Pyoderma Gangrenosum

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SouthPaw33
Regular Member


Date Joined Aug 2008
Total Posts : 21
   Posted 8/12/2008 10:48 PM (GMT -7)   
   Greetings....
 
       I'm kinda new to this forum, but not to crohn's. Was dx'd Jan 2000 and have been living a nightmare ever since. Recently my G.I. referred me to a dermatologist to see about these sores that I have had on my lower legs. The dermatologist dx'd me with pyoderma gangrenosum. I'm still not utterly convinced that is what I have, but I'm not a doctor either ha ha. The pain that i have  not only comes from the sores, but in my muscle, joints, tendons[espcially my achilles tendon], and bones. The pain most of the time is unbearable and am womdering if anyone has similar symptoms and if they have.... have you found a treatable form of pain management.. My doctors try to keep me relatively pain free, but this past summer has been the worst so far. I am 33 years old walking around with a cane. Talk about embarassing. To add to my list.. I have also had 27 inches of sigmoid removed, a distal hernia repair from the removed colon[ it was the size of a softball], and 3 fistula's which have been drained, but keep coming back!!! They hurt like hell, but nothing like my leg. Also i have already done 7 rounds of remicade with marginal results. Need Some Help Please...

Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 8/12/2008 11:20 PM (GMT -7)   
Are you on cipro? On of your complaints sounds a bit like a side effect of cipro. See: http://www.healingwell.com/community/default.aspx?f=17&m=1176764

FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 8/13/2008 3:55 AM (GMT -7)   
Hello SouthPaw! This all sounds horrible! I'm sorry you are going through this. I remember other posts about this condition so I suggest you use the "Search Site" tool. I hope you find relief soon!!
Diagnosed early 2007 with rectal Crohn's.  Several peri-rectal abscesses and two fistulas with setons.  No other symptoms.
Allergic to Remicade and Humira.  Currently on 6MP.
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/13/2008 6:30 AM (GMT -7)   
Lyn "Howlyncat" & also Curley suffer with PG. Hopefully one of them will be along soon to shares some thoughts.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


SouthPaw33
Regular Member


Date Joined Aug 2008
Total Posts : 21
   Posted 8/13/2008 8:41 AM (GMT -7)   

 

    hi there keeper... no not on cipro. My g.i. didn't think it was a good idea with my blood work coming back as low as it was. I regularly have gastro bleeds and have to be constantly monitored. they are considering humira if my lupus test come back negative.


Mackiesmama
New Member


Date Joined Jun 2008
Total Posts : 10
   Posted 8/13/2008 3:06 PM (GMT -7)   
I had pretty awful PG. The first episode on my left leg was treated w/ IV prednisone and antibiotics. The high doses of steroids nipped it in the bud but took a couple weeks. The 2nd was worse and the steroids didn't help. I ended up having to go on cyclosporine and it eventually cleared it up after 4 months or so..........it was a horrible time in my life...one I hope to never revisit. I do suggest that drug if yours isn't clearing up. I was 21-22 at the time...now I am 30. Good luck!

Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 8/13/2008 10:22 PM (GMT -7)   
Hi Southpaw - with your fistulas they must be trying some kind of antibiotic, no? The achilles tendon issue is a new warning for cipro and levaquin and possibly some other related antibiotics. There is the potential of tearing of that tendon which is not a good thing. You should check out the thread that I listed above if any of that sounds familiar - just copy it and paste into the address bar of your browser. You may want to ask about alternatives.
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