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Shynz
Regular Member


Date Joined Aug 2008
Total Posts : 37
   Posted 8/13/2008 2:53 PM (GMT -7)   
Hello, My name is Alexandra, I am 19 and I have been diagnosed with Crohn's Diease since 2004. I wanted to ask about Remicade...I have been a Flagyl, Cipro, Prednsone, and currently on Imuran and Endocort. I am also trying a lot of natural medicine, but with natural medicine it just takes so long...and I want to be able to do so much without my Crohn's holding me back. I wanted to hear about Remicade, I know there are some severe symptoms. Has anyone had a problem, that made them want to stop Remicade? Thank you very much to those who reply:)

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/13/2008 3:38 PM (GMT -7)   
Hi there Alexandra, and welcome to HealingWell. I hope you find a lot of friendship and support here.

If you click on the Crohn's Disease Resources at the top of this forum, you'll find a lot of information about Crohn's and various medications. You can also find some of our better discussions on Remicade and some natural therapies by going to the new medications thread, which is here.

Again, welcome. Please feel free to jump in on our other discussions - we're glad to have you here.

Ivy.
Co-Moderator Crohn's Forum.


Shynz
Regular Member


Date Joined Aug 2008
Total Posts : 37
   Posted 8/13/2008 3:42 PM (GMT -7)   
Thank you Ivy, I appreciate the welcome:D
19 - Diagnosed for 5 years with Crohn's. ~ Waiting to backpack through Europe ~


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/13/2008 3:44 PM (GMT -7)   
:-) You are welcome!!
Co-Moderator Crohn's Forum.


jenngrl81
Regular Member


Date Joined Oct 2007
Total Posts : 208
   Posted 8/13/2008 3:44 PM (GMT -7)   
I have just had my second infusion of Remicade. I've had no serious reactions; my bp dipped a little low during my last infusion so the nurse just slowed down the IV drip. I've also had some shortness of breath but it passes quickly. I'm hoping this will be my Godsend! Give it a shot!
Pentasa- 1000mg/2x 1/08; Percocet
Ultram ER 200mg; Prilosec 40mg; Xanax-ANXIETY; Cymbalta 60mg
Entocort 9mg
Probiotic
Ferrous Sulfate 325mg/daily for anemia
Azathioprine 150mg
Currently on a Low-residue diet as of 11/26

I'm so tired, when will this get better?


Shynz
Regular Member


Date Joined Aug 2008
Total Posts : 37
   Posted 8/13/2008 4:00 PM (GMT -7)   
Well thats good, I hope it is your Godsend:) I hope it will be mine as well:) thank you for your reply.
19 - Diagnosed for 5 years with Crohn's. ~ Waiting to backpack through Europe ~


SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 8/13/2008 4:59 PM (GMT -7)   
Welcome Alexandra,
Sorry you have this horrible disease too. Dont be afraid to ask anything on this forum, you will get some great advice and lots of compassion from the posters on here. Good luck in finding the right medication to put you in remission too. Jo

Shynz
Regular Member


Date Joined Aug 2008
Total Posts : 37
   Posted 8/13/2008 5:23 PM (GMT -7)   
Thank you for the welcome Jo:) I hope to find some advice and I think I have come to the right place to look for it:)
19 - Diagnosed with Crohn's for 5 years. ~ Waiting to backpack through Europe ~
Western Medication - Imuran & Entocourt
Natural Medication - Probiotics
L-Glutamine
Chinese Herbs for Inflammation
Acupuncture


broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 8/13/2008 7:41 PM (GMT -7)   
Welcome Shynz!

Sorry you are here though! I did have to stop remicade because I built antibodies to it. However, I did not have any serious reactions or problems with it. Just wasn't the right med for me. Here's hoping you find the right med(s) soon! I will also note that the imuran worked very well with the Remicade and now with the Humira if that helps.
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Glucosamine, Multi-Vitamin, Ultracet Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, peri-menopausal.


SouthPaw33
Regular Member


Date Joined Aug 2008
Total Posts : 21
   Posted 8/14/2008 6:22 PM (GMT -7)   

 

  Hi Alexandra,  Sorry that you have to deal with this stinker of a disease[ no pun intended]. I was diagnosed in jan of 00 and it has been the roller coaster ride of my life. I have been through almost every med known to crohn's and remicade was the only thing that provided me with mild relief. All crohnies are different though so what may work for some may be terrible for others. Remicade has many side affects so please beware.. I am also new here but have lived with cd for almost ten years. I wish you lots of luck and hope you remission very soon.


Shynz
Regular Member


Date Joined Aug 2008
Total Posts : 37
   Posted 8/15/2008 3:32 PM (GMT -7)   
Thank you for the welcome:) BroomHilda, and Hello SouthPaw. I appreciate your reply. I am hoping remicade will put me in remission...without any side effects. I am having a hard time convincing my mom to let me try it...she is concerned with all the side effects. But for my health...I think it is a risk I should take:)
19 - Diagnosed with Crohn's for 5 years. ~ Waiting to backpack through Europe ~
Western Medication - Imuran & Entocourt
Natural Medication - Probiotics
L-Glutamine
Chinese Herbs for Inflammation
Acupuncture


lilturbo
Regular Member


Date Joined Feb 2008
Total Posts : 298
   Posted 8/16/2008 7:41 PM (GMT -7)   
Welcome!

I have been on Remicade for about six months and have had no problems with it. My doc just recently doubled the dosage of my Remicade to help control my Crohn's because prednisone has been the only drug that has controlled my symptoms 100%. He doubled the dosage b/c I can no longer take prednisone due to my bones. So far so good! Good Luck and please keep us updated!

-Emma
turboemma.blogspot.com/


Shynz
Regular Member


Date Joined Aug 2008
Total Posts : 37
   Posted 8/17/2008 11:57 AM (GMT -7)   
Thank you for the Welcome Emma! I am happy to hear Remicade has been doing well for you. I really hated going on Prednisone...never was too fun:( Thats good you stopped the Prednisone it's a pretty strong steroid. Hope all goes well with the double dosage:) Good luck:) as well:)

Alexandra :D
19 - Diagnosed with Crohn's for 5 years. ~ Waiting to backpack through Europe ~
Western Medication - Imuran & Entocourt
Natural Medication - Probiotics
L-Glutamine
Chinese Herbs for Inflammation
Acupuncture

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