Worms, Fecal-Infusions, LDN

Which have/would you be most willing to try?
3
Worms - 16.7%
3
Fecal-Infusion - 16.7%
3
LDN - 16.7%
5
Ancient Chinese Medicine - 27.8%
1
Ionic Cleansing/psycho-spiritual stuff - 5.6%
3
Fairy GodMothers - 16.7%

 
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patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 8/11/2008 2:55 PM (GMT -7)   
As I sit here in the hospital for the 12th frickin' day in a row, I find myself pondering the pro's and con's of all of the aforementioned treatments. Obviously, I'm referring to those of us who need more than just the "basics". Western medicine is failing me again, and I'm flailing around for other options. Which of these things do you guys think about? I know there have been many individual threads about ALL of them, but I thought a poll might be interesting...

So... How far would/will you go (after exhausting the "normal" stuff like Humira and Remicade, etc.) to get your life back?

I want my life back.
26f, dx'd CD July '05 after 6 fistula/abscess surgeries
No current chronnie meds, but I've tried just about all of 'em!
Digestive enzymes, and probiotics only.

And, I'm pregnant with my first baby! Due around Valentine's Day. :-)

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."

~Marianne Williamson


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 8/11/2008 4:17 PM (GMT -7)   
you forgot radical fad diets, ancient indian medicine, stem cells, snake oil, and cryogenics until they discover a cure.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 8/11/2008 4:40 PM (GMT -7)   
Sweetie you are prego, for the time being doctors orders are the way to go.
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...-?
All suggestions/options/opinions are caveated with please consult with your local health care provider...


Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 8/11/2008 4:53 PM (GMT -7)   
and then there is the "magical healing water" that one evangelist gives away for donating to his "church"
"I am he as you are he as you are me and we are all together!" - The Beatles

doesn't that just sound cool when you sing it?


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 8/11/2008 5:42 PM (GMT -7)   
Hi 12 days is awhile that's for sure. How are you doing with the TPN? I really don't know if I'd try any of that stuff. Have you started the Hum. yet? Any improvement on how your feeling. Getting your life back sometimes seems to take awhile when you been sick for a long time. Any idea how much longer you"ll be in the hospital? Sending more hugs. I think of you often. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 8/11/2008 6:44 PM (GMT -7)   
I might try LDN after I have my baby in December. I'm pretty sure I'd try hookworms too.

Stef17
Veteran Member


Date Joined Feb 2003
Total Posts : 1811
   Posted 8/11/2008 8:20 PM (GMT -7)   
After I have my baby in December too, I would be open to trying LDN and I'm ALWAYS open to Fairy godmothers. Hang in there girl. I'm thinking about you. Hoping you're holding your own. What's the latest with the Humira? Have you noticed any kind of improvement yet?

Marie-Claire
Veteran Member


Date Joined Mar 2007
Total Posts : 900
   Posted 8/11/2008 9:11 PM (GMT -7)   
Hang in there sweetie.. You will get through this... but as others have said.. while you are pregnant I would follow the doctors orders to the letter. December babies are wonderful! Bet you can hardly wait... It will come sooner than you think.
keeping you in my thoughts and prayers.
Mary
51 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.,RLS, arthritis, PTSD ,general anxiety disorder.
 
 


patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 8/12/2008 8:19 AM (GMT -7)   
The Humira hasn't done anything yet, but I know it's still early in the game. Now that there's no baby to worry about, I think I'm going to pursue the LDN route. After that... bring on the worms!!!!
26f, dx'd CD July '05 after 6 fistula/abscess surgeries
Currently running on Humira and Hope.
(miscarried at 13 weeks, now waiting to heal before trying again)

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."

~Marianne Williamson


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 8/12/2008 8:33 AM (GMT -7)   
(((((((((((((((((((((((((((((patientspiders)))))))))))))))))))))))))))))))))))))
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...-?
All suggestions/options/opinions are caveated with please consult with your local health care provider...


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 8/12/2008 4:29 PM (GMT -7)   
Hi Your right it is early on the Hum. I read what I can on the LDN and am interested in what people have to say about it. Worms though they kind of give me the willies so to speak. What caused your miscarriage? Just was wandering if you wanted to talk about it . I just don't want you feeling alone .lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 8/12/2008 4:38 PM (GMT -7)   
!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! MANY HUGS!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Diagnosed early 2007 with rectal Crohn's.  Several peri-rectal abscesses and two fistulas with setons.  No other symptoms.
Allergic to Remicade and Humira.  Currently on 6MP.
 

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