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indigosunrise
Regular Member


Date Joined Nov 2007
Total Posts : 497
   Posted 8/12/2008 9:04 PM (GMT -7)   
I have a 9 year old son who has been getting a lot of canker sores lately.  To be more exact, they are small, more like apthamous ulcers.
 
Anyhow, with me having been recently diagnosed with Crohn's and with him getting these, I cannot help but worry...
 
I will be scheduling his well-child check up very soon and I was wondering, would it be weird for me to voice my concerns to his pediatrician?
 
He is also a picky eater and I have spoken to his pediatrician about that in the past.  I make sure he takes a daily vitamin.  Can Crohn's make you a picky eater?
 
I guess the frequency of the sores alarms me, because I get them as well. 
 
Please let me know if you think I am over reacting or anything like that.
 
Thanks!

lalalaCD
Regular Member


Date Joined Jul 2008
Total Posts : 36
   Posted 8/12/2008 9:43 PM (GMT -7)   
i think all kids that age are picky eaters...my boyfriends sister is 9 and all she willl eat is mac and cheese and choc milk...canker sores can be from stress and/or not enough good nutrition...i wouldnt worry the doctor will know what to do as well so dont worry!! lol
 
         
 
 
 
 
                     Diagnosed Aug 2007 of crohns disease
                     Currently Taking 6mp (soon remicade)
               panic/anxiet attacks...not on meds for them
                               Fistulas make me mad!! lol
                                   


crohnspatient13
Regular Member


Date Joined Jul 2008
Total Posts : 128
   Posted 8/12/2008 9:45 PM (GMT -7)   
i don't want to further your worries but I'll just let you know that my very first symptoms of crohns occurred when i was around 7 years old and it started with mouth sores and the pediatrician just attributed it to malnutrion (duh because of crohns) but said i wasnt eating enough of the right things. also one other thing that occumpanied the sores was cracks on my tongue, what the doctors called geographic tongue (they were fishing there) but it was really first signs of inflammation due to crohns.

the biggest noticeable change that was due to these early symptoms was pain in my mouth when i would eat certain foods like orange juice (anything with high acidity) and things like chocolate, but my parents knew there was a real problem when it progressed to everything bothering me including water.

i would definitely bring it up to the doctor but more than anything just keep an eye on the "picky" eating habits and mouth sores and maybe see if he's not eating because he just doesnt like it or it he's not eating because it hurts.

good luck!
diagnosed with Crohns since 2004
Hospitalized often for colon rest and TPN
Have been on 6MP, flagyl, cipro, prednisone, remicade (3 1/2 years).
Now trying Humira every two weeks.


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 8/13/2008 9:59 AM (GMT -7)   
I had canker sores for years and years when I was younger (started in my teens). Hormonal shifts can also trigger them. I did not show signs of Crohn's until I was 34 years old! So, don't worry too much. Lots of people have canker sores who never get IBD.
--40 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine
--rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--methylpred - finally off 6/15/08, tried Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08
--single mom to 10-yr-old girl


indigosunrise
Regular Member


Date Joined Nov 2007
Total Posts : 497
   Posted 8/25/2008 6:12 PM (GMT -7)   
Thanks everyone!
 
I spoke to my Internist about my son and she suggested taking him to a pediatric gastro.  I was going to wait a little while and see how he kept doing, but this past weekend he didn't eat much and complained of a stomach ache.  He also had another mouth sore this morning. 
 
I called and made an appointment with a ped gastro today.  I am hoping it is nothing to worry about, but with him not eating much and getting new sores often, I cannot help it.  At least this will hopefully rule out the chance of IBD.
 
I really wish I could say I was just paranoid, but I don't think I am this time. 

hspenser
Veteran Member


Date Joined Dec 2005
Total Posts : 544
   Posted 8/25/2008 8:43 PM (GMT -7)   

I had canker sores when I was a young boy and continued to have them all the way through my thirties....funny thing is that for several years before the crohns hit I did not have them anymore.

Then I started getting mouth sores when my crohns was most active...the sores were way different with the crohns than the canker sores.  The canker sores were small and round and the crohns sores were much larger and elongated.

In both cases heavy doses of lysine helped cut back the duration of the sores as well as reduce the pain associated with them.  It was a dentist that suggested the lysine back in the early 70's...


dx IBS 1999   UC 2000   CD 2001
Tested BIOGEN TYSABRI (gave me 2 years of remission)
currently on Low Dose Netroxene (started Jan. 19, 2007)...against Dr's wishes, he was pushing for Remicade.  Stopped the Naltrexone July 28th...started Humira Aug 31st, 2007...current dose two shots every other week.
Crohns is currently active and has been since April of 2005
51 yrs old

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