GMT -6)   
I get dehydrated really bad, i have what is labeled as the dumping syndrome, due to all of my surgeries, I put electrolyte powder in all my water, it's flavor is mineraly tasteing, i really like the flavor, I get another flavored one from isogenics that is way better than gatorade, I'm so bad that the arches in my feet cramp my fingers can lock up, the dumping syndrome also causes hypoglycemia, so its a pain in  the butt

artist guy


dinkydee
Regular Member


Date Joined May 2009
Total Posts : 175
   Posted 3/24/2010 8:09 PM (GMT -6)   
Gatorade sometimes makes symptoms worse.  I use electrolyte strips that dissolve in your mouth and go right into the bloodstream, don't have to go through the GI tract so absorbtion problems aren't an issue.  Sometimes water will just "wash out" your sodium and potassium more,  so these are good.
Diagnosed with CD 2006.  Refused to take meds until recently started Colazal. 
 Currently on Prednisone 40mg. Tapering down, now on 20mg.
Colazal 3xday, Antioxidant strips
 Off of the Prednisone!!
I live by faith and not by sight....


artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 3/24/2010 8:27 PM (GMT -6)   
dinkydee you are 100% correct about the to much water, it can wash out your sodium and potas, evan thinning out gatorade with water is better than straight water. i had a heat stroke this past summer in the remote area of san diego mountains on my mountain bike, luckily i was rescued, but parameds said i should not drink straight water on biking trip or hiking or running, now that that has happened, I'm evan more prone to dehydration

artist guy


tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 3/24/2010 10:04 PM (GMT -6)   
It makes sense that you are often dehydrated due to the fact that your Crohn's is Crohn's colitis and your colon is where you absorb most of your electrolytes. How active is your disease? Do you have a lot of inflammation in your colon right now possibly preventing the absorbtion? I would contact your G.I. right away and if it is severe go to your E.R. or an urgent care clinic. Pickle juice is a great hydration tool that many people in sports use to provide them quick rehydration without the bad sugars and a great vitamin source. I learned about it from my favorite foodball team and how they make all of their players use it at halftime of each game and after the game. It is a huge help considering that their stadium is one of the highest in altitude in the nation and they lose a ton of water.

wednesday77
Regular Member


Date Joined Oct 2007
Total Posts : 346
   Posted 3/24/2010 10:15 PM (GMT -6)   
The last time I was really sick and my dr wanted to put me in the hospital he was much less concerned with what I was eating (or at all) and very concerned with was I getting enough hydration.  One of the reasons he wanted me in the hospital was so they could give me IV fluids (and IV steroids, which is another story, which is why I refused to go).
 
What are you taking for medicine?  A few weeks ago I went for a few days being absolutely PARCHED all the time - I am on prednisine so it could have been that or it could have just been I was getting dehydrated, but no amount of water seemed to quench my thirst.  I am trying to cut way back on sugar so I don't drink gatorade, etc when I can avoid it but I knew plain water wasn't going to cut it.  I also have Crohn's Colitis fyi.
 
Good luck!
 
 
33 yr old Female
Crohn's Colitis
DX 12/06
 
Currently on Remicade, Humira, 55 30 mg Prednisone, Multivitamin, Calcium, Probiotics, Vitamin D, a few other herbal supplements my natureopath has me on.
 
Eating a Macrobiotic diet, no meat or dairy, trying to cut way back on sugar and white foods.  Trying to focus on a more holistic approach to healing. 
 
 
 


vvolk
New Member


Date Joined Mar 2010
Total Posts : 2
   Posted 3/25/2010 5:07 PM (GMT -6)   
Apparently this IS an active thread! Thank you all for your information.
Dinkydee - where do you get electrolyte strips?
Thanks.

dinkydee
Regular Member


Date Joined May 2009
Total Posts : 175
   Posted 3/25/2010 7:59 PM (GMT -6)   
Check my profile on here and email me and I will send you the info on the strips vvolk.
Diagnosed with CD 2006.  Refused to take meds until recently started Colazal. 
 Currently on Prednisone 40mg. Tapering down, now on 20mg.
Colazal 3xday, Antioxidant strips
 Off of the Prednisone!!
I live by faith and not by sight....


FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 3/25/2010 8:46 PM (GMT -6)   
Ultima replenisher has no sugar just stevia.
 


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 3/26/2010 12:08 AM (GMT -6)   
vvolk this became an active post because you answered it. It's considered beter form instead to start a new one yourself than re activate an old one. Welcome to healing well, I'd recommend reading the forum rules as it may help you Rob
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


Rowan Murphy
New Member


Date Joined Oct 2012
Total Posts : 1
   Posted 10/8/2012 8:18 PM (GMT -6)   
Hi, I know that this is an old thread, but I figure this will give a much needed conclusive answer to the topic of hydration. This is all based on the work of a medical doctor, F. Batmanghelidj, who dedicated many years to studying the effects of hydration/dehydration in the body, and how dehydration was the cause of a vast catalogue of illnesses and diseases. He worked out also how much water one needs, and how much salt one needs also; as without supplementing salt, you will not only become deficient, as the large volume of water will strip the salt from your body, but you will also become dehydrated, being unable to hold onto body water (that is water that is not held in the cells aka cellular water)

I have an article which explains this in detail, how much you need, why its important, it dehydration can bring about certain illnesses, like hypertension and asthma. I will link you to this article, which I recommend you study over and consider the points raised therein. But here are the essentials:

You need a certain amount of water depending on your weight. You need a certain amount of good salt depending on that amount of water. You need to supplement minerals (calcium, magnesium, zinc, selenium and potassium) which can be taken in naturally by eating mixed nuts (Brazil nuts have selenium) and bananas and figs contain potassium. I would not bother with potassium salt products aka lo-salt, but instead I go for Himalayan rock salt, or Celtic sea salt. The mineral content of those 2 are very high. And they also taste way better.

The calculations are simple. Weigh yourself in stone, multiply that number by 0.21 and that gives you the number of litres you need to drink per day. Or else weigh yourself in pounds, and divide that number by 2, and this gives you the number of U.S. fluid ounces you need to drink per day.

Next, for every quart (roughly 2 pints) you need to drink, you need 1/4 teaspoon (measuring spoons used by chefs) so you'll most likely end up on roughly 1/2 teaspoon. I take just over a half teaspoon per day, and I put it in a small empty pill container at the start of the day so as to get neither too much nor too little salt throughout my day.

So as an example of all that, I weigh 13 stone. 13 x 0.21 = 2.73 so I need 2.73 litres (round up to whatever approximate figure you want, this does not need to be precise) per day. And I need just over 1/2 teaspoon of salt per day. Do buy good measuring spoons, I got one before (a cheap one) that was 50% bigger than it was supposed to be, so be a little careful on that front.

Here's the article, all based on the work of Dr. B, so its not my opinions being expressed, but a condensed practical guide based solely on his work, to get people onto what is called the water cure. Whether or not it helps Crohn's, I do not know. Please let me know, any of its sufferers, if the water cure helps you in any way, as I found this discussion, researching Crohn's for the sake of my friend who suffers from it. God bless you all:

www.wearechange.ie/water-cure-explained
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